Ashley's Story

She will leave fingerprints all over your heart

2/20/2008

Inspired...

..by this child whom I am allowed to call mine. She amazes me. Her strength and determination puts mine to shame. What a beautiful little person He created when He formed our sweet Ashely Kate.


She is sitting up (while on the ventilator) playing and behaving as though none of this has phased her. So what if she can't breathe on her own. Who cares if she has 2 chest tubes coming out of her side. Fluid on her lungs? She doesn't care today. She was bored and decided to do something about it. I wish you could see her playing.

I read something this morning. "Where there is hope there can be faith. Where there is faith miracles can occur." What a testament to our God! Because we have hope in Him we have our faith. Because I rest assured He is who He says and He does what He says my faith is strong enough to believe He is working another miracle in our Ashley.

I'm going to try and explain a little better the whole chylothorax issue. This is what I read.

A chylothorax is the build up of chyle, a milky white fluid in the space surrounding the lungs. This makes it difficult to breathe.

Chyle is a normal fluid produced in the bowel when we digest food. It is milky-colored when fatty food or drink is digested. The chyle fluid is carried around the body by lymphatic vessels. These are much like the network of blood vessels throughout your body. The lymphatic system carries fluid, fats, proteins and infection fighting cells.

The lungs are surrounded by several layers of a protective lining called the pluera. Fluids can collect between the pleura layers(the pleura space). A chylothorax happens when the lymphatic system starts leaking fluid into the pleural space. The fluid pushes on the lung, making it harder to breathe.

If surgery or a procedure on the chest has been performed a lymph vessel may have been injured by surgical instruments or by muscles being moved.

Treatment:
Doctors can drain a chylothorax by temporarily inserting a chest tube(which Ash already has and is thought to have caused it). Another way to remove the fluid is by inserting a needle into the space around the lungs. The fluid is pulled out through the needle into a syringe. Once the amount of chyle and fluid begins to taper off and dry up the chest tube will be removed. This may take a little time. Sometimes these treatments may not clear up the chylothorax at which time your docotrs will discuss other options.

So this morning we think the fluid has already begun to change color and consistency with the formula change. The amount is still fairly high, but we are thankful for the small changes we already see.

Ash doesn't even look like she belongs here anymore. Her color has returned. She is awake and alert. Obviously she is weak and shakey, but remove that breathing tube and those chest tubes and she looks like her happy little self. She even has a hair bow on today. Our hope is to remain strong in our faith today and to allow God to work miracles because of it. I'm holding on to that.


She remains on essentially no support from the vent. She is on the lowest settings possible, but there are no plans to make changes. They hope to try and remove the tube this weekend again. After seeing how it went last Sunday I am more nervous than ever about leaving for home on Friday. Again, we have to remain strong in our faith because of the hope we have that He will work more miracles in her life.

I hope you all have a blessed day. I'll share some pictures of her playing later on today. Take care. Trish

32 Comments:

At 11:04 AM , Blogger Monique said...

Wonderful news this morning. I am glad she is having a good day thus far. I will continue to pray for you all.

 
At 11:06 AM , Blogger Dee Dee said...

Aww, I want to see a picture......

 
At 11:07 AM , Anonymous Anonymous said...

Oh!!!!!!!!! That little pickle has so much spunk.WTG..Ashley!! It's so good to read she's playing and doing so good today with what is going on with her little lungs. Praying for lots more playing and more pickle *smiles*. Praying..God Bless..Karen

 
At 11:10 AM , Anonymous Anonymous said...

Trish,
I am so glad she is improving. I check your blog every day and at night before I go to bed. My daughters name is Ashley and I can't imagine what you have gone through. God bless you. Your Ashley is beautiful. You have a way with words and it makes me think that I know her and your family.

 
At 11:12 AM , Anonymous Anonymous said...

I am so very thankful that prayer is not a ritual but that our real and amazingly loving God actually listens intently to the cries of our hearts and delights and granting to us our desires! I praise God this morning for the good report and I appreciate you updating so often. I am SO HAPPY to hear Ashley is playing and looking strong DESPITE the tubes. Also, I'm praising God for the low vent settings. My prayer is that she would improve so much that she could try even earlier to breathe so that you can rest in your mind while fully enjoying your trip home! I know God can do it and I'm hoping He will. Thank you for the further explanation. I don't ever tell the kids the details, but for myself it helps to know exactly what I want to pray for. Praying rest and stability and progress for your day. --Nikki

 
At 11:19 AM , Anonymous Anonymous said...

can't wait to see the pictures, so happy you can feel God's direction and blessing as you go and that you are able to rise above the setbacks and give God the glory. That is why He continues to work..all honor and glory to Him. He loves you all soo much, and we continue to pray in central IL

 
At 11:30 AM , Blogger CrownLaidDown said...

Praying that everyone, who cares for your darlin' girl, is blessed for their faithfulness. I'm believing that miracle...and won't let anything I see keep me from believing that Ashley Kate has a long and prosperous life ahead--with a really cool testimony :)
Love,
holly

 
At 11:34 AM , Blogger Grace, Tre, & Faith said...

