Ashley's Story

She will leave fingerprints all over your heart

11/07/2007

Not 1 Surgery But 2

One thing that is easy to overlook in Ash is her age. She has been so little (Gherkin) for so long that it has been easy for us to overlook. She looks and has the abilities of a 6-9 month old infant so we often forget. However last night she reminded us that she is as every bit a 2 year old as any of the others. Last night while making trouble she managed to remove her central line. That means she first had to remove the dressing, then get a hold of the thing and pull hard enough to rip out the stitches that hold it in place. I don't know how something so painful can be fun, but it must be for her. So today in addition to getting the new G-J (feeding tube into the intestine) tube placed she will also be requiring a new central line. I suppose I can see 2 blessings in this. First she would not have been able to go outpatient with the type of central line she had. We have requested that they put the other type in so she can go outpatient when the time comes. And second, I can see that she still has a lot of fight in her. Yesterday the team did not want to put in the broviac type of central line, the one she could go outpatient with. Because she had to have one anyway, Trish said she would not sign consent until they could agree to use the type that would allow her to go outpatient. Way to go Trish, I am so proud of you.

She just now went back for both, count them, 2 surgeries. I will update when I hear how it went.

Thanks for all your encouragement.

DAVE

36 Comments:

At 11:18 AM , Anonymous Stephanie - KCMO said...

I'm glad to see she was ornery before surgery. Too bad it was the central line to show us how she was feeling. Thanks for the update. Sending another prayer up.

 
At 11:21 AM , Anonymous Tiffany said...

Thanks for updating us Dave! We will be praying here in Cali!

 
At 11:23 AM , Anonymous Grandma said...

Praying.....

 
At 11:37 AM , Anonymous Anonymous said...

Praying..Praying..Praying..God Bless..Karen.

 
At 11:40 AM , Anonymous Courtney said...

Thanks for the update. And yeah for you, Trish for holding your ground!
We're praying in PA.

 
At 11:41 AM , Anonymous Anonymous said...

Additionally, it seems that the timing of the central line pull was near perfect since Ashley was going into surgery anyway and you want her in surgery for the central line placement (right?).

Another benefit would seem to be that replacing the central line might cut the likelihood of the old one getting contaminated, infected, etc. It seems like anything left in too long is more likely to be a problem. Of course, I'm sure it isn't too good for it to be ripped out . . . Obviously, that precious baby has a mind/will of her own that cannot be squelched!

Thanks for the update.

 
At 11:43 AM , Blogger Krista said...

That fiesty side is what makes Ashley go great. Praying for her today.

 
At 11:49 AM , Anonymous dee buchanan said...

She certainly has spunk! We are praying that all goes well. Trish, I will try to call you ( I tried a little earlier), but in case I can't get ahold of you, if I have ever said anything that has upset you, please e-mail me, or call me for that matter. Anything I have said has been out of love and concern and understanding, never out of condemnation. I hope that I was not the one who is causing you to not do Ashley's story. Praying you find His peace and comfort today.

 
At 11:51 AM , Anonymous Anonymous said...

Thanks for the update.
We will be in prayer.

Good for you Trish.
We are thankful for you, and how you do what the Lord shows you is best for your Ashley.

In prayer...lee

 
At 12:00 PM , Anonymous Anonymous said...

Dave thank you so much for the update. I am so sorry Trish feels the need to take a break. She is so full of grace and mercy. I can tell by the way she writes. God bless you today as you await the results of this round of surgeries. God will prevail and I am praying.
Allison, NC

 
At 12:01 PM , Blogger Laurie said...

What a little princess warrior. Prayers for her continue here for surgeries to go perfect. And excellent job of standing her ground, that Trish! Blessings to all of you and thanks so much for the update Dave.

Laurie in Ca.

 
At 12:02 PM , Anonymous Anonymous said...

Praying Praying Praying........she is something else!! LOL What a feisty little thing!
God Bless you all!

 
At 12:04 PM , Anonymous Anonymous said...

Praying... we love you all. May God bless all of your family this afternoon.

 
At 12:11 PM , Blogger KimberlyDi said...

Yeah Trish! Outpatient is the goal. Praying Praying Praying!

 
At 12:11 PM , Blogger justme519 said...

Praying Praying

 
At 12:24 PM , Blogger Sun said...

praying! Sunshine

 
At 12:26 PM , Anonymous Jule White said...

Praying...always!

Thanks for the update. Love to all of you!

Love, Jule White

 
At 12:36 PM , Anonymous Anonymous said...

Praying !!

 
At 12:47 PM , Blogger Gretchen said...

