Delay of Game

It is now 2:30 and we have not yet started the chemo. It would appear that the rule around here is hurry up and wait. So we are here and now we wait. We had an 11:00 appt. and we sat in the waiting room and waited. Then we were moved to an evaluation room and we sat and waited. Once we finally got into the treatment center where she will get the chemo we were told that she was a little dry and needed a 1 hour IV infusion prior to beginning chemo. It took them another 30 min before they came in and hooked up the IV. After about 15 min of it running we noticed something leaking out of the IV pump. Apparently when they hooked up the IV they accidentally poked a hole in the IV tubing and it was now leaking down into the pump. Well I don't think you are supposed to put liquids inside something that is plugged into the wall and plugged into our baby. This could cause a little trouble. So we had to stop that infusion and on a new IV bag and pump to come up. Guess what? another 30 min to get all that going. So now we just got the 2nd IV going and we need to wait 1 hour before starting the chemo. Once the chemo starts the first drug will take one hour, and the second will take 6-8 hours. So now we are looking at not getting out of here until sometime between 11:00 and midnight. It it going to be a long day and night. Nothing is ever easy with Ash. Our crazy, little (but getting bigger) pickle just keeps us on our toes.

On a side note I left our little room to go get a drink a bit ago. I was a little sad because as I walked by all the rooms I saw lots and lots of elderly people all hooked up to their pumps getting their chemo. Ash is definitely the youngest one here today. We look forward to coming home and starting Ash's chemo treatments at the Children's Hospital in Dallas. I have not seen it, but I imagine it will be a more kid friendly place. Thankfully Trish is a pro by this point and she came with a bag full of toys, books, baby dolls, and Blues Clues DVDs.


Ash is getting sleeping and I am feeling the need to go get another snack. We will update later.

DAVE

P.S. True to our Ashley's stubborn nature we change diapers all day long, but now that we are waiting for her to pee she is refusing. It has now been 2 hours since her last diaper and she just isn't giving us any.