Ashley's Story

She will leave fingerprints all over your heart

11/09/2006

Early morning events

It has been rough going for Ash through the night as they turned her from front to back. The goal is to help move Junk from her lungs, but it has not been easy during the moves. When they turned Ash around 11:30 last night her sats dropped down into the 30s. How scary it is when you look at this little one who is paralyzed and completely unable to communicate with you that she is in distress. She is being turned every six hours. We rely totally on the monitors and the numbers that I have come so used to watching. Ashley is having blood gases drawn every 2 hours and they have not been good through the night. Her bi-carb is low so they gave her some to try and get it to come back up. It did temporarily but now it is back down. All of her levels in the gas are messed up. Basically she is struggling with acidosis, which makes the ph of her blood all wrong and this causes a very difficult environment for her cells to survive. It is so important that we are able to balance the elements that make up the blood gas. We are not sure what will be done until the doctors come in this morning. The reason explained to me for the loss of the bi-carb is due to the hi output from Ashley's new intestine into her ostomy bag. Ash is allowed around 44occs. and she put out over 14ooccs. The reality is that Ashley is very ill at this point and we need her to get better. I am anxiously waiting to hear the plan for the day. Her lungs are very, very sick. The swelling in her face from laying on her tummy is one of the scariest things I have ever seen. I thought at one point her little eyes would surely burst. They assure me that she is fine, but it does not look fine. All of the extra fluid on board her tiny body is pooling in the eye and side of the face that is down on the bed. How badly I wish she could look like my Ashley again before Blake arrives tonight.

Your prayers would be so appreciated this morning and through out today. I am asking God to show me what I need to do. Is there anything in my life that must be resolved in order for Ash to turn around? I am searching my heart and trying to turn it inside out until it becomes empty of anything that should not be found in it. I just want so desperately for her to make progress today and to start getting better. Still I know that He is in control and that He knows the path she will travel today. Thank you for loving our Ashley. It means the world to her mommy and daddy to have so many who love and pray for our tiny "gherkin". Take care.

6 Comments:

At 8:25 AM , Blogger Troy and Melanie said...

Oh Father, we come to You this morning with our prayers for Ashley as so many others do. We just pray that You would be with Trish, David, and BLake, and help them to be strong. I know this is not going to start off as the visit they hoped to have with Ashley, but we know You can turn that all around if it is Your will Lord. We just pray that You would reassure each one of them and allow them to see little pieces of the old Ashley again while they are there. Father, we don't understand all the mountains and and valleys, but we know that they are all a part of Your master plan for this family and others. Bless the time this family has together, and be with David and Blake as they travel to Omaha today....help them to have a safe flight. Also be with Allison, especially until David and Blake get back home. Help them feel Your love, and continue pouring out Your blessings on them. We praise You for another day with Ashley, and pray that You would allow many more days, weeks, and even years. Thanks You Father for listening to each and everyone of our prayers, we love You! In Your Precious Name, I pray, Amen.

 
At 8:27 AM , Anonymous Anonymous said...

Trish...I am so thankful Dave will be with you today & your precious son. I am going to copy & past this post into my email & send it to my address group & ask that they in turn do the same....& I will update the church prayer room. I am off today with Josh..who is sick & has high fever...I will be praying for your families safe travel....for you...for Ashley's resolution & normalization of her labs...blood gases....Sats....edema...& condition of her lungs. I really can't imagine how it is to see your child in such a delicate situation as this. Know that there are mighty prayer warriors going before GOD on your behalf today...especially. There is Hope in God...(I know that you know this...for you have taught me more than I could ever offer you in words of encouragement or deeds...purely by your openess & your example...really...& I am grateful to you & your family for a lesson I will apply from here out..thank you). Much...much..Love to you...in Christ.

 
At 8:29 AM , Blogger Sarah said...

Trish, sometimes I wonder if God waits until things look so hopeless that when He does His miracle, it's so apparent that even the unbeliving believe! I'm praying that for your sweet Ashley.

Your love for the Lord is evident in your posts; don't let Satan tell you that you're doing anything that's standing in the way of her healing! The faith and trust you've shown through this ordeal is an amazing testimony that brings Him so much glory! You wear the Lord Jesus beautifully:)

 
At 9:19 AM , Anonymous Anonymous said...

"For there is no distinction between Jew and Greek; the same Lord is Lord of all and is generous to all who call on Him." Romans 10:12 NRSV If we are calling, He is listening.

Heavenly Father, we are calling . . .all of us who know Ashley's story and who know that You are the King of Kings and Lord of Lords. This day, Sweet Father, when David and Blake arrive, may You show your magnificance by performing an earth shattering miracle for little Ashley that the whole world will see . . . that this family will recognize could only be done by You. You are the Great Physician . . . and Father, we ask, if it is thy will, that You show the World today through Ashley and the rest of the Adams family, that You are still in the business of miracles. Father, please know that we pray for your perfect will to be done, whatever that might be, but we are believing that You will show Your presence to this family today. We love you and are thanking you in advance and with the deepest respect and admiration for the answers to our prayers today. In Christ's Holy name we pray. Kevin and Lettie Luman

 
At 12:08 PM , Blogger Katy said...

The song that comes to mind is, "it is well" The man that wrote the song wrote it after he lost his wife and three daughters at sea. Whatever life throws our way, we can kneel at the foot of the cross and proclaim...It is well with my soul! Personally, Selah's version is the best along with all their other songs that are so profound.

Praying for you this afternoon.

Katy

 
At 12:10 PM , Anonymous Anonymous said...

I completely agree with "sara's in the midst of it"....Satan loves to tell us that we are the cause of everything!! well...I know that we do nothing to deserve the good God gives us....and He is NOT one that sits around seeing how much he can punish us to teach us His lesson and make sure we get it!! He is a loving God... merciful... and JUST!!! When Ashley is doing good....it's of no reward for us...when she is doing bad...it's of no punishment for us!! It is her life calling at this time....as difficult a task it is for her ....and for YOU!! Maybe her life is to bring us to unite in prayer...as we all have...for a common purpose...maybe it is to encourage you to see how great of a writer you are...and one day publish your book...that Ashley can sign her name in!! All I know is ....that YOU dear Trish...are indeed as powerless as you feel in your situation there. My heart is burdened in prayer for you to be strengthened...and ...yes...even in your powerless-ness (if that is a word)....that you will know the true extent of HIS power...and HIS total sufficiency for you right now!! I am so sorry you are having this daily struggle...you ARE getting stronger and stronger through this....i can see it!! May you be renewed....not just by Dave and Blake's presence with you...but by the overwhelming power of God in the depths of your soul...and in Ashley's today...like you have never experienced before!!

 

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