Sleeping in on Saturday
How does Ashley know it is Saturday? It is almost 9:00 and she is just now beginning to wake up. That is great, I know she needed the rest. Trish is sounding so tired to me. Last night while journaling the charge nurse approached her and told her she is not allowed to use any computer anywhere in the hospital. Trish informed her that when she was admitted onto the floor her nurse showed her where the computer was and told her she could use it anytime. The charge nurse laughed and said that was ridiculous. She told Trish she could not use it because "you will go on the internet and get a virus that will mess up the entire hospital database!" I guess that charge nurse does not realize that her nurses are on and off the internet all night long. So, Trish is very sad this morning that she is not able to talk with all of you guys. We have not yet given up, we are still praying for a solution to this temporary setback.
Trish was talking with part of the transplant team last night about "reality." They were telling her that when Ash is released from the hospital to go home she will be back. They told her that all the babies come back with something wrong. All without exception. A little boy I met when I was down there was released this week and he was in the outside world for 3 days and has already been re-admitted. I guess the team just wants to prepare us. We are realizing that our reality will be having a sick fragile child for the rest of our lives, but you know what, we are so very thankful that we have her and we love her no matter what. We will adapt and learn to take care of her both in and out of the hospital and we will find our blessings each and every day.
Thank you for all your prayers for our family. Please be with us in prayer that we can find a computer solution for Trish soon so she can keep in touch with all of you. Thanks
posted by Ashley @ 8:59 AM
2 Comments:
As soon as we read the post last night we started praying about the computer situation. I know much it means to Trish to be able to read everyone's notes of encouragement. God will provide a way either using the hospital computers or another source. We pray that Ashley continues to do well in her new room. I know how thanful you are that she is able to rest more comfortably now. Over 10,000 hits on the website now.....that is a lot of prayer. We pray that God continues to pour out His blessings on your family. We love you guys and are sending many many prayers up to the Father for you all.
While our baby girls have had many of the same issues with health, we have not had to deal with transplant surgeries. Therefore, I know how fragile and careful their lives are when coming home, but not how much more that is concentrated by transplant issues. I will be praying for you, Trish, Ashley and the rest of your precious family as you prepare to bring her home and start life "on the outside" with her. I am praying believing that things will go well. Morgan, my daughter, had so many ups and downs in the hospital for 7mths that I felt that would be the case when we came home. We did re-enter the hospital a few times, but never for too long and as time goes by these babies do so well at home. Something about that wonderful, loving environment just agrees so well with them and God truly blesses that.
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