Tough to Watch
I realize this is not the happiest clip of video you will ever watch, but I thought it might help put into perspective the descriptions of what I share. You can see that our tiny, petite baby has slipped away and she is growing more and more distended by the day. The large red mass you see on her side is actually her ilieostomy that I speak about. It is at least 5 times its normal size which tells us that her bowel is angry, swollen and inflamed. She struggles with the pressure and grunts some with her discomfort, but by the end of the clip she shows us a little of that determination and spunk that says, "I'm still me even if you don't recognize me." I love this baby girl, even on her rough days. Thank you for praying of her. She is holding her own around here.
posted by Ashley @ 8:23 AM
38 Comments:
thank you so much for posting this. it makes me want to pray even harder for her. she is so adorable. even through all of this, she still acts like a little 2 year old! she has so much life in her sill. i pray she starts to heal this week through all of our prayers...
bless her sweet heart! Sunshine
Trish, Thanks for posting this so we could see this precious baby and know even better how to pray for her. She is determined...she was going to get that sock no matter what!! But as I watched the video the tears spilled over as I realized just how intense her discomfort must be. And I can't imagine how hard it is for you to watch her go through this, when there is nothing more we want to do as parents than to ease our childrens' pain. I love this little girl so much and spend a lot of time with her and you on my mind, whispering prayers for your family as I go about my day.
Take care & God bless your family, Martha
While it was heartbreaking to see her in so much discomfort, I have to admit that I giggled when she finally got the sock off and went back into pose position. :-) She stuck those hands behind her head as if to say, "Alrighty - my work here is done!" Something about her seems especially "two" when you show pictures of her in her pose. She is definitely a cutie.
Brenda in N E
I love how she got her sock off, she sure was determined. Praying here in NY.
I am speechless. I will be on my face for you today. Thank you for posting this. Eventhough you share so well with your words what you are dealing with, this just makes it all the more real for me to know what to pray.
She got that sock off, darn it! Bad sock :)
She's precious. Thanks for posting so we understand better.
Still praying :)
She's so beautiful ~ I truly had no idea and the video is so helpful, thank you for sharing it. I did love her getting that sock off. It was so deliberate... sort of a,"Don't forget whose in charge." moment. :O)
Thank you for posting this little video. In the begining I was brought to tears and heartbroken for Ash and you seeing how uncomfortable she is and how helpless you feel. But then in the end I couldn't help but smile and Thank God for her life. What a precious little girl. She definatly has alot of spunk! Praying for Ash to heal this week!
(((hugs))) ~~Chan~~
Incredible, what a girl! Keeping her constantly in my prayers, and you too.
Beth
I have just visited your site for the first time today. I am very moved and wanted you to know that I too will be praying for this sweet girl.
I am encouraged by your faith. Keep believing God! He is able.
Sheila in Alabama
You're right...that is hard to watch. But, thank you for sharing her with us. I can't imagine what you are going through. But, I can Pray and pray I will continue to do.
Goodmorning, Trish and Ash,
I love you guys so much. Tears are flowing again as I watch this video. It brought me back to NE with you again. I pray for God's will for Ash and in my selfishness I pray God will simply heal her little body again, and let you both go home with the others.
Please continue in the the greatest Hope we have - Jesus Christ. I love knowing we can always lean on Him and I'm grateful to see only one set of foot prints in the sand right now. I also, love the fact our Heavenly Father has great BIG arms to hold us in.
My Journey/SS class is praying for all of you! Please let me know if you need any thing. I have had calls to see what can be done for you, for personal needs for you or Ash, please call me if anything specific comes to mind.
I love you! Talk to you later!!
Toni
Oh, yea. Give Ash a little foot from from her Aunt Toad!
Thanks so much for sharing. She is such a wonderful little child. It made me smile to see that sock coming off, just like it should with any two year old. :) I'm praying.
At first I was so teary, seeing the obvious discomfort your little pickle was in. But then those tears changed to laughter as that little cutie managed to get her sock and the pulse ox off! It's encouraging to see her full of the dickens in spite of what her body is doing to her. :) She is so precious!!!!
d:)
The video was hard to watch but I smiled as that sock came off! Thank you so much for sharing this video. She is one determined girl! We are praying for all of you!
Love and prayers to you both. And to the family back home, special hugs and love for all of you!
Oh, breaking my heart to see her in such discomfort... and also how she fights through it! Thank you for sharing this very honest video. I know that must have been hard for you. Just know that now we're all sitting in that room with you... you are not alone in what you are witnessing. We have seen her too now and can pray even more specifically... I hope that brings you some comfort.
