Ashley's Story

She will leave fingerprints all over your heart

2/14/2008

Who signed us up for the Circus?

Tightrope walking. That's what our surgeon told me we were doing at this point in Ashley's recovery. If somebody knows something that I don't about signing us up to perform in the center ring please,please tell me.

Ashley's chest x-ray from this morning did not bring the news we were hoping for. Yesterdays' procedure did not open the upper right lobe. On top of that she is now showing plural effusions on the left and right lungs. For now her surgeon is not supportive of placing a second chest tube. He wants to continue the diaretics in hopes of pulling more fluid off of her. Here comes the assent to the tightrope. The side effects of the diaretic is damage to her kidneys and renal system. What do you choose? Removal of fluid so that she might breathe more effectively or risk possible dialysis as her kidneys slow down? This morning her BUN(blood urea nitrogen) level was 72! It's supposed to be around 20. Dr. B shook his head and shrugged his shoulders not really knowing what was best. If her lungs don't clear fluid in the next day or so then we will probably receive another chest tube. I can't tell you how uncomfortable that is for Ash.

The removal and replacement of her line and foley did not happen today. The surgeons have been in the OR all day and have not been able to find time. Perhaps tomorrow.

Since Ash spiked a fever yesterday and again last night the team is now suspecting some type of viral pnuemonia and in that case it becomes a waiting game. There is no treatment for it. We just wait on her body to recover and hope she doesn't come down with a secondary infection. The longer she is on the ventilator the harder it becomes to avoid secondary infections.

The good news today is that her blood gases are really good and we have been able to make a few changes to her vent settings. The machine continues to do all of the work, but they have turned off her paralytic and are trying to allow her to wake up in hopes that any movement she provides will assist in removal of the fluid from the lungs. She hasn't opened her eyes, but she does cry huge tears when she hears my voice. I sang itsy bitsy spider to her and I saw the slightest of movements from her tiny fingers. She was trying to tap the bed as I sang. My heart is breaking as I remember all too well how painful it is for her to be awake and intubated. My prayer is that she makes huge progress and can be extubated sooner rather than later.

So I just wanted to let you know that we may consider selling tickets for the circus if we manage to stay on that wire without falling off. Who knows? we may get really good before this is over.

32 Comments:

At 4:21 PM , Blogger Holly said...

He's good at it Trish, just hold on to Him.

Praying for you...all of you and especially, Ashley. He is able to heal. I'm asking Him to.
Love,
holly

 
At 4:23 PM , Anonymous Anonymous said...

I never really cared for the circus myself. I especially would never be one to walk a tightrope! Praying that things improve greatly so you can have both feet firmly planted on the ground with lots of stability and no crowds of attention - just peace, quiet, rest and healing. Love, Lou Ann

 
At 4:34 PM , Blogger Amy T said...

Praying hard! I bet you had big tears too! That image of her trying to tap her fingers just broke my heart! Bless her sweet little heart! Praying that as she wakes up she begins to improve and realizes her Mommy is with her. Sounds like she is already aware of that.

 
At 4:43 PM , Anonymous Anonymous said...

Praying...asking Him for healing and relief. Holding you close to my heart. Kate and I pray for baby Ashley...every night as we rock. Kate's favorite song right now is also "Itsy Bitsy Spider". She and I will sing round after round for Ashley.

Love, Jule White

 
At 4:43 PM , Blogger Laurie in Ca. said...

Praying really hard for you here Trish. I am asking Him to heal this mystery that is going on in Ashleys little body. He knows exactly what it is and I pray He shows you and the doctors soon. May His peace and wisdom be all over every decision in her care, leading to healing. She knows you are right there, that is great medicine to her little spirit.
Hold on to Jesus Trish, he loves you.

Laurie in Ca.

 
At 4:44 PM , Anonymous Anonymous said...

Trish and Dave, I will say a special prayer for sweet baby Ashley tonight. She is always in my thoughts and I am so anxious for her to open those little eyes and play peek-a-boo again.

