Ashley's Story

She will leave fingerprints all over your heart

2/03/2008

Battling

Lots of things are running around in my head these days. This week has been a battle. An emotional battle for me. I am happy. So thrilled to be home. Some days I'm so happy it frightens me. Life for us has settled into that wonderful state of normal. I find myself sitting still and absorbing just how great it feels to have Ashley Kate home. I laugh a lot and don't cry too much. My heart feels lighter than ever on most days, and I am just so grateful to be in this place.

Then... fear and doubt and ugliness starts to creep in and I fight to keep the "what if" thoughts from taking over. Its tough. Tough to not become frightened of the daily vomiting that just doesn't seem normal to me. Tough to not wonder why in the world does she hit her little head over and over and over again. Tough to not have the ability to know for sure if her insides are working the way they need to be. These thoughts and many others flood my mind and I battle to keep them from keeping us from living each and every day to the fullest.

So much is happening. We are planning a huge birthday celebration for Allison Brooke. She will be 10 in just 3 weeks and its a really, really big deal around here. I can't wait to share the details with you all. The Tarheels 2008 season began today. I know I don't have to tell you how big a deal that is around here. Dave and I will be celebrating our 15 year anniversary in early March and we have decided to plan a family trip instead of sneaking away by ourselves. The kids are so excited and have begun counting down the days until spring break. On top of all that we are considering a potential move this spring because we are just out of room. The thought of leaving our little yellow house behind is enough to make me cry most days, but with all of Ashley Kate's equipment we find ourselves tripping through most rooms daily. All of these things are good. All of these things are blessings. All of these things are exciting to me, and then the ugly fears of what if something is going on inside of her that I can't see start to overwhelm me.

I am afraid of her becoming sick again. I am afraid that we could find ourselves missing another one of Allie's birthdays. I am afraid that we will be absent for another Tarheel season. I am afraid that no matter how special our anniversary/family trip is going to be that the possibility of her taking another turn for the worse is very, very real. I am afraid that we could pack our things, walk away from this little house that we love so much, and then Ash and I be uprooted to Omaha once again and it would have been for nothing.

You don't have to tell me how insane this all is. I know its wrong. That's why I say I feel as though I am fighting a battle. A battle not to become too happy with our life for fear of being as naive as I was before her rejection, but still not wanting this imaginary cloud of fear to steal the joy of the blessings He has given. I guess what I am saying is that with all the planning I am doing these days I am just scared that it could all disappear before it even happens. None of her days are predictable. None of them are "normal". Every cough, every sneeze, every fever, every behavior, every everything has me scrambling to figure out why and where and what to do about it. Never mind me saying this is not normal. It is normal. Its our normal.

Our God is so good. He has given us so much to be thankful for. He continues to protect our sweet baby and she is growing up despite the many obstacles she is facing. We are happy and content and blessed beyond all measure. Why in the world is something trying to steal my joy, my gratitude, my peace? I am baffled. There is turmoil inside of my heart and I am trying to figure it out. So, I realize I have been absent from her journal the past few days. Each time I sit to share something the only thing that spills out of me is all of this. Tonight I decided to just get it over with and share so that I could possibly move on to better things tomorrow. I am hoping that by allowing myself to admit this insanity that I might gain the victory over it and wake up without the guilt of feeling too happy. Without the ugliness of the what ifs stealing my peace. Without the thoughts of, "have I finally lost my mind" entering into my days.

Take care my sweet friends and good night. Trish

21 Comments:

At 10:37 PM , Blogger Dee Dee said...

I am so sorry for the feelings of unrest. I am praying they are not merited, that she will seem healthier every day and you will be able to relax. I'm a mom too; I don't have a little Ashley, but I understand.

 
At 10:41 PM , Blogger Holly said...

I've had a battle of a week, too. I'll be praying for you....and your dear family!
Love,
holly

 
At 11:02 PM , Blogger Shari said...

Trish--Thank you for sharing and being real about how you feel right now. I think it would be quite normal in your situation and I don't think I would necessarily call it wrong. You have to be "vigilant" with Ashley Kate and I think that's a lot of what you are trying to say here. Vigilance is OK. Things can turn in an instant with that precious bundle and you are her Mommy who knows her best.

You aren't insane. Know I am praying that God give you peace, strength and comfort during this time.

Loving from afar, sweetie!

Shari

 
At 11:04 PM , Anonymous Anonymous said...

