Ashley's Story

She will leave fingerprints all over your heart

11/30/2007

Ready to Run

Ash and I are what you might call flexible. Not because we were born this way, but