May God bless your family tonight and always,
Carla in Houston

 
At 5:16 PM , Anonymous Anonymous said...

Tapping the bed to singing, what a picture I get. Thanks for sharing. I'll keep asking for guidance for the doctors and nurses, strength for you and your family, and healing for Ashley. Love, Stephanie

 
At 5:22 PM , Blogger Mandy said...

Still praying for your beautiful baby girl!!!

 
At 5:26 PM , Blogger Paulette said...

It really does seem like a circus especially the ups and downs. I am so sorry Ashley is found in this spot once again. It too breaks my heart that she must be so confused and yet she can hear you and feel your presence. I am praying hard for her and you as well Trish, that the Lord will heal her little body soon.
May you feel the fathers peace tonight. I will keep checking in on ya'll.

 
At 5:41 PM , Anonymous Anonymous said...

It sounds like you have a very strong fighter in your baby girl. I can't begin to imagine how uncomfortable it is for with all those tubes, but know that she is comforted by you and your love. Keep singing to her, and and know that she has many people for her praying, and thinking about her constantly. Sending strength and love to you and your family.

 
At 5:43 PM , Anonymous Anonymous said...

My heart is breaking for you..for Ashley..tears? Please know that we are praying continually for her and trusting God to be the ringmaster of your circus and heal her at intermission...wouldn't that just be awesome! He can do it! May you feel His strength. We are still praying in central IL

 
At 6:05 PM , Blogger Tink said...

I am sending your beautiful baby all the positive healing energy's I can along with constant prayers. She is strong, you are all so Blessed to have each other. Soon you will be taking her home and all this will be but a memory...
Brightest Blessings to All...

 
At 6:10 PM , Anonymous Anonymous said...

Praying for you again today. I hope to read good news soon. Little Ashley appears to know her mommy is right beside her. That part made me smile.

 
At 6:21 PM , Anonymous Anonymous said...

How difficult it must be for you now! You yearn to have your baby back and you're getting just a tiny piece - tears and that tiny little bit of true Ashley showing in the little fingers tapping! I'm praying for much better news tomorrow and for the little fighter to persevere throught this battle! Praying for you as you patiently wait and love on your baby! Walking on a tightrope takes so much skill and precision that I am sure I could never do it! However, it seems you not only can do it but teach the rest of us so much about the process. Praying that you can come down off the tightrope tomorrow and never have to climb on it again:)

Courtney

 
At 6:29 PM , Anonymous Anonymous said...

Keeping you all in prayer as the littlest pickle starts her baby steps back to you. Knowing our God is leading her each step of the way, and is there to pick her up when she stumbles. God Bless..Karen

 
At 6:37 PM , Blogger Dk's Wife said...

I pray more and more everytime I enter this site to see any updates. My heart is just saddened, and I am giving you virtual hugs right now ((hugs)), and very gentle hugs for Ashley (((hugs)))

God is the tightrope, and I know you will not loose balance....so corny of me, I know.

Much love, and more prayers!

Kay

 
At 6:52 PM , Blogger Carey said...

Im praying for your sweet pickle.

 
At 6:58 PM , Anonymous Anonymous said...

Words escape me tonight reading the last of your post. You are a strong Mama for that baby...and exacatly why God chose you to be her mother.

Praying thru the night
Kristi in Texas

 
At 7:13 PM , Anonymous Anonymous said...

My heart actually hurts for you all tonight. Is Ashley on pain medicine? I feel so badly she has to go through pain. I cannot imagine how hard this is..please know you all are in our prayers.

Ashley is my hero. She has changed my heart .

krista

 
At 7:30 PM , Blogger The Dean Family said...

Trish,
You are a wonderful mama. I am glad that Ashley's true self showed a little, even if it was the slightest. Hopefully that helps you to some degree. Happy Valentines Day! Such a sweet psot that was for Dave. Continuing to pray!
Angela

 
At 7:34 PM , Blogger Elizabeth S said...