It looks like Satan is really doing a number on you. Just think about it. You are a witness for the Lord and you tell everyone about your trust in Him, you praise Him and give Him credit for the miracles in little Ashley's life.
This makes Satan very unhappy so he has instilled doubt and fear in your heart. He wants you to be afraid so that you will focus on all that doubt and fear and by doing so you have all these questions running around in your head and then Satan has you right where he wants you because he is keeping you from putting your main focus on the Lord. Don't give in to him. You have to keep your eyes upon the Lord.
Besides you are busy, very busy with all that you do for your family, all your plans and the thought of moving on top of that, well that is more than enough to fill anyones plate.
Some have been through times that are overwhelming and stressful, but, you have overcome soooo many obstacles that there is just no way the Lord has brought you this far to let Satan win.
I pray these feelings of fear and doubt are only temporary and that you can put all your energy on enjoying your family and praising God.
Much love and prayers~~~Janiece

 
At 11:46 PM , Blogger The Dean Family said...

Trish,
You know how soon things can turn around. To some extent you need to be ready for whatever comes. Your feelings are only a mom wanting life to stay as precious as it is now with your beautiful family. I will be praying for you. May the Lord put your feelings at rest so you may enjoy each and every happy moment. Still praying.
Angela in AK

 
At 12:04 AM , Blogger Joyful Days said...

Praying for peace of heart & mind. And all the other "things" that need prayer, the things that busy the heart & mind.

Just lots of continuing prayers.

 
At 2:13 AM , Anonymous Anonymous said...

Oh Bless your heart Trish!!! I'm so sorry you are going through all of this. I would say it's VERY normal though...considering all you have been through. I can really relate to having fears and worrying and to how overwhelming they can become, how very consuming they can be. That devil sure tries hard doesn't he? I will be praying for you Trish. I am always praying for ya'll. Always praying that Ashley continues to progress without anymore regressions! She is so very precious. Thank you so much for sharing, I'm really glad that you did and I hope that it helped to write it down and share with everyone. I pray that you will have peace in your heart. I know you already have what you need....that is Our Good Lord Above. He is without a doubt in your life and watching over your family!!!
May God continue to Bless you all and Trish may you find the peace that you deserve!
~Okla

 
At 7:33 AM , Blogger KimberlyDi said...

It's not a good time to sell a house right now. The market is down. Flip side is though you won't sell for much, if you look around carefully, you can buy cheap too. Please don't buy before you sell.

 
At 8:03 AM , Blogger Michelle said...

I am so sorry that you are so uneasy right now. Telling you not to worry and enjoy your time is probably crazy after all that you all have been through. I will instead pray for peace in you and your family and that all your hopes and dreams for each day, one at a time, will come true.

Michelle (alabama)

 
At 8:15 AM , Blogger Laurie in Ca. said...

Thank you so much Trish for sharing your feelings here. You are being a normal mom with a unique situation.
Boy, there is a lot going on for you and your family right now with lots of decisions coming up. And the fears are real. This isn't insane at all. The "what ifs" are exhausting and can leave us limp. I will be praying for you Trish, asking God to remind your heart that He sees all and knows all that is going on inside of Ashley, and He is holding on to her, and to you. This sounds like a spiritual war going on here, the Lord giving, and the devil trying to steal. I am praying for you to have His peace as He puts the devil in His place.
Lay this Post at the Lords feet as many times a day as you need, trading it for His peace and assurance that He is in control of every breath. Keep casting your cares here and to Him Trish, we will pray for you and your family.

Love, Laurie in Ca.

 
At 8:22 AM , Anonymous Anonymous said...

Still checking in daily. Still praying for this family I've come to hold so dear. Haven't posted in quite awhile...but wanted you to know I'm still here.

Thanks for sharing what's going on...let's us know how to pray more specifically for you.

Kristi in Texas

 
At 9:03 AM , Anonymous Anonymous said...

There is nothing "wrong" about the way you feel. It seems quite normal to me.The important thing is knowing that,no matter what,God is still in control. Everybody is frightened at some time or another.We just have to remember not to let that fear run our lives. Life is full of uncertainties{sp},but God's love,and your families love for each other and for Him are certain.

 
At 10:40 AM , Blogger Jenny said...

I'm glad that you decided to share this with us, Trish. Now we know how specifically we can be praying for you. May God grant your heart peace, and may you rest in him and in the knowledge that absolutely nothing happens with Ashley that God doesn't see. I pray that you'll be able to be home for Allie's birthday and the Tarheel's season. God bless you!

