Things are changing

Ash's blood pressure is too high.

Her oxygen sats are dropping. They want to put her on oxygen. For now I am just holding a little blow by in front of her nose to support her. Hopefully she will pop back up on her own.

She developed a cough yesterday and the congestion is much worse today.

We took a chest x-ray and it looks pretty good.

Her respirations are too high and she is breathing way too shallow.

Her kidneys have shut down(again). She is making very little urine even with the help of lasix. We think this is due to a VERY high FK level.

She is fluid overloaded making it difficult for her to breathe. Until her kidneys can pee off some of the fluid we are stuck in a hard place.

She is receiving and IVIG. As far as I can figure out that is some type of immunoglobulin to support her immune system while she is down. It is considered a blood product and is infused in much the same way.

I have no idea if anyone will talk to us about the results of the biopsies today. They did not know in rounds and so the likely hood of finding out today is pretty slim. Obviously that is disappointing.

Dave has left for the airport and so now it is just us girls.

I know our families are getting frustrated about the lack of information, but the truth is that we just don't know anything. I promise as soon as I know they will know and so will everyone else.