Can't wait for pictures! :)

 
At 11:36 AM , Blogger Catherine said...

Great news! So glad to hear that Ashley is feeling better, able to play and has a bow in her hair today. Continued prayers for her recovery.

 
At 11:40 AM , Anonymous Anonymous said...

I was so relieved to read this post. YAY Ashley you are such a sweet little pickle. I think it's wonderful that you still plan to go home for Allison's birthday....it really shows your trust in our Heavenly Father. I'm praying continuouly for miracles in little Ashley's recovery.
Blessings,
Robin in Florida

 
At 11:42 AM , Anonymous Anonymous said...

I will continue to check for the pictures....what a blessing it is to know she is happy and playing. Still praying for her and for the rest of your family...Jocelyn

 
At 11:42 AM , Anonymous Anonymous said...

An amazing little girl! An AWESOME GOD!!!! Continued prayers for endurance & healing.
May God Bless you all.
~Okla

 
At 11:44 AM , Blogger Elizabeth said...

Amen! I can't wait to see those pictures!

 
At 11:49 AM , Blogger G said...

Oh wow! God is sooo good! What fantastic news today...

 
At 11:53 AM , Blogger Keri Ann said...

Looking forward to the pictures!
(But no pressure if you end up not having the energy to post them! :-)

 
At 11:58 AM , Blogger KimberlyDi said...

What a fighter. Tears in my eyes as she inspires me too.

 
At 11:58 AM , Blogger Tink said...

We all want to see Pictures...
We all, I am sure, feel Ashley is a special part of our lives too..
I am so very glad she is up and playing again, I am sure that her moving around will help drain that fluid to.
Brightest Blessings to ALL...

 
At 12:12 PM , Blogger Gretchen said...

Thank You Jesus, that Your mercies are new each morning, and that You don't give us more than we can bear. Thank You for Your miraculous healing touch and the spirit of healing within Ashley.

In Jesus' name. Amen.

 
At 12:20 PM , Blogger Lee said...

SOOO glad to hear that little pickle's personality has returned. Praying for speedy healing of the chylothorax!! Get off that vent soon Ash. Just tell 'em you don't need the silly thing!!
--Lee

 
At 12:36 PM , Anonymous Anonymous said...

Great news.....that makes me so happy! Thanks again for sharing your story and blessing so many lives! Mistie

 
At 1:01 PM , Blogger Laurie said...

Keep watching for those little miracles along the way. I am so glad that she is playing this morning and not seem to be bothered by the tubes.
Very thankful that she is improving and praying for the other things to be healed. Amazing about her sleep too. That has to have felt so good to her little body.

Laurie in Ca.

 
At 1:03 PM , Anonymous dee buchanan said...

PTL that THE PICKLE is making such tremendous come-back! Some friends of ours went through this with their little boy when he was first born (although his occurred naturally) and they were able to avoid surgery by just removing things from his diet. We are praying for the same success with Ashley. I am so glad for both your sakes that she is showing that determinition that she is known for. May your days get brighter and brigher.

 
At 1:50 PM , Blogger Sun said...

WOW - seriously she is playing? That is HUGE! Awesome - praise Him! We are praying - Sunshine

 
At 1:53 PM , Blogger Dkswife said...

That little girl is amazing! It is good to visit here and see the improvement!

Continued prayers!

((Hugs to you all))

Kay

 
At 2:09 PM , Anonymous Anonymous said...

OK where are the pics? You've had all day....whats the holdup?

 
At 2:20 PM , Blogger Katie said...

I'm so happy to hear how well she's doing! Please put up pictures as soon as you can. I can't wait to see!

 
At 2:28 PM , Blogger julie said...

What wonderful news. Such an awesome answer to prayer.

julie

 
At 2:38 PM , Blogger Michelle said...

Go Ashley Kate. You rock. :-)

 
At 3:16 PM , Anonymous Anonymous said...

Wow, what wonderful news this afternoon. I'm so glad to hear of the positive changes. Ashley sounds like such a sweet little girl, I'm so happy for her being able to play today. God is so good!

Jennifer in OKC

 
At 3:20 PM , Anonymous Anonymous said...

The JOY of the Lord is your strength, so don't let Satan rob you of your joy in these circumstances, because then, poof! there goes your strength. Remember this walk of ours is by faith, not by sight. If we could see the future, or the whys, we would be seeing, not trusting. : )
You are doing great. I'm proud of you dear.

 
At 6:39 PM , Blogger Deb said...

Oh, my... *wiping tears*

God is SO good.

Trish, I am amazed, and humbled, by your whole family.

Way to go Ashley!! What an amazing little girl.

Many hugs-

Deb

 
At 7:19 PM , Blogger Wendy said...

Not failure. Never failure. Just a pause in the progress. A bump in the road to success. There is no failure with the amazing Ashley!!

 

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