Sleeping and Crying

Just before Ashley went down for her surgery on Friday Trish had a request for our transplant team. "Please just bring her back to me like I am giving her to you" Ashley had been doing so well for 3 or 4 days straight and things were looking pretty good for her. (Aside from not being able to eat of course) She was happy and playful and generally having a great time. Now, I am sure that the transplant team would love to be able to tell every parent that all is going to be OK, but the reality of the human body is that we cannot predict the outcome of any given test, procedure or surgery. We have learned that when you transplant an organ (or 3) many of the rules and variables of how the body functions has to be thrown out the window. It is a whole different ball game so to speak. Well since Ash returned to us on Friday evening all she has done is sleep and cry. No amount of Mom's love or pharmaceuticals has been able to console her. They have once again stopped her feedings in preparation to take her back downstairs for an abdominal CT scan. They feel as though it could be possible that the graft bowel was perforated during the placement of the GJ tube on Friday. Today I pray that this is not the case, I pray that the graft is working well and I pray that the transplant team would find the problem being something more easily correctable. These are my prayers for my daughter today.

Thank you for keeping up with a little Gherkin today and again I sincerely thank you for your prayers for her and our family.

DAVE