By all standards and from all view points (the vent settings, lab work, and appearance) Ash should be breathing without the help of the ventilator. The best anyone can figure is that her body is just weak. Her muscle's have gotten pretty lazy over the past 12 days, and they don't have what it takes to rebound at this time.
But... we have a plan. Strength Training. Its not pretty. It never is. If you have ever been involved in any type of athletics you know those dreaded words. Its hard work. You get tired. You become winded, but oh what a difference it makes. This is our plan for Ashley Kate. She will go on a strength training regime that will hopefully bring her around to breathing again on her own by the end of the week. We hope! 4 times a day for 2 hours she will go on CPAP. This is the sprinting mode that she was on yesterday. Even though she did awesome and even though her blood gases showed she was doing well her little lungs and chest muscles were just to weak to keep it going. So she will practice and train for the big day.
The only kink in this lengthy plan is that the longer she is down on the vent the more at risk she is for picking up a secondary infection. The longer she requires the ventilator the longer she requires her central line for TPN and she runs high risk for acquiring a line infection.
She is awake and alert. Not too happy about being stuck flat on her back and having a tube shoved down her throat, but alert. Her eyes don't sparkle today. They are actually very sad, and that is proving to be hard for me to see. We are reading books and she actually lifted her hand to turn the page(only once, but at least she tried), singing songs, and watching Blue together. She has been awake since 2:30 this morning and I know she has to be exhausted, but she is refusing to close her eyes. She always gets insomnia when she is hospitalized and now that her sedation is almost completely turned off she is struggling to rest. Her chest x-ray looks better today and for that I am very thankful. I also find myself being thankful that we have been given another day to spend loving on our baby.
Thanks so much for praying us through another difficult day. Your presence here has never been taken for granted. We know better than anyone how much support you give to us and how little negativity is out there, but it doesn't keep those negative words from stinging at our hearts. Especially after a day like yesterday. Take care my friends. Trish