Ashley's Story

She will leave fingerprints all over your heart

5/13/2008

Why is she dehydrated?

Good question. No one knows. We spoke with our doctors in Shreveport this morning and they wanted her pediatrician to "put an eye on her". So we made the appointment, ran her up there and he agreed with me that she doesn't look dehydrated. She was actually crying while we were there and the tears were flowing. Still he ordered another IV bolus to be run and it has two more hours to go until it is complete. The extra 1/2 normal arrived mid morning and I have made the new formula recipe and included the extra fluid. I also increase her hourly rate so that she gets more fluid than she was. We will attempt to draw labs in the morning and if we are unsuccessful then its off to Schumpert we go and the line will probably be removed. Thats the plan at this point.

We have been in the process of slowly switching Ash's formula from the non fat formula(because of the chest injury, chylo thorax, she had in February) back to neo cate, but that change should not be causing dehydration. She is still not "losing" fluids in any way that we can figure out. Her stool output is normal and she's not vomiting. She is making urine and her enteral feeds are being tolerated so I have no idea why she is dry vascularly. I just can't figure it out. She has started to tremble a little and that is one of the side effects of dehydration that she usually presents with.

Dave and I are concerned. Those little red flags that we hide in the back of our minds are starting to pop up. He said over lunch how easy it is to forget that she's just so fragile. The good days are much more fun than the bad and we aren't looking forward to problems. We are hoping all this extra fluid does the trick without triggering any kind of respiratory issue. You know how famous she is for shifting fluids to all the wrong spaces. I am staying on top of her blood pressures, temperature, and heart rate. We know the drill. If any of the three pop outside of the norm then off to the hospital we must go.

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