They are preparing Ash for the movement of her central line. In order to do this they need to re-paralyze her. She had begun to peek at us and shake her head "no,no" letting us know she was not happy with her current circumstances. Once the central line is in we will remove the old line, remove the arterial line, and remover her foley catheter. After all of that she will finally be left alone to rest and I am sure she is going to need it.
We made great progress on her ventilator setting over night and we were encouraged by her blood gases. We have high hopes of getting her off of the ventilator some time next week. Currently Ash is battling a huge enemy by the name of fluid. Dave and I had a long visit with the intensivist and outlined a "hopeful" plan. If her plural effusions grow larger and if the fluid inside of the lungs refuse to cooperate then she will have to remain on the vent. The main concern with her lingering on the ventilator is the opportunity for infection to set in.
Currently Ash has a temperature of 103 and we have sent cultures from every where. The temp is not a good sign so figuring out where it is coming from is important.
Like I said, we are encouraged by her progress. Your prayers are huge blessing to us. Thank you for being here for Ashley Kate today. We will update later on after all the procedures are complete. Take care. Trish
posted by Ashley @ 4:08 PM
9 Comments:
So glad Dave is there by your side. Forever praying.
Still praying as always!!
~Okla
I'm having trouble finding any words to type. Just want you to know that we are in prayer constantly. Thinking about each of you. Asking God's wisdom and favor. And pulling for Ashley most of all. --Nikki
I too am glad Dave is with you. Positive healing energy's and Prayers are still pouring out for Ashly.
Brightest Blessings to ALL..
It sounds like progress! 2 steps forward, 2 steps back is still moving!
Praying for the source of infection to be revealed and further progress for Dave to witness while he is there!
Praying for her that her temp will go down and all other procedures go well. It must be reassuring for you to have Dave there, helping with decisions. Praying for you two.
Laurie in Ca.
Thinking and praying for you....glad Dave is there with you.....
Praying.
In my own bed at night, before I go to sleep I remember your family, and I ask the Lord to have mercy.
I believe more than I believe that I am sitting here typing this, that He is good, and his love is everlasting. I know God uses suffering to transform us. He used/uses it in my own life.
I thought last night, that God knew Ashley was going to be this ill, and He might have chosen to spare her so much physical suffering, and take her home already to laugh and play in heaven. But he didn't. He allowed her to live, and for you to adopt her, and for her to go through these many trials, and your family right along with her.
After reading this whole blog, which spans years, one might feel as though this is all more than any one child or family ought to endure.
Some might say it's cruel to put the baby through all this misery. Some say in the natural world, no animal would be put through such agony to keep it alive. Yet our own science, and man's knowledge has increased so far that now very premature, weak, sick children can be kept alive; but at what quality of life and expense for all involved?
I have read about your highs, your lows, your joy, and sorrow, fear, exultation, hope for tomorrow, and terror of tomorrow. It is all written down for us to feel with you, and I'm certain this isn't the half.
I want to say Lord, what are you doing? How can this family carry on like this? How can they suffer any more, how can this child live in the hospital forever? It's horrible, stop it!
But I know him, and he is loving and good. I know him so well, and he can reach down and do so many amazing things, beyond our ability to grasp, far reaching.... life changing things with a little sick baby, and a family with hearts that know God is the Alpha and Omega.
God has chosen your family to answer the call to suffer for him, and he chose Ashley as well. It seems scary to us. We wonder if we could manage if we were called to this? We wonder if we might not go home and give up, and collapse in a heap, and be forced to take some drug to cope with it all.
You give us hope. HOPE. You show us that a family can love each other, and support each other, and suffer, and sacrifice, and pray and still keep on going and trusting God for tomorrow. It's amazing. I want to stand up and applaud, and give you a medal.
I don't think I have ever loved as well as you all do, and I know it's Jesus in you. That's the only explanation.
Thank you for ________ I hardly know what to call it. I know you would say, "I love her, and that's all we go on, love for a little girl." But somehow it's more.. It must be Texas love or something.
-still praying
Karen
VA
Post a Comment
Subscribe to Post Comments [Atom]
<< Home