Ashley's Story

She will leave fingerprints all over your heart

11/29/2007

Granted

Edit #2: It looks like we will not be traveling until this evening. Dave is going to fly in and will land around 11pm. I will pick him up from the airport and we will leave from there. This will give me some time to order more replacement fluid for Ash. We are just now finishing her replacements from last night and it is 5a.m. Time for a little nap before labs. Hopefully her stool slows down today or we may not be traveling at all. My nerves have my stomach upset and I don't want to have to call Blake and Al to tell them our trip is cancelled. Please pray that her output decreases today. Other than a whole lot of stool, she looks amazing! She is now ready to begin her day just as mommy is ready for some rest. Silly Pickle!


Edited: Some have asked how long our pass is. I will get to spend Sat, Sun, Mon., and Tues, at home(as long as Ash's condition is stable) and then I will leave early Wed. morning to make the drive back to Omaha. All in all I am allowed to leave tomorrow(Friday) and stay through Wednesday(but Friday and Wednesday don't really count because I will be driving the entire time.) They will not allow us to stay home because Ash's bowel has not been restored to the point that it was before her rejection. Who knows if it will ever get back to that level of functionality, but until it does we will reside in Omaha, Ne close to her transplant team. I hope this helps answer any questions I may have left dangling in the post.


They did it. They agreed and granted a short pass to go home. The doctor made sure I understood we were no to stay, but that she wanted us back in clinic next week. They have also scheduled another biopsy for Ash next Friday. I don't really know how to describe the feelings that I am having. I guess it really doesn't matter if everyone understands how exciting yet frightening, how freeing yet restricted, how grateful yet still disappointed, we feel. The range of emotions that come over you when you realize that you are still clawing for each and every day of life for one of your children is very vast. When you hold your breath before each appointment hoping to hear good news and the words, "You can move back home" and then they don't come. It has been the most painful, most difficult, most trying, most amazing, most humbling, most incredible, most blessed two years of our lives. This is so hard to put into words. I am thrilled to have been granted permission (although they did not want to give it), but still hurt realizing that we have to return and it is indefinite as to how long.

As soon as I walked back into our room my phone rang. It was Blake. "Did you have your meeting? Are you coming home?"

"For a couple of days but then we have to bring Ash back."

"That's ok, mom. We'll take a couple of days. I can't wait!"

Allie came in from tumbling while we were on the phone. The first thing she said was, "YOUR COMING HOME? YOUR COMING HOME IN TIME FOR CHRISTMAS!" She was so excited.

I had to explain to her that it was only for a few days and then I would have to bring Ash back. I told her I didn't want to push for Christmas just yet.

"Thats good, mommy. You and Ashley come home and then when you get back you can start pushing them for Christmas." This made me laugh out loud.

She talked all about decorating and all we had to do. Her tree, Blake's tree, the family tree, the mantle, the lights outside on the house, the wreaths on the windows, and "the yard". "The yard?" I asked because we don't put anything out in the yard. "YES. We NEED deer or something in the yard." I guess we will be shopping for some yard decorations.

The excitement in their voices blessed my heart. They can't wait for Ash and I to be home. They won't be able to concentrate at all tomorrow. I hope their teaches will understand. Its been 10 LONG weeks since we have been in our home and I can't wait to pull into the drive.

Ash looks great today, but her stooling is a huge problem. She is putting out more than she ever has and it is a race trying to keep up with it all and get it put it back in. We made another change to her immunosuppressant today. We stopped the Rapimune and put her on something called Cellcept. It looks to me like it has fewer side effects, but like any of them it puts her at great risk of picking up an illness or infection. We are using it together with her normal FK and hoping to keep both doses low enough to protect her kidneys, but high enough to provide protection for her organs. Its all such a guessing game.

