Ashley's Story

She will leave fingerprints all over your heart


Still Here

I just thought we would pop in the infusion center this morning for Ash's cytogam. Silly me. Nothing is easy for Ash. We began at 10 and we are still here at almost 2.

This is the 10th time she has gotten an infusion of cytogam and she has never had any trouble with the infusion before. Today her blood pressure and temperature are far two low and this is causing much delay. I have lost count as to how many times we have had to stop the pump. They even decided to give benadryl to help with the reaction(which has caused her to fall asleep) and we were just told that even when the infusion finally finishes we will have to stick around until she can wake up.

Just a little kink in the plans for the day, but we don't mind. Our concern as always is that Ash is ok. I'm not sure why she is struggling with this , but I am thankful they are being careful with her.

Still hoping to have time to connect with a few more friends before the day's end.


At 4:03 PM , Anonymous Anonymous said...

We love you!

At 4:07 PM , Anonymous Molly said...

Thanks for the update! Still praying!

At 4:46 PM , Blogger Amy T said...

Praying for you guys. It's sunny and hot (after all the rain and somewhat cool weather) today in Texas. Hope your day gets better and that you are able to make your plans.

At 7:24 PM , Anonymous Anonymous said...

Trish, Caleb and I would love to see you guys before you leave Omaha!

Holly and Caleb!

You can e-mail me at or call me at 402-505-2755

At 7:44 PM , Anonymous Anita said...

I am praying for ya'll as always! And also wanted to pass on a link to a baby that is having a trandplant up there today. She is from Pineville which is about 45 mnutes from Jena(Louisiana)


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