Our Home away from Home...Again
Welcome back to the PICU, Ashley! I really must have a banner printed that stays permanently fixed to the wall. I can't even type about my emotions at this point. I am afraid if I stopped to try and think for too long that they might over take me and this is definitely not the place to allow myself to be broken in. Just know that it has been a difficult day to swallow.
Ashley's chest x-rays show that she is fluid over loaded. Her little body just can't seem to figure out where to put the fluid it needs in order to function. Upon our arrival in the treatment center her oxygen sats were a whopping 66! Unbelievable how quickly things can change in her little body. In 24 hours she went from stability to an inability to breathe on her own. She is now on 4 liters of oxygen as we try to pull fluid off of her. Why the PICU and not general Pediatrics? In case we can't get the fluid off and she needs more support that would come from the ventilator(the big ugly thing is sitting in the corner just staring at us!).
Our disappointment runs deep. Deeper still since we really believed we were so close to leaving Omaha behind for the warmer Texas climate. Dave tried to convince the doctors that we couldn't breathe during the winter months and that we would all be much safer in Texas. Looks like we will need winter coats.
Ashley Kate's feeds have been turned off. Can I even begin to describe how bad that feels? No, I can't so why bother. Hopefully in a day or two she will be restored to a more normal fluid level and we will begin to tackle that feeding monster again.
Days like today make me wonder and ponder and cry. Thats the truth. I wish I had the answers, but I don't. Trish