So I will draw her lab work around 7 a.m. and drop it off, then load this pickle into our car and head for home. It will take us at least 14 hours to make the drive. We will then spend a few days at home and load back up for another 14 hours to return to Omaha. Please pray for our safety while traveling. Please pray for protection over Ashley Kate's health while we are away, and please pray that our time home will be some of the most precious moments we have ever experienced. Nothing taken for granted. Stepping out on faith is what I am about to do. Our family is important and this few days together is absolutely necessary. I will not be posting tomorrow. I will try and share something on Saturday, but if you don't hear from us just know that you are loved and appreciated. Take care my friends. Trish

60 Comments:

At 6:49 PM , Anonymous Anonymous said...

How wonderful! How frightening! So much to do,so little time! Have a safe trip!Hug all of them for us!

 
At 7:04 PM , Blogger Keri Ann said...

I couldn't be more excited for ALL of you! I can only imagine all the mixed emotions fighting inside you right now, but I will pray for the hopeful, positive, excited ones to prevail! I'll also be praying for your safety and for your hearts to savor each and every minute you have together.

Please don't give a second thought to posting unless it's something you truly want to do -- this time is so precious now, and we'll all be thinking of how much fun you'll be having!

 
At 7:08 PM , Anonymous becky said...

How awesome! We'll be praying for a mighty hedge of protection around you all and for great joy during your reunion. Know that you'll all be lifted up continually.

 
At 7:12 PM , Anonymous Kathleen said...

Wonderful news!! Will keep you in prayer. Enjoy your visit home!

 
At 7:14 PM , Anonymous Anonymous said...

How Woderful..Wonderful..Wonderful!!May God's mighty angels guide you and Ashley home safely. Enjoy your time with your precious family.Continuing to lift you all up in prayer. God Bless..Karen

 
At 7:23 PM , Anonymous Anonymous said...

I wasn't sure how much longer my heart could take the suspense of what "the answer" was! Although, I'm still not sure if I should cry or smile... What an emotional day for you and your family! Looks like this will be a good weekend to get away--the weather does NOT look like it will be much fun here! Prayers for safe travels and special moments together as a family in your own home. Amanda

 
At 7:35 PM , Anonymous Anonymous said...

Oh Trish I am ecstatic!! This is wonderful news!! I pray so hard that you will get to stay through Christmas....come on Ashley you can do this!! ;o) I pray for your safe return HOME!!! I pray for you all to have a wonderful and uneventful Christmas holiday! May you all be blessed! Merry Christmas to everyone!
I just couldn't have heard better news today! I KNOW how happy I feel so I could never begin to imagine your feelings right now!
Take Care and drive safe as I know you will.
~Okla

 
At 7:43 PM , Blogger Amy and Kyle said...

Oh Trish - I am just THRILLED for you! I have been praying all day that you would get your pass! I am just so happy for you! Did they say how long your pass is good for? Will you have to come back Sunday or Monday? Also, you said they didn't want to give it to you..did they say why?

I hope you have a blessed, wonderful, cherished time with your family. I think this is just what the "doctor oderdered." I think this will help all of you! I think Ashley will be better; away from machines, needles, nurses, RESTRICTIONS!! Ahh, what a blessing!!

Although I will be waiting on pins and needles to hear every detail of your time with your family goes, I hope you can just relish in the sheer joy of it all!

I will be praying for your safe travel, that Ashley's health will only IMPROVE while she is with her entire family, and that you will return with a renewed strength!

I am just so happy for you!! ENJOY!!

Much love!
Amy and Kyle

 
At 7:56 PM , Blogger Elizabeth said...

Praise God! I knew he had something wonderful in store for you all! I will be praying you all the way home now! This is so awesome! YEAH! YEAH!
Can't wait to hear how things go with the decorating!
Love in Christ,
Elizabeth

 
At 7:57 PM , Anonymous April said...

Goosebumps. Praises. Thanks. Our God is awesome.

I will pray for your safety and Ashley's health as you venture HOME. HOME!

Prayers and hugs...

 
At 8:00 PM , Anonymous Anonymous said...

Great news. I will be praying for health and safety as you two travel. Enjoy your time with your family! ~Chan~

 
At 8:16 PM , Anonymous Vicky said...

I am soooo excited for your family!

I will be praying, praying, praying!!!!!

 
At 8:17 PM , Anonymous Anonymous said...

