Going to Bed
I wish we were going to bed, but my little one thinks it is daytime. Ash got in a couple of very long naps today and now I am paying the price. She is full of fight tonight. She has managed to pull out some of the sutures that hold her g-tube in place. She is trying to take off the ostomy bag and she is determined to remove the central line from her neck. Something has her wound up tonight so I am standing gaurd over her crib. I have tried everything to keep her hands off of things that she shouldn't be touching but she is a little stubborn. I know this is why she has overcome so much in her little lifetime. The fight that God put inside of her is too strong to let someone else win. I believe I may have to change her name to Houdini because she has managed to figure out how to escape from her arm restraints. Unbelievable!
Today I was told how Ashley thought she could help during her scope yesterday and she tried to take the instrument from the doctors hands. This morning in rounds he thanked her for her help. This cracks me up. She is really showing them who is boss around here. Without the use of some really strong anesthesia they can't get anything past her. My sweet little one has just about had it with Omaha and I believe she is hoping they will ask us to just leave.
Well regardless of all the trouble this little girl is I am absolutely in love with her. She is such a gift to my family and every day I am finding out that she is a gift to so many others as well. I could have never imagined what life would be with Ashley. It is so precious and I am loving every moment of it. I wish her Dad was here to watch her take control of this place. She thinks she is the boss. God had big plans for my family and I am so humbled to be living out this plan. Of all the moms in the world He could have chosen for Ash I am so blessed that I get to be the one to try and tuck her in at night.
Goodnight Blake, goodnight Allison, goodnight Dave, and goodnight to all of you who have become like family to us. I wish you all well and pray His blessing on all of you tonight.
posted by Ashley @ 11:08 PM
1 Comments:
Father we thank You for the fight little Ashley has in her. We pray that she is an inspiration to the other children in the PICU. We know these families struggle from day to day wondering when their child will get well, if there will be rejection of their new organs, and when they can bring their babies home, as well as many other fears and uncertainties. Father we know that You have those answers, and we just pray for the families that you would help them through the ups and downs. We pray for Chloe and Skylar tonight also Lord, that You would just be with them and their families. Help them feel Your prescence and love with them tonight. Thank you for touching our hearts with these precious families, and give them peace and comfort in knowing that You hold them in the palm of Your hand all the time. We pray for a night of rest for Trish and Ashley. We also pray that Ashley gets to move into the new room tomorrow, but that You protect her from any new germs so that she doesn't get any infections. We also pray for David, Blake, and Allie, Lord just help them to be strong until their family can be reunited.....we know how much their hearts ache to be together. You have blessed this family in so many ways, and we pray that Your love and blessings continue to pour out on them. In Your Precious Name I Pray Amen.
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