Ashley's Story

She will leave fingerprints all over your heart

10/28/2007

Too Little Time


It goes so fast! When I was a kid it seemed like the days could drag on forever, but now that I am a mom the days begin and then end before I am ready for them. Dave and Al have just arrived at the airport and are waiting to board their plane. Blake and Grandma flew out early yesterday morning in order to make it in time for the Tarheels first game at 1:00 in Dallas. As I hugged that handsome ballplayer goodbye I think I might have held on a little tighter than I usually do. He is just so wonderful and I wasn't ready to say goodbye. Eventually I let him go and its a good thing that I did. Our Tarheels went 2 for 2 yesterday winning 11-1 and then 18-1 ranking them 4th to enter into todays tournament play. They won again this afternoon 5-4 in an exciting game and are now preparing to play in the Super Series State Tournament semi-final at 5:00. Dave and Al should be able to catch the last couple of innings. How I wish Ash and I could have jumped on that plane with them!


Our week slipped by so quickly. There was just too little time. We tried to pack in as much fun as possible during our 4 and 5 days together(shopping, pedicures, paint ball, pumpkin patches, games, movies, date nights, wrestling matches, wagon rides outside, sock wars and crafts). Ash had her best day Wednesday and we are so thankful for that time. She laughed(as you saw on our video) and played and loved on Blake and Allie all day. Then Thursday and Friday she just felt bad. Very few giggles, but lots and lots of foot rubs! It didn't take long to train her brother and sister. All she had to do was put up a little fuss and hold that foot in the air. Two seconds later I would see one or both of them with a tiny pickles foot in their hands as they visited with her and told her how very rotten she was.

Yesterday we awoke to great news. They had suspected she might have slipped back into rejection and we waited anxiously for our biopsy results. ALL CLEAR! She was the only scope that produced good news that day. We couldn't be more thankful! Her CT scan showed some loops of bowel that had some thickening of the walls(this is not good and we will have to monitor it closely), but it also showed a complete resolution of the nuemotosis. That meant that we got to start her feeds back today running at 10mls an hour. Literally 2 minutes before Dave walked out they came in and pulled out her chest tube. It was in for a full 2 weeks. She screamed and put up quite a fuss, but after a little morphine she has drifted off to sleep. So much has happened this week. Lots of anxious moments and days, but the good news is that she is on feeds again and this will be our ticket out of here!

So many good times and memories to share with you. I won't take the time to do it all right now. I do want to record our days for Ashley Kate's journal, but first I think I will lay down and relax for a little while first. As always our room is too quiet and our hearts feel so empty when Dave and the kids leave us. It takes a little while to adjust once they are gone. We want to thank you for the prayers you continued to pray for us while we slipped away from her journal. The time spent on our kids was so worth it! We know you were praying for us and we couldn't be more appreciative. Have a great afternoon and I will share more with you later. Take care my friends. Trish

29 Comments:

At 2:37 PM , Anonymous Anonymous said...

So, very happy for you all. Thank you Jesus for giving them such a wonderful time together. Still praying that you and Ashley will be right behind them headed home.
Beth

 
At 2:40 PM , Anonymous jessica said...

I love to hear whenyou have good news to share. It sounds like pray is really working for sweet Ashley. I will continue to pray for her daily.

 
At 2:50 PM , Anonymous Anonymous said...

Yay - so glad it was a good week! And what good news about the feeds and the tube! :)

Brenda

 
At 2:52 PM , Blogger Paulette said...

wonderful report Trish. I am not ceasing in my prayers or lapsing any. I want to pray you al the way home by Thanksgiving or def before!!
I am so grateful you were a bit rejuvinated. I think it was a relief for me LOL them all being there, I din't feel the need to come check as often, but still prayed.
Get rested for tomorrow is a new day.
Blessings

 
At 2:53 PM , Blogger Morgy's Mama said...

Good to hear no new rejection ~ we're still praying!

 
At 3:12 PM , Blogger Sunny Day Tag Girl said...

We are so thankful for the good news and will continue to pray for the "loops". So glad you all had a good visit, so sorry you and Ash didn't get to go back with them. Thanks so much for the updates and congrats to the Tarheels!

 
At 3:45 PM , Anonymous Anonymous said...

Ashley looks so content sitting in that wagon with her big sister. Glad you had a good week and were able to do so many fun things together. Great to hear Ashley is able to feed now and that..that awful tube has been removed. Hopefully home is around the next corner, just in time for the holidays.:) Praying for a restful night for you and the littlest pickle. Keeping you close in prayer. God Bless..Karen.

 
At 3:51 PM , Blogger Laurie said...