Godspeed to you and Ashley. You are covered in prayer...for your travelling and your family time at home.

With all my thoughts, love, and prayers
Kristi in Texas

 
At 8:23 PM , Blogger Kelli said...

Praying you all the way home.

 
At 8:25 PM , Blogger Cheryl Jones said...

I have been checking all day. Nothing but tears of joy here for you. You can be assured that you will be covered in prayers, as always, for your trip home and that nothing but blessings beyond anything you could even imagine when you get home!
I know along with so many, we will just not be able to get you and your family out of our minds and prayers knowing you are heading home!
Standing faithfully in prayer for your family,
Cheryl

 
At 8:29 PM , Blogger Alicia said...

What a HUGE blessing! Thank you, God!

 
At 8:31 PM , Anonymous Anonymous said...

Trish,
Praying you and Ashley Kate have a safe trip and a wonderful time at home with your family. God's blessings to you all.

Prayers,
Gina, Mommy to Lucas

 
At 8:32 PM , Anonymous Anonymous said...

YEAH GOD! I know you will treasure every second with your family! Enjoy yourself and we will continue to lift up all requests. Mistie

 
At 8:33 PM , Blogger Cindi said...

WOOOO-HOOOO! Praise the Lord! I was on pins and needles all day waiting to see how your meeting went. I am praying a wonderful, divine hedge of protection over you and sweet Ashley Kate as you travel, deocrate, and relish those precious moments at home. I will miss your post tomorrow, but know we will all continue to pray for you. Enjoy your time together as a family. God Bless you Adams Family!

 
At 8:41 PM , Anonymous Cari said...

"Praise God, from whom all blessings flow. Praise Him, all creatures here below. Praise Him above ye heavenly hosts. Praise Father, Son, and Holy Ghost!"

Rejoicing with you today and praying for wonderful family time, safe travel, and Ash's continued healing.

-Cari in Arkansas

 
At 9:02 PM , Anonymous Anonymous said...

Trish,
Have a GREAT weekend. We will be praying all day tomorrow for your drive. And then we'll wait to hear all about it next week. I figure it might take a full week to tell us about all that you manage to fit into 3 days.
Marlain

 
At 9:14 PM , Anonymous Anonymous said...

Of course Trish. We completely understand. Take some time off to be with your family. I am so thankful that the Lord heard our prayers and gave you the pass. Judy

 
At 9:27 PM , Anonymous Grandma said...

THANK YOU JESUS AND PLEASE PROTECT TRISH AND ASHLEY TOMORROW AS THEY MAKE THEIR WAY BACK HOME!

 
At 9:34 PM , Anonymous dee buchanan said...

PRAISE THE LORD! What a Christmas gift! I am just thrilled for both of you! Can't wait to hear of your wonderful time with your family. Keeping you in our prayers....

 
At 9:37 PM , Anonymous Anonymous said...

Enjoy your visit home, I am so happy to read this post and the outcome of your meeting :)...Praying for a safe trip to you and Ash.

 
At 9:38 PM , Blogger Haylee Gabrielle said...

what an AMAZING GOD we serve! praise the LORD, i am so very happy for you and your family!

 
At 9:39 PM , Blogger Gretchen said...

WAHOOO!!!! Traveling mercies, Trish. God is so awesome! I can't wait for your family to have it's little reunion. I'll be praying for your safety and Ashley's health, and thanking, thanking, thanking Jesus for assembling the 5 of you (and Hope, of course!) back in your home. How great it will feel to sleep in your own bed. I'm thrilled for you. Just thrilled. I'm not nervous at all--you will give Ashley exactly what she needs. You always do. Blessings! Have fun! I hope I don't hear from you until you're back in Omaha--that way all your time is spent with your family. ((((hugs)))) Thanks for sharing your great news.

 
At 9:45 PM , Anonymous Michelle in Tulsa said...

YEA!!!!! I pray protection for you and Ashley and you make your journey home and that she will stay happy and well while you are there! I cried tears of joy when I read your post!!

 
At 9:53 PM , Blogger Melody said...

