Negative Cultures = Positive News!!!
We finally have negative blood cultures! Yeah, for Ash! How blessed we feel with this news. So from today we start counting the duration of her treatment to clear the infections. She looks fabulous! She is sitting up and being as awnry as ever. The transplant coordinator just walked past me and said, "Your daughter looks precocious!" I hope that means good. As soon as I walked into her room this morning she burst out into the most beautiful smile you have ever seen. I think she feels really good today.
If we could just get her feeds up to 55cc an hour then we are moving out of this place. Barring any new infections which would cause us complications. Right now we are praying she stays infection free. This morning we did increase her feeds to 20cc an hour and reduced her TPN to 23ccs an hour. We also increased the formula from 15 calories to 18. These are all positive steps in the right direction. Please join us in praying that she will not vomit. We need her to adjust to a full tummy (actually intestine) and grow and grow and grow. She is 17 months old today and she weighs 16lbs, but let me assure that all 16 pounds are full of trouble.
Today is the last day that Nan will be here helping us. It has been such a blessing to have her here. I have been able to do laundry, go to the store, pick up dinner(outside of the cafeteria), and sleep in a real bed. Tomorrow I will go back to living in the family room, showering in the public shower, and sleeping in our chair. Hopefully it won't be too much longer until we are on our way to our apartment.
I have a very difficult prayer request. The family of the 2 year old trauma patient is saying their good byes today. It is such a difficult time for these precious people. Please keep them in your prayers today and in the days to come. They have other small children and I can't imagine how difficult it is to take your children in one by one and have them say good-bye to their baby brother. My heart is broken for the pain they are going through. I would really appreciate any time you could spend in prayer for them. They desperately need comfort at this difficult time in their lives.
Thank you checking in on Ash this morning. Your presence here touches my heart. I pray you all have a wonderful day, and that you feel His presence in your lives. Trish
posted by Ashley @ 11:17 AM
5 Comments:
I was smiling unti that last paragraph. It instantly brought me near tears. It has been difficult to even HEAR of so many parents having to go through the worst of all parents' nightmares. I can only imagine what it must be like seeing it close up day after day. Especially when they are having to adjust to such a change so suddenly. This family and the others will be in our prayers, along with Ashley and her donor's family, as always. BTW, precocious means ornery (or awnry), so I'm sure the nurse was complimenting Miss Ashley. I hope you have a restful day enjoying the outside a little before tommorrow!
According to dictionary.com, the first definition of precocious is: "unusually advanced or mature in development, esp. mental development: a precocious child." =)
I will be praying for the family.
DEAR ASHLEY , I m very far from you (do you know Buenos aires,Argentina-southamerica)but everyday I enter on the internet to see if today you are fine.
Pretty girl, God Bless you and your beautiful family taking care of all the details with calm and hope.
thank you for this lesson of life.
Such delightful, blessed news! Hoping Ashley continues to have these good days with much progress. Holding you up in prayer always...
Trish, what wonderful, blessed news you report to us today! I am so happy and praising God for his goodness. On the downside of your entry, my heart is so sad for the family saying goodbye to their precious 2 year old. Getting to know your family and learning so much has reminded me just how precious our children are and even when they are at their healthiest how little time we really have with them before they grow up. Thank you so much for your willingness to be so transparent, which allows those of us reading your blog to learn so much for your family. You have such a sweet, loving, giving spirit, and I know God has prepared you your whole life "for such a time as this." May God bless you, and may He bring you some special angels to keep you company when Nan goes home. Much love from your sister in Christ, Karen
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