What a wonderful week over all, even with Ashleys down days. The tube is out and no rejection, and healing in the affected area, WOW, I am so blessed for you. Will pray for the twisted areas to straighten out and feedings to go well from here on. I know you miss them tons but what a wonderful break for you to cherish and keep you going until you pack for HOME. Prayers continue for you Trish
that this time of restoration keeps your hopes high. You all are loved very much. Love the good news!!
Laurie in Ca.

 
At 3:54 PM , Anonymous Anonymous said...

I am so thankful to hear of the progress that Ash has had. The pic of her and Ali is just so precious. Praying for you all to continue down the road that will soon lead you home! ~Chan~

 
At 4:23 PM , Anonymous Anonymous said...

I think we have all waited patiently to hear from you and am so grateful for the wonderful time that you had with your family. The picture is precious! You know without a doubt that she is so loved by her siblings. Thankful that the chest tube is gone and will pray for her feedings. May you hold on to all the wonderful memories of the past few days. Praying for Ashley to come home soon!

 
At 4:24 PM , Blogger CrownLaidDown said...

Oh Trish, thank you for sharing your story, so that we could be a part of your lives...our family is praying for Ashley and asking the LORD to come and heal her completely.
Love you much in Christ,
Holly

 
At 5:04 PM , Blogger Gretchen said...

What a sweet picture of Allie and Ashley. I'm glad you had such a sweet time together, but of course saddened for you at the separation. God is good. He will reunite you when the time is right. Prayers for cont'd success with Ashley's feeds. (((hugs)))

 
At 5:19 PM , Blogger ManyBlessings said...

What wonderful news! Now praying for her little body to heal. :) And praying for you guys as you had to say good-bye. What an amazing family you have! It's obvious why God chose you all to have that little gherkin in your family. :)
d:)

 
At 6:39 PM , Blogger Carey said...

SO good to hear all the happy news. Keep it up Ashley! Praying Praying Praying!

 
At 6:59 PM , Blogger Michelle J said...

Trish, your whole family ROCKS!! Need i say more?
Michelle

 
At 7:05 PM , Blogger Elizabeth S said...

What a great picture! Glad you had a good visit. I know it went by too fast.

 
At 8:13 PM , Blogger sarahdodson said...

I'm thrilled for your wonderful news. The Lord's been gracious to your little girl! So happy that you all had such good family times together:)

 
At 9:05 PM , Anonymous Anonymous said...

God bless you & your whole family!!! YEAH!!! no more chest tube!!! Now... to get that girlie back home!! And you too!! :)
Wishing the both of you good sleep!

 
At 9:08 PM , Anonymous Anonymous said...

Trish,

You have been in my thoughts and prayers all day as I know you could be feeling lonely and blue as your wonderful family departs for Texas. I pray the memories and progress with Ashley will carry you for awhile. I miss you and that pickle's little feet! May you snuggle in close to God tonight! Lou Ann

 
At 9:14 PM , Blogger Amy T said...

Great news! So glad that chest tube is out and the feedings have begun again. Praying that she continues to get stronger and better so you're home soon! I'm so glad you were able to have such a wonderful visit with your loved ones! I know they enjoyed it as much as you.

 
At 9:28 PM , Anonymous Lori said...

So glad you all had such a good week together. I know it was wonderful having all of your family together.The picture is precious!

I know Ashley was glad to get rid of the chest tube. Praying for you all. Hope you have a restful night!

God bless,
Lori

 
At 4:02 AM , Anonymous Prayer Mom said...

God is so good. Praise His Holy Name!

It is just as much our honor to pray for Ashley as is Ashley's need for prayer. Where else can we see such wonderful moves of God's hand in the reality of a need?

 
At 5:20 AM , Anonymous Anonymous said...

Praying for all of you today! So grateful for the good news, and looking forward to hearing more... :)

 
At 5:34 AM , Anonymous heidi said...

Ahhh, what we had all been praying for... no posting since you were having so much fun together as a family!
More prayers in CT,
Heidi

 
At 6:16 AM , Blogger KimberlyDi said...

I bet all that fun & laughter exhausted her. And she is still a sick little girl. Praying the feedings go well and you can go home where you belong.

 
At 6:21 AM , Blogger Sun said...

YAY - absolutely precious picture. Sunshine
PS can you post an updated room number I have something I want to mail you - thanks so much.

 
At 8:19 AM , Anonymous Anonymous said...

You have a beautiful family. Still praying for all of you in Indiana, PA.
Jill

 
At 10:08 AM , Anonymous Tiffany said...

This is wonderful. I am so happy for you guys and that you had a wonderful time together as a family. And great news about her scope and the tube!!!! =)

Blessings!

 
At 7:59 PM , Anonymous Molly said...

I love this picture of your beautiful girls!

 

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