Amen and Amen!

 
At 10:17 PM , Blogger Paulette said...

Geeeeesh, I can't imagine the roller coaster of emotions you are on, but I am so grateful you have a couple days. At least the kids and you and Dave can get Christmas set up so when you get back you can begin the drill to go home for Christmas. So that would definately be worth it.
I will pray for traveling mercies for you and Ashley of course and will be excited to hear all about your adventure later.
Have a grand time with your family Trish.

 
At 10:24 PM , Blogger Monique said...

Wonderful news for you all. Enjoy your trip home and I pray the drive is safe and easy.

 
At 10:49 PM , Blogger Toni said...

What blessed news. I wish you didn't have to drive so far, but I know you'd drive to the ends of the earth to reunite your family, even for a few precious days. Praying for safety and for Ash's stool output to stabilize. ENJOY your family.
Blessings,
~Toni~

 
At 11:22 PM , Blogger The Rutland Family said...

I am so excited for your family! What an adventure! I pray for your safety in traveling and Ashley's health for the entire trip. I also pray that your dreams come true making the wonderful memories that your family deserves. I pray that you have peace in all that you do. Please don't worry about posting. We will be praying for you and tickled pink that you are having an amazing time with your WHOLE family together. May God bless you and keep you!
Because He lives, we CAN face tomorrow!
Godspeed!
Pam

 
At 11:29 PM , Blogger Jenny said...

Happy news!! I'll be praying for your travel safety and for a wonderful time at home. Have fun decorating, but don't forget to relax too! I hope these next few days are very special days that you'll treasure for years to come!! Blessings on you.

 
At 11:58 PM , Blogger Shari's Page....... said...

Oh, I am so excited for you! I can imagine that you have some fright too. I will pray for good health, traveling mercies and safety and a wonderful time for you and the family. I KNOW that the few days Ash is home she WILL improve. You just wait.

Prayerfully,

Shari

 
At 2:31 AM , Blogger Holly G. said...

HI Trish,

I am so happy that you are able to go home with your baby girl for a couple of days:)

I wanted to let you know that my husband is a kidney transplant recipient and he is on Cellcept and is doing great. He is also on Prograf and prednisone.

Hopefully you will be making that drive again very soon, for good.

Happy Holiday,
:)Holly

 
At 5:33 AM , Blogger Ivey's Story said...

All I can say is YEAH!!!!!

Be safe. This is wonderful.

 
At 5:51 AM , Anonymous Misty said...

Praying for safe travels...for Ash's stools to decrease. Have fun bringing that "Christmas Magic" into your home! Enjoy your time!!!

 
At 6:13 AM , Blogger Michelle J said...

Very great news!! Be safe Trish and little Ashley!!
MichelleJ

 
At 6:53 AM , Anonymous Anonymous said...

Trish I am praying praying praying for Ashley's output to slow down!!!! I am also praying for your stomach to settle. Oh this just has to be so hard on you ...you are truly amazing to be able to handle all that is given to you. Thank GOD for blessings right? :o)
Praying for all of you to have a safe trip! I just know you will be going home!!
Hang in there. I will be praying you to Texas and praying Ashley healthy!
God Bless you all.
~Okla

 
At 7:12 AM , Blogger ManyBlessings said...

This made my day!!! I'm thrilled for you guys!!
d:)

 
At 7:22 AM , Blogger Wendy said...

I've been meaning to ask where you are in Texas. I am north of Houston and would love to help any way I can. Just let me know!

 
At 7:25 AM , Anonymous Courtney said...

I was so excited to read your post and full fo smiles as I thought of the time you had planned with your family. Now I read your edit #2 and am praying praying that Ash's stool output will decrease and that you will get to go home!

 
At 7:35 AM , Blogger Alicia said...

YAyy!!!! I will be praying praying praying that your visit will be sooth and wonderful and that Ash will do soo well that they'll want you to go back home fro Christmas! :^)

 
At 7:52 AM , Anonymous lori said...

Awesome news! We are so happy for you to be able to go home for a few days. Please know you are in our thoughts and prayers every day!
Love in Christ,
Lori and family

 
At 7:53 AM , Blogger jtcosby said...

