Not 1 Surgery But 2
One thing that is easy to overlook in Ash is her age. She has been so little (Gherkin) for so long that it has been easy for us to overlook. She looks and has the abilities of a 6-9 month old infant so we often forget. However last night she reminded us that she is as every bit a 2 year old as any of the others. Last night while making trouble she managed to remove her central line. That means she first had to remove the dressing, then get a hold of the thing and pull hard enough to rip out the stitches that hold it in place. I don't know how something so painful can be fun, but it must be for her. So today in addition to getting the new G-J (feeding tube into the intestine) tube placed she will also be requiring a new central line. I suppose I can see 2 blessings in this. First she would not have been able to go outpatient with the type of central line she had. We have requested that they put the other type in so she can go outpatient when the time comes. And second, I can see that she still has a lot of fight in her. Yesterday the team did not want to put in the broviac type of central line, the one she could go outpatient with. Because she had to have one anyway, Trish said she would not sign consent until they could agree to use the type that would allow her to go outpatient. Way to go Trish, I am so proud of you.
She just now went back for both, count them, 2 surgeries. I will update when I hear how it went.
Thanks for all your encouragement.