Lord, today we lift Ashley up to you for the successful outcome of 2 surgeries--the central line placement and the feeding tube. Thank You for Your pleasing, holy will. Thank You for loving her even more than we can imagine. In Jesus' name. Amen

 
At 12:55 PM , Blogger Amy said...

Thank you for the update. As always...I will continue to pray for Ashley and your whole family! Your strength is AMAZING!!!

 
At 1:03 PM , Blogger Sharon said...

Ashley is so very blessed to have a mommy so willing to fight for what's best for her. Way to go, Trish!

Father, I lift sweet little Ashley up to You, and I ask Your blessing and favor on her and her doctors. Guide their hands and give them Your wisdom in all that they do. Hold sweet Ashley in Your arms and comfort her as she comes out of surgery and has to go through the recovery from it, Father. I also ask that you strengthen and encourage her family. You have blessed her with a wonderful family, and they love her with all their hearts. Comfort those hearts now, Lord, and give them peace as they help Ashley recover. I ask all this in Jesus' name. Amen.

 
At 1:41 PM , Blogger Cheryl Jones said...

When I think of how God designs us, I think of how perfectly He designed Ashley Kate's strong will and her little stubborness. How you love that about her. Perfectly and wonderfully designed by our Heavenly creator!
FIGHT ASHLEY FIGHT!
Praying always,
Cheryl

 
At 1:45 PM , Anonymous Anonymous said...

Hey Dave and Trish,

I hope everything goes well today, of course. I hope both Ash and Trish get a little rest, too. While they have very little to "do" every day, a stay in the hospital is sooooooo NOT relaxing to either the patient or the caregiver. Please give Trish this insight, as I hope it makes her giggle. Now SHE will get to be an observer to this blog just like the rest of us! I hope the warm wishes and prayers that she reads on the blog will bouy her spirits. For her courage, her selflessness and her intelligence she will always have our admiration and support. And Ash will always be among the strongest, bravest and most loved kids (along with Blake and Allie) that ever graced the planet.
M.

 
At 1:58 PM , Anonymous Lori said...

Praying! Thanks for the update.

 
At 3:01 PM , Blogger Candy said...

Praying for your little fighting gerkin. Way to go Trish.

 
At 3:57 PM , Blogger Ivey's Story said...

Dave-
Ivey has a g-j. Is Ashley's replaced differently since her bowel is your main issue right now? Last week Ivey pulled her g-j out on halloween- I hate hearing about the central line. But, I love it when our girls show their toughness and fight! It is always always a good sign.
Way to go Trish. Tough decisions are hard, but you can do it. I am proud of you. gwen and ivey

 
At 3:57 PM , Anonymous Anonymous said...

Praying for your fiesty little girl today. And praying her sweet mommy has the grace and strength she needs to make it through today.
-Cari in Arkansas

 
At 4:16 PM , Anonymous nikki said...

Ashley astounds me with her unstoppable strength. Like the energizer bunny. I'm sorry for the setback with feedings, but so glad she continues to overcome. We are ever in prayer for her health - and everything else involved in her care.

 
At 4:17 PM , Anonymous Anonymous said...

Your little Gherkin has so much "spunk." She never ceases to amaze me. I am very proud of Trish for putting her foot down. I am praying, praying, praying today!

Take care!

Shari

 
At 4:53 PM , Blogger Morgy's Mama said...

Watch out Dave ~ looks like you've got multiple spunky girlies in your family! praying!

 
At 5:04 PM , Blogger Mandy said...

Praying for Ashley today!

 
At 5:04 PM , Blogger Mandy said...

Praying for Ashley today!

 
At 5:28 PM , Anonymous Anonymous said...

Praying that all went well with surgery today and that Trish and Ashley have a peaceful night. God Bless..Karen.

 
At 7:07 PM , Anonymous Anonymous said...

Post or no post, I will continue to pray. (But I appreciate the updates, especially when they are answers to prayers.) You have touched my heart.

Tampa, FL

 
At 7:20 PM , Anonymous Anonymous said...

Still praying! Praying all is well with surgeries today! Will not stop praying! I hope to hear how it went...but if not that is okay too i will pray more!
take care and God Bless

 
At 5:33 AM , Anonymous Anonymous said...

I'm not sure why the doctors were so insistent on the other type of central line. If the goal is to get Ashley home, it makes sense to put in the central line that can be used at home. Hopefully, the new feeding tube with do the job and the central line won't be needed anyway. I check this site every morning and evening and pray all day that God will bring healing to Ashley's body and peace to Trish. That he will be with her so she doesn't feel so alone. She is an inspiration to me - such a strong faith and a great Mom. Kerin

 

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