WOW. What a trip this will be! We are so praying for you and when I do my decorations this weekend, I will be thinking of you doing the same...awesome! I am praying Ashley's stool is balanced out...love, Tamara

 
At 7:58 AM , Blogger camille said...

I'm so happy for you. I will be praying her output decreases. I'm so so excited!!

 
At 8:02 AM , Anonymous Anonymous said...

AWESOME! Enjoy this great opportunity to be with your entire family. Our prayers are being answered, whether it be a little at a time, they're still getting answered. I continue to pray for her stool output and for a safe trip for all of you. Enjoy every minute. God Bless. Corey

 
At 8:25 AM , Blogger Kelly said...

I'm praying that you will get to be here this weekend! I hope to hear from you on Thursday when you're back in Omaha!

 
At 8:32 AM , Blogger Julie said...

That is wonderful! Wishing you a great time at home and a safe trip.

 
At 8:51 AM , Anonymous Anonymous said...

Thinking of you today and praying for safe travels for you ,Dave and Ashley.I can just feel the excitement you all are feeling. Prayers continued. God bless..Karen

 
At 8:51 AM , Anonymous Rhonda said...

Prayers for you all!! DH has been on cellcept for 9 years without issue. I know everyone is different, but I hope it works as well for dear sweet Ashley!!
Hope your trip is wonderful!!!!
Take care, Rhonda

 
At 8:59 AM , Blogger Laurie said...

What wonderful news Trish. I will be covering you in prayer from here for safe travel and the most wonderful heart uplifting time at home for you.
Your kids are so great to lift you up in such sweet words. Ashley's health remains in Gods hands, as always, and He will take care of her. She is going to be so blessed to be carried through the door at her house. Decorate with Joy, Love non-stop, breathe in deep the scent of home and family, and I pray that this would be the time God heals Ashley completely. I pray you are able to leave your concerns in Omaha for this time and just soak in the Love of your family. And praying for all that you asked Trish. Have a wonderful time!!!! You have so earned it and let nothing steal your joy.

Love, Laurie in Ca.

 
At 9:48 AM , Blogger CrownLaidDown said...

Praying for a blessed, safe and WONDERFUL time! Oh, Praise God, you can decorate your tree with your family...see the faces of your children, feel the air of home and be at peace.
Love you much in Jesus,
holly

 
At 9:53 AM , Anonymous Amanda said...

Happy to read you will have a traveling companion (besides Ashley). 14 hours is a long time! I've said this before, but PLEASE let me know if I can do anything (like, for instance, give a home to a beautiful tree for a couple days...just so you won't have to drive it back and forth! :o) ). Praying for you and all that you are praying for. Amanda

 
At 10:08 AM , Anonymous Anonymous said...

Your three prayer requests are already what I had in mind before you even asked. I love how God works that way. And I love that you'll get that few days, though I can understand at least one of those complex feelings. The excitement is wonderful and a huge blessing that brings much gratitude, but makes it harder than ever to leave once you've tasted it. So I will pray for that too. Have a great time and tell everybody "Hi."

Nikki

 
At 10:12 AM , Anonymous Anonymous said...

I just went back to read your edits. I will be praying. Nikki

 
At 10:35 AM , Blogger Amy T said...

Awesome! Praying for a wonderful trip for you both. I am so happy for you that you get to come home for a bit.

 
At 12:44 PM , Blogger Mandy said...

praying it all works out!!

 
At 3:26 PM , Anonymous Anonymous said...

YIPPEE!!! YAHOO!!! THANK YOU, GOD!!! Trish, I am SO incredibly HAPPY to hear you and Ashley get to go home! The doctors in Omaha may not have been 100% happy about letting you go, but it was obviously what The Great Doctor ordered! I don't think that I've worn a bigger smile in quite some time. :) You will have many many prayers on your drive home. I know you will cherish every second at home with your husband and ALL of your children. God Bless you, Trish- as you are a blessing to me!

Love in Christ!
Tina

 

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