Bless your hearts. I can't imagine how exhausted you must be. I am still praying for Ashley and for you and Dave and the kids. I am praying for her doctors to make the best decisions possible. I hope you have a somewhat restful night. Almost the weekend and Dave will be there!

 
At 7:34 PM , Anonymous Anonymous said...

I just found your blog and I am praying fervently for your family. Thinking of you tonight.

I loved your "spiritual coma" post - I think all Christians have been there. It's why we're a family of God. Those who are strong can carry the weak. Let YOUR body take a break tonight and rest in the arms of the one who created you, and those who love you in Christ.

In His grip,

Bree

 
At 8:28 PM , Anonymous Anonymous said...

I am praying! I will always be praying for that sweet little baby! I'm sure you must feel torn right now to say the least. I am praying for your entire family.
God Bless you all!
~Okla

 
At 8:52 PM , Anonymous Anonymous said...

I'm amazed that you knew this was going to happen. I re read the blog entry from Feb 3, and you felt it coming on. Bless your heart.

Lord, God in heaven, give this dear sister some rest, some peace.

I know your plans are for her good, and your glory.

Waiting on you Lord, for you are love.
Amen

 
At 9:24 PM , Blogger Sunshine said...

I have logged onto here several times and wanted to leave you a comment- but I don't know what to say. I will be in prayer for you all! Sunshine

 
At 9:25 PM , Blogger TheRagan3 said...

I read your post and my heart just breaks for you and for sweet little Ashley. I don't know how hard it is - I can imagine, simply because I am a mom too. I know too, though, that the Great Physician knows your hearts and loves Ashley more than any of us put together. HE has her in HIS hands and will take care of her.
Praying for you all tonight here in MD.
Erinn

 
At 10:26 PM , Anonymous Anonymous said...

Praying for you as you cling to that ROCK as you walk that rope. It's hard watching your baby wake up to pain. My heart hurts with you, but i know that you rejoice to see a little bit of the Ashley that you love so much. Praying things continue to heal and progress.

 
At 10:30 PM , Blogger Fiffer said...

Aw Trish, I am so sorry for all you're going through. Just remember that YOU don't have to walk that tightrope in the same way that the acrobats in the circus do. Because God is there for you, holding you up every step of the way. And He is always there to catch us when we fall. "The eternal God is your refuge, and underneath are the everlasting arms." (Deut. 33:27)

Don't be hard on yourself. Cry as much as you need to, and don't feel like you have to explain yourself for how you're feeling. The huge majority of us have never walked in your shoes and wonder how we could ever do it. You are such a mentor to me, both as a Christian and as a mother! You have my complete respect and admiration.

Sleep well, my friend. God be with you...and also with Dave, Blake, Allie, and especially precious Ashley Kate.

Love, Martha

 
At 10:39 PM , Anonymous Anonymous said...

Trish, I know Ashley has been out of it for a week, but I was just on another baby's website who has been vomiting for months as well. His doc found that his glucose was too low. Is this still an issue with Ashley,(obviously not while in a coma) and has it been checked? You are loved.

 
At 10:51 PM , Anonymous Anonymous said...

Trish, you already are really good at balancing on that tightrope. Know that you all remain in my prayers. Love in Christ...

 
At 11:15 PM , Blogger Gretchen said...

Trish, I have no words of wisdom. Just hope and faith in Him. I pray He heals Ashley Kate and that His new miracles and mercies will never cease. (((Hugs)))xxxooogretchen

 
At 1:54 AM , Blogger Annie said...

It must have broke your heart to see those tears and not be able to hold her. I am praying for Ashley multiple times a day and my 4-year-old and 7-year-old are praying for her also. I know from personal experience that God does work miracles and that's what we are praying for in Ashley's life. And by the way, Ashley is only a month older than my Joel.

lovejoelr.blogspot.com

 

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