Settling Down

What a day preceded by one of our longest nights here in Omaha. Ashley is finally asleep and resting for the first time all day. She endured the line change today and has done well with all of the commotion. She was not asleep during the procedure, but they promise me she felt nothing other than a few stitches to hold it in place. The nurse told me she will not even remember what happened. Some of these drugs are really scary, huh! How ironic it is to me as I watch my sweet Ashley take all of these meds all day long every day that we don't take so much as an Advil in our home. I have never even bought a bottle. God really does have a sense of humor sometimes.

Ashley in the midst of feeling so yucky still can make me smile. As people begin to enter her room or approach her bed she is immediately waving bye-bye to them. She has learned that most of them are going to cause her some discomfort so she ever so kindly just has to ask them to leave. Of course they don't because they are in there to help her even though she would disagree. I love this silly baby.

As far as the infections stand nothing has changed, but I am praying that the antibiotics will begin to help her fight against these nasty bugs. I am so grateful to God that we have not been to the OR today. I really like Ashley's surgeon Dr. Grant. She just has a way about her that makes me trust her. I am very, very thankful for the skill and wisdom God has equipped her with. Ashley's WBC are still very high into the 40's. They have not really made any significant changes today. I would love to report that her new liver seems to be working . Her Bilirubin is down from 14.5 to 4.7! This is the lowest it has been since Ashley was a very tiny baby back in Medical City. Her liver enzymes have also registered in the correct range. I am so excited about this.

I was able to take a very long 2 hour nap this afternoon. I slept so hard I woke up with a headache. At times like this I really miss my talented husband and the skill God has given to him. I can't wait for an adjustment. The kids are really excited about spending a lazy night of watching movies, playing games, and eating snacks at home tonight with their Dad. He has promised to let them eat popcorn in our bed! Is he crazy? I hope they turn the comforters back and remove the pillows first. How I wish Ash and I could join them. I look forward to the day we get back home to Longview.

So many encouraging and kind words were left for us today. I am so appreciative of the time you spend reading Ashley's story. She is such a blessed little girl to be loved by so many. Your prayers have pulled me through another long afternoon and I am grateful to each of you. I will try and post later on this evening so until then enjoy your families and take advantage of each and every moment. Love, Trish