Sleeping and Crying
Just before Ashley went down for her surgery on Friday Trish had a request for our transplant team. "Please just bring her back to me like I am giving her to you" Ashley had been doing so well for 3 or 4 days straight and things were looking pretty good for her. (Aside from not being able to eat of course) She was happy and playful and generally having a great time. Now, I am sure that the transplant team would love to be able to tell every parent that all is going to be OK, but the reality of the human body is that we cannot predict the outcome of any given test, procedure or surgery. We have learned that when you transplant an organ (or 3) many of the rules and variables of how the body functions has to be thrown out the window. It is a whole different ball game so to speak. Well since Ash returned to us on Friday evening all she has done is sleep and cry. No amount of Mom's love or pharmaceuticals has been able to console her. They have once again stopped her feedings in preparation to take her back downstairs for an abdominal CT scan. They feel as though it could be possible that the graft bowel was perforated during the placement of the GJ tube on Friday. Today I pray that this is not the case, I pray that the graft is working well and I pray that the transplant team would find the problem being something more easily correctable. These are my prayers for my daughter today.
Thank you for keeping up with a little Gherkin today and again I sincerely thank you for your prayers for her and our family.
DAVE
6 Comments:
Praying for the CT to show an easy fix. Praying that Ashley will not have to endure yet another surgical procedure or the dreadful vent.
We are praying that the CT will not show a perforation in her bowel. Also, we pray that she will find comfort and rest soon. Trish, may God's grace and strength surround you in such a tangible way. My heart hurts so much for you and the load that you carry. Yes, you do it with much love and grace, but, it is such a heavy load. You are never far from my thoughts and prayers. You have an amazing strength that is truly from God.
praying for this scan... by the way, we saw the article about the scrapbooking event for Ashley in today's paper. It was a wonderful surprise to see her little face!
Praying for sweet Ash....& you guys.... (the waiting game- is not much fun....but our prayers are that her bowel is not damaged in anyway...that there is a much easier solution & answer to her unease.) Praying for God to hold each of you tight as you wait to see the results of the CT. Kisses & "very Gentle" hugs to the little princess. (= My two kiddos LOVE her so much...they pray for her ...talk about her...& love to look at her pictures & listen to "Jesus Loves me". (= Praying..
We are praying for all of you today! God bless!
Lori
Praying with you that she will be able to be comforted and calm. And for the results of the graft.
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