 
At 12:48 PM , Blogger Monique said...

I think you are human and your feelings are normal. Ashley is a special little girl and probably for the rest of her life you will always worry. I know it is hard but try to take it one day and moment at a time. God is with you and he will ease your pain with this. Sending many prayers your way.

 
At 12:52 PM , Anonymous Anonymous said...

Oh Trish - my heart hurts for you - I am sorry that you are battling these feelings. But I wanted to tell you that there is NOTHING wrong with you having this fear. You have every right to feel whatever you feel. Even Jesus felt fear!

You know me and my songs but in reading your post, this one came to mind. I put it on your CD but I will post the words.

Casting Crowns: Voice of Truth

Oh what I would do to have
The kind of faith it takes to climb out of this boat I'm in
Onto the crashing waves

To step out of my comfort zone
To the realm of the unknown where Jesus is
And He's holding out his hand

But the waves are calling out my name and they laugh at me
Reminding me of all the times I've tried before and failed
The waves they keep on telling me
Time and time again. 'Boy, you'll never win!'
"You'll never win"

But the voice of truth tells me a different story
And the voice of truth says "Do not be afraid!"
And the voice of truth says "This is for My glory"
Out of all the voices calling out to me
I will choose to listen and believe the voice of truth

Oh what I would do to have
The kind of strength it takes to stand before a giant
With just a Sling and a stone
Surrounded by the sound of a thousand warriors
Shaking in their armor
Wishing they'd have had the strength to stand

But the giant's calling out my name and he laughs at me
Reminding me of all the times I've tried before and failed
The giant keeps on telling me
Time and time again "boy, you'll never win!
"You'll never win"

But the stone was just the right size
To put the giant on the ground
And the waves they don't seem so high
From on top of them looking down
I will soar with the wings of eagles
When I stop and listen to the sound of Jesus
Singing over me

I will choose to listen and believe the voice of truth

Trish - you listen to Jesus. Do not listen to the enemy. Our Father is holding you. He knows all your stuggles and HE is calling out to you...listen to Him.

Remember, we are all here for you! And still praying...

Love in Christ-
Amy and Kyle

 
At 2:21 PM , Blogger The Adoption Of William said...

Praying for calm and rest for your weary mind. I know the fear and stress.....just remember you have a TRUE friend in the Lord. He will provide comfort and rest for you!

With Love,

William's Mom

 
At 3:41 PM , Anonymous Anonymous said...

The 'evil' one is always trying to invade our happiness. Take comfort in the Lord and all the blessings he has showered you with lately. It is hard to silence the 'evil' one alone. Ask God for help and He will gladly take your hand.
Blessings for a Peaceful Heart!

 
At 7:49 PM , Blogger Sunshine said...

Oh I have been in that battle before - it is UGLY! I am sorry - I will be praying for God to strengthen you, guide you, and protect each of you! You are SO precious and SO loved! We are praying for you and your entire family, especially sweet Ashley! Sunshine

 
At 8:47 PM , Anonymous Anonymous said...

Trish, what comes to mind is the verse, "The enemy comes to steal, to kill, and to destroy." He (the enemy) will do everything he can to rob us of the peace and the joy we can have when we are abiding in Christ, and completely trusting. I KNOW trusting is SOOO hard at times when you've gone through what we have (although I haven't gone through quite as much as you, but enough to know). By that I mean, there are SO MANY uncertainties, even with the best plans. I think He just wants us to trust one step at a time. I will be praying for you, that you can enjoy every minute that you are home. And when and IF the time ever comes to go back to Omaha, that you can be at peace, knowing that HIS way is the best way. He knows where you've been, He knows where you're going, and we need to trust that He will keep his promise to give us only what He knows we can handle.

Praying for Ashley's health, and complete peace and joy, for a settled mind. "taking every thought captive to the obedience of Christ"

 
At 9:08 PM , Anonymous Anonymous said...

Still praying for all of you. Sending lots of hugs your way.
Blessings,
Lori

 
At 10:40 PM , Anonymous Anonymous said...

I will agree with Dee...the enemy comes to still our joy....and that is what he is attempting to do with you. I read the post then scanned down and saw that adorable face....and was reminded just how awesome our God is. Stay strong...and I will say an extra prayer for you tonight. Just another sister in Christ!

 

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