Ashley's Story

She will leave fingerprints all over your heart

10/01/2007

Waiting to Declare

What a long day! Nothing much happened outside of rounds this morning, but it was an awful lot of information for me to sort out and absorb. Tonight I feel like she can do this. She has been around this block a couple of times and she's pretty tough. My sweet Ashley Kate doesn't know how to do anything but survive and overcome. I just think He's got a plan.

She is basically the same tonight as she has been all day. Uncomfortable with the worst stomach ache you could ever imagine. She continues to stretch to dimensions I never knew were possible. It looks so painful and so frightening, but in the midst of her discomfort she can still make me smile. Ash has been holding her little feet in the air wanting me to massage them. She doesn't make a sound. I just look over there and see a foot sticking up and thats the cue. As soon as I start she closes her eyes and it seems to relax her just a little. I love this silly girl. One day last week she had her daddy on one side and me on the other just rubbing away.

After spending some time visiting with one of the doctors this evening the goal is to wait. We are all waiting for Ashley's body to declare which path it is going to take. I am believing that it is possible she will just wake up one day and turn this thing around. If she can hang on long enough without becoming too exhausted by the process then I think we have a chance. There is really nothing that can be done until her body shows us that she needs more support. That support will more than likely come from the vent at the point that the infection spread and she reaches her limit, but it doesn't have to happen that way. I am encouraged that her blood pressures have been solid. I am encouraged that her heart rate is holding its own. I am encouraged that although she is working hard to breathe against the pressures building inside her abdomen she still sats at a 100%. I am encouraged that she is not maintaing a high temperature. I am overall encouraged by the possibility that it may not get as bad as they say it can. My fear or worry or tears will not change the path that this is going to go down. Thats not to say that I haven't had all three of those at some point today. More than anything I just wish I could relieve her of the discomfort she is in. There are no band aids big enough for this boo boo and realizing that I am helpless and can offer her nothing is tough.

Ashley's eyes like always tell the story. In her eyes you can usually see a twinkle. It may be a twinkle that hints of an ornery streak just waiting for an opportunity to shine or it may be that twinkle that shines with absolute joy and happiness. No matter how she feels I can always read it in her eyes. Tonight her eyes tell me just how tired she is and how unsure she is of where we are. They ask me for help that I can not give and they wait for me to fix "this".

I really don't know how this will all play out, but I have decided to think positive and pray that she has the strength to do whatever she has to do. I am so proud of her. Thank you for loving our pickle. Good night. Trish

13 Comments:

At 1:19 AM , Anonymous Anonymous said...

Praying for a strong, fighting pickle!

 
At 2:30 AM , Anonymous Anonymous said...

Heard these sermons and think you may really enjoy them and relate. Praying always!

http://www.buckheadchurch.org/messages

They are the ones from the past two weeks part 1 and part 2.

 
At 2:47 AM , Anonymous Anonymous said...

Praying for her strength to fight through this and heal. Praying for your strength to edure through the process her body will go through. Salt and Light.

 
At 6:05 AM , Blogger Paige said...

Praying that God is going to do a huge work in Ashley's little body. She has been such a fighter, and I pray that she will have the strength to continue.

Trish, I pray that God will give your mind grace as you endure things that most of us cannot imagine. Living in this kind of stress is wearing. My thoughts and prayers are with you in a special way.

For Dave and the kids, I pray that you will have peace. I know that your hearts are torn.

Have a blessed day!

 
At 7:11 AM , Blogger Elizabeth S said...

I am praying for Ashley's body to do what it has to do quickly so that she can feel better sooner rather than later. I can't imagine the exhaustion both you and Ashley must feel. I am praying for you to see that twinkle in her eyes today, even if she feels bad. I am praying for protection on the rest of the family while you and Ashley are seperated from them. Praying...

 
At 7:31 AM , Blogger KimberlyDi said...

Everything that she is going thru, she has had you at her side. You are an incredible Mommy.

 
At 8:09 AM , Anonymous Anonymous said...

Praying for you all this morning! That is so cute about Ashley putting her foot up for you to massage it. How sweet. I'm sure that must be very comforting to her. You are a terrific mother Trish!

Blessings,
Lori

 
At 8:18 AM , Anonymous Anonymous said...

I know you don't know me... but I want you to know that we are praying for your family. Your strength is an inspiration to me. I'm sorry for your daughter's pain. I am sorry for yours. She is a beautiful gift from God and we are praying that she heals completely and quickly.

 
At 8:23 AM , Anonymous Anonymous said...

Praying for your precious daughter today - and for you, you must be exhausted.

 
At 8:23 AM , Blogger Amy T said...

You are right. Ashley has shown how strong she is in the past couple of years and how awesome our God is! Praying that her body starts fighting in earnest and that you both can find some rest soon. Praying the twinkle returns and hoping that soon she's telling all those nurses and doctors just what she thinks of all of this!

 
At 8:37 AM , Blogger Amy said...

Your faith in God and your outlook in finding and holding onto the positives is precious and a testiment to God's hand in Ashley's life. We're praying today.

 
At 8:39 AM , Blogger Susie said...

I'm still praying for you and your sweet little girl. May God bring healing soon.

 
At 8:45 AM , Blogger Sunshine said...

I am praying for you and Ashley today. Sunshine

 

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