Lazy Afternoon

Our little Ashley has been sleeping since 2:00 this afternoon. She must be trying to catch up for all the nap time she has lost over the last couple of weeks. Her body is trying to fight something off, but we still do not know what it is. She looks really sweet laying in her crib all dressed in pink. The doctors told me this morning that onesies would become our clothing of choice for a while. I don't really mind, I am just thankful she gets to wear her own clothes and doesn't have to be dressed up like a "push pop".

She has been watching her new Blues Clues vidoes that her Aunt Toni sent with Aunt Rae. Too bad Aunt Kathy isn't here to see them with her. I believe they must have some kind of magic in them because Aunt Rae says they were making her sleepy too. All I have to do is pop one in and Ash goes right to sleep.

I wish she had a little more energy today, but I just keep telling myself she needs to rest to heal. I am praying that everything will straighten out by morning so we can just continue getting closer and closer to home.

This morning I was given a list of the meds she will be taking for the next year at home and the list that she will take for her entire lifetime. It is a little overwhelming when I think that I can not afford to make a mistake or forget to give one on time. Ashley's post transplant life will depend on me becoming a more organized and scheduled person. I know Dave and my Mom have got to be laughing out loud at that statement, but I believe I can do all things through Christ.

Ashley's feeds (that makes it sound like we are feeding a cow, but thats what they call it) have been increased to 20cc per hour and her output is low. I was telling the nurse how suprised I was that she didn't have more output and that she wasn't dumping anymore and she looked at me and said, "Honey, thats what the new bowel is for, she is absorbing!" I can't believe I hadn't put two and two together. I am so used to Ashley having "dumping syndrome" that I forgot that is why we have put her through this whole ordeal. How grateful I was when I realized that her new healthy intestine is doing it's job. This is the most amazing gift. Ashley will actually be able to absorb nutrients and grow from her feedings. This is beyond what I have comprehended until today. God is really good to us.

I am going to go lie down and take a nap while I leave Aunt Rae on babysitting duty. I would not be able to survive without the help I am receiving from my family and friends who have made it possible for me to have the help. I love you guys!