Ashley's Story

She will leave fingerprints all over your heart

12/27/2006

Our tiny Gift

She is one of the best gifts we have ever received. She is one of the most beautiful gifts we have ever received. She is the tiniest gift we have ever received, but if you could see what is inside of this little one you would be amazed at just how big she really is.

Today Dave and I met with a team of doctors, nurses, social workers, and transplant coordinators. Our goal was to try and figure out just what they "see" when they look at Ashley and the course of her transplant and recovery. Let me tell you that walking out of that meeting my heart was lighter. Our recovery has not been an easy course and it has not been a short course, but it has been a BLESSED course. We were able to all make sure we were on the same page when we look to Ashley's future. Knowing full well that God will be the one to decide what her future holds, we tried to form a plan. In the end one of the pieces of this recovery puzzle that I had really failed to add in was Ashley's size. When I look at my Ashley I sometimes forget that she is just so tiny. She is not and has not ever been a normal sized child. She was born at 28 weeks and weighed less than 3lbs. She remained at 12lbs from January of this year until August! At transplant in Sept. we had managed to add a pound and a half to make her a whopping 13 and half pounds. There is no mistaking it, my Ashley is tiny. After our meeting I realized that some of what Ash is struggling with is a result of her tiny little self. Everyone on her "team" feels that Ashley will make it. We are battling a round of sepsis. This is our 4th episode. Our list of goals include: Getting her off the vent (and staying off!), Getting her to full feeds (55ccs per hour), getting her off of TPN (for longer than 3 hours), and getting her central line pulled out! If we could get to the point where her line can be pulled then she has a great chance of avoiding the episodes of sepsis. Once she remains on full feeds and successfully avoids infections for a period of about 1-2 months then guess where we are going? HOME!!! This is my new prayer list. It is specific. It is what we need to happen so that we can bring our tiny gift back home. I do not feel as though this is impossible. I know that with God all things are possible. I know that if it falls within His will that she has what it takes to make it. She may be tiny, but on the inside her spirit is so BIG!!!

Please join me in praying for our "new" prayer list. If you could see my Ashley today and if you could have seen where He brought her from yesterday you would be encouraged. You would be amazed. You would never doubt the hugeness of our God.

Thank you guys for loving Him so much that you opened up your hearts to accept our tiny gift. She is tiny, but she is tough. I am grateful for your encouraging words, and for your prayers. I hope to share her with you all someday. I hope to give you the opportunity to see this tiny little girl who you helped to pray through. You are loved and you are appreciated! Trish

7 Comments:

At 7:08 PM , Anonymous Janiece Baldwin said...

"Call to Me, and I will answer you, and show you great and mighty things, which you do not know." Jeremiah 33:3 NKJV

It seems to me that we have ALL been calling to Him and He,through the medical team, has shown you the plan for Ashley's recovery. Yea! Thank you for the new prayer list. We can certainly be specific in our prayers. God is good, all the time.

"Now to Him who is able to do exceedingly abundantly above all that we ask or think, according to the power that works in us." Ephesians 3:20, NKJV

And we know that sometimes the greatest gift comes in small packages, e.g. Ashley Kate.
~~Love to all of you~~~

 
At 7:40 PM , Anonymous Anonymous said...

David, Trish and kiddos! I do know your family and know you are genuine and love your family and your GOD more than anything! You have always inspired me and continue to do so as you face the future with your little Ashley. Press on! We are all praying and lifting you up to the Father! I only wish I could be the mother you are, Trish!

 
At 7:42 PM , Blogger KT said...

His mercy is new every morning. That is the verse that rings through my mind when I think of Ashley's story. Praising God for guiding the medical team. May this be an upward spiral and healing in her tiny body will begin. Rest peacefully tonight.
Katy

 
At 8:51 PM , Blogger Sarah's In the Midst of It said...

What a blessing today has been! I'm so glad to hear that her "bug" has been identified, and the team is so positive about her recovery!! I'll keep praying for her, and now I have specific requests! My little one is 13 pounds, too, and way tinier than she ought to be (She was 4 1/2 pounds full-term), so I can get a picture of Ashley's size. Tiny but tough:)

 
At 8:59 PM , Anonymous Anonymous said...

God is good, all the time. All the time, God is good!!

 
At 10:47 PM , Anonymous Anonymous said...

May God continue to work in your lives! Thank you once again for sharing your testimony with us! God is using it for His Glory!

 
At 2:48 AM , Blogger Sarah said...

I came across your story from a link on Baby Chloe's page. My friend was a nurse for Chloe in Kansas, and I have never met the Zingers, but our family prayed for them often. As I have been reading your story off and on for the past few months, I am so thankful that you have been in the lives of the other mommies and daddies in the hospitals where you have lived for what I'm sure seems like a lifetime. Thank you for your honest testimony, your frankness, and your faith, that as has been mentioned countless times on here, is an inspiration to so many. Your Ashley, has done so many big things in her short life, and as a mommy to two little girls, I know what a big excitement/burden (in a good way) that is. I also have two babies that are resting in His Perfect Love, and I know that they served His purpose too. What a mighty God we serve, who knows each of us so intimately, yet the bigger plan so purposefully, that we cannot even comprehend it. As I sit here with a lump in my throat, I praise that God, my Father, my Friend, my Comforter, my Defender, for gifts like Ashley, Chloe, and my two precious girls, Erin and Avery. How beautiful they are, so intricatley designed to reflect Him, so perfectly designed to glorify Him! I will go in to kiss my girls in a moment, and know you do the same for yours. May she rest peacefully tonight, and may her tiny body gain strength in the coming hours and days. Thank you for sharing so openly and vulnerably your experience. And may the peace of God, which passes all understanding, keep your hearts and minds in Christ Jesus, AMEN!

 

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