Ashley's Story

She will leave fingerprints all over your heart



What does that mean? It means they don't know what the biopsies show. They think they are "suspicious" for rejection. Mild and not severe. We are THANKFUL for that last phrase.

Currently they are treating her for rejection. The problem with that is the treatment for rejection may cause the virus or whatever else she has to become worse. Ashley is sick and that is all we know for sure.

Assuming nothing else changes(like line infection, sepsis, pnuemonia, all the other frightening things that lurk in ICU halls) we could be here for a week or possibly months. How do you plan for that one? I have no idea. I guess I will just take it a day at a time and when that becomes too overwhelming then I will take it a moment at a time.

She continues to be really uncomfortable because the treatment for rejection is to increase the levels of her anti-rejection drugs (FK) and to hit her hard with steroids. Her FK level is 5 times higher than it has ever been and she is getting steroid doses 50 times higher. This makes for a pretty "Grumpy Gherkin." She is so uncomfortable and that is the hardest thing for us to watch. She is grinding her teeth so much we are praying they do not break.

We are so grateful that at this time her organs appear to be safe and we are thankful that we are here in Omaha with this team caring for Ashley.

Some more "good" news. Dave left at 2:00 to head home but at 3:30 he popped back into our room. There was some kind of electrical problem in Memphis which caused a mess for air travel. Somehow it canceled Dave's flight to Dallas and there were not any other flights that would get him there in time for him to make his connecting flight home. So we get to have him here with us one more night.

Thank you for praying for our pickle. We don't take those prayers for granted.


At 5:01 PM , Blogger Sarah's In the Midst of It said...

Oh, I'm so glad you have Dave with you for one more day and night! And hooray for results that aren't as bad as you feared! I'm praying that your stay there isn't long, and that she is able to recover from this virus so quickly that her team can only attribute it to a miracle!!

Thanks for specific prayer requests--it is such an honor to pray for Ashley :)

At 5:09 PM , Anonymous Jule White said...

So so glad that Dave can be with you and Ashley one more night. I can tell in your posts how comforted you are when he is with you.

I am continually lifting all of you up in prayers. Praying hard for some relief for Ashley.

Love, Jule White

At 5:22 PM , Anonymous Anonymous said...

I am glad Dave has one more day with you girls! I am glad the results aren't hugely bad and that is only MILD rejection! I am so thankful for that. I will continue praying that she recovers from this awful virus soon! I love your family.


At 5:43 PM , Anonymous Anonymous said...

So happy to hear the good news. I am glad that Dave is able to be with you one more day. Praying for a quick healing and that you will back home as soon as possible! ~Chan~

At 6:27 PM , Anonymous Anonymous said...

This is one airport goof up that was good news......Glad Dave is still there with you. Praying for stable vitals ...normalized breathing....good kidney function.... (Healing).....Praising HIM your her parents. Not sure anyone else would be suitable. He knew what HE was doing ....(= Praying...

At 6:50 PM , Blogger Sun said...

Can I just say - YAY for the airport mess up? I bet you were SOOOOOOOOOOOOOOOOO happy to see him walk back through that door. Will continue praying for you all - esp sweet little Ashley! Sunshine

At 8:17 PM , Blogger Connie said...

At least we know how to pray! I'm glad it wasn't severe rejection. Poor sweetie. I'm praying that she'll be more comfortable and comforted!

At 8:23 PM , Blogger Amy T said...

What a welcome surprise that must have been! God must have wanted to bless you with another night together. The word MILD is a welcome relief. If it's got to be rejection at all, I would think mild is the way to go? Praying the drugs begin to do their work quickly so she can feel better soon. Poor baby.

At 8:31 PM , Blogger Carey said...

Lifting Ashley in Prayers. Im glad her Daddy got to stay with her for one more night. Praying for safe travels tomorrow.

At 9:33 PM , Blogger Joyful Days said...

From my heart to the Father's ears.

At 10:28 PM , Blogger Troy and Melanie said...

Just want you to know that we are constantly in prayer for you. We are so glad that Dave is getting to spend another night with you and Ashley. Much love and prayers.


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