SO MUCH LOVE,
calissa
Still praying with you that her spunk and determination will help her fight this battle. It breaks my heart to see her like that but at the same time, I am also smiling at her. What a reminder that behind her swollen belly is one strong little girl who will fight for what she wants!
Way to go, Ashley! The spunk that helped you get that sock off is what will help you through this time! You are an amazing little girl. Ashley, I pray that your tummy will feel better soon.
Trish, my heart also breaks for what you must be going through. The joy and love mixed with sorrow and helplessness. You are a wonderful mother. So often, I have seen glimpses of you at the foot of the cross holding Ashley up to the Lord with open hands to use as He sees fit. Thank you for challenging me to walk by faith in the darkest of situations.
God bless you all! Love and hugs!
So much on my heart. The weight will be taken to His Throne.
Many prayers will be lifted up for you today. Many, many!
Kristi in Texas
Found your site through a fellow blogger who is seeking prayers for your sweet Ashley. Know that Ashley and your family are being lifted up in prayers today and all the days to come.
I just love how she "kicks back" with that sweet leg lifted up to her knee. And her determination is obvious and awesome.
OK I had to come back and watch it - I didn't get to see the video the first time I checked the post...
Oh she has such determination and such a fighting spirit - it breaks my heart to see her so uncomfortable - I cannot imagine how it breaks yours. Yet I imagine it must make you giggle at her determination and spunk. You and her are SO precious - if I could I would reach through the screen and just hug you. I just adore you so much - your heart is so beautiful to read from - we will be on our knees for you (I read this a few months ago on another blog and it so touched my heart...I decided that is the best place to be when you see someone hurting) - know that we love and care about you and your family so very much. Sunshine
Parying for precious Ash each and every day. Remain strong I know it has to be hard because I dont even know her and I sit at my desk crying. May God continue to hold you in HIS powerful hands
Praying for comffort for the Pickle
I love it! Even in her pain and discomfort she fights for what she wants. I just chuckled at her determination and then sense of accomplishment. She is truly wonderful. Let those "Ashley" moments help dissipate the sadness as you watch her struggle. You are all in my prayers today and always. Lou Ann
This may sound funny..but she reminded me of my little one. No matter if we are going to be in the car 2 hours or 2 minutes her little socks and shoes come off everytime!!! And she won't give up on it....just like little Ash....It breaks my heart to see her in such discomfort...but her determination and spirit is still there.... my heart goes out to you Trish....hang in there and keep your chin up....You are surrounded by lots of prayers......and people who love and care so much for your cute little family....
thanks for this post. i hope that everyone sees through her discomfort to witness the strength and determination she has. our little ones are fighters.
i hope you don't mind me posting a link from ivey's blog to yours. strength in numbers!
can i do anything for you-even from here in ga?
gwen
We are praying, praying, praying with tears in our eyes for a miracle. We are begging God to completely restore Ashely's body. We are praying for strength and the comfort that could only come from God for each member of your family.
Shawna Pavlides
Bless your sweet heart Trish! My mommy heart breaks with you. I just can't imagine listening to those grunts and knowing your powerless to relieve them. You are a warrior sister and you're gherkin is too! She WAS getting that sock off thank you very much! teehee
Won't stop praying!
Love in Him -
Valarie
NC
God Bless your little one. It is heart breaking to see what she is going through. While I was watching the video, I wanted to reach into the computer and take that darn sock off her little foot. I was thrilled when she pulled it off as if to say, I may be down but I'm not beat..So There!!!!. Prayers going out for your sweet baby as well as your two kids at home. Also praying for a safe flight for your husband and some sense of comfort for you all. May God surround you all with his love and grant complete healing here on earth for your little pickle. God Bless.
It breaks my heart to see her in such discomfort, but she is a determined little girl. It made me laugh once she got that sock off and then all she did was put it down and go back to her position of hands behind the head. What a sweetie! On my face praying! I can't help it when I read her story, but the tear just flow.
Loving you from afar!
Shari
Oh my heart was just breaking watching her grunting and struggling w/discomfort - I can only imagine what you're going through as her mother. She sure was determined to get that sock and monitor off her foot! What spunk! Ashley continues to be in my prayers.
Keep fighting sweet Ashley.
There's that pickle we all love! Such determination! Even through the pain, it must do your heart good to see the glimpses of the princess pickle at her best.
praying harder than ever...Please Father you gave a mother this love like no other...Turn this situation around so the baby doesn't have to suffer...Colleen
Tough to watch is right. But what a tough little girl you have there - she's a fighter, and that is exactly what she needs to be right now (so take that, you bad sock!). Still praying and praying.
Trish! I haven't been online all weekend, and I've missed so many posts. This video made me laugh and cry. What a brave girl!
God knows her by heart. I'm praying for miracles. Don't give up!
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