Please Pray

I just received a call from transplant and they informed me they would like for us to come back. No, I'm not kidding. My hands are shaking, my heart is pounding and tears are stinging my eyes. Not to be admitted, but to be scoped and to be seen in clinic.

3 weeks before Christmas. 3 weeks before our first real planned family vacation for our children since Ashley Kate's birth 3 years ago. 3 weeks is not enough time. I don't trust this situation. I don't believe we will go there and then be released home in time for Christmas. Call me crazy, but I don't believe it. I don't want to go there. I told them to go back and talk about it again and let me know why I can't make this happen closer to home.

I need a real GOOD reason as to why her scope can't be done locally. I need a real GOOD reason why I need to sit in a clinic visit to talk when we can talk just fine over the telephone. I can weigh her, I can take blood pressures, I can take a temperature, I can have biopsy slides shipped over night to them(we did it last time). Clinic will serve no purpose other than taking vitals and discussion. We can do that by phone. If the surgeons want to know what's going on with her then CALL me. I'm happy to relay every single detail of her past three weeks. I have kept impeccable records. I'll fax them a copy of every single temperature, in put, out put, blood pressure, etc,etc, etc.

We can't do this to our kids right now. I don't think they will be able to handle it this soon. Please tell me this is not really happening! Somebody please tell me we can do this locally or semi locally. If she is in severe rejection then I'll go back, but if anybody can treat whatever is happening to our baby anywhere in this vicinity then sign us up. Please!

My heart is on the verge of breaking once again. Our sweet baby sits in the floor of her nursery reading her books with no hint of what is going on around her. The phone rings and all she does is smile at me and point to it. If she only knew who was on the other line and what they were asking us to do.

Please pray for us. Pray for her body, her damaged bowel, her life to be protected. Pray if there is anyway possible for us not to go, not to leave Blake and Allison, not to miss Christmas that it will show its self. Your prayers for our baby are truly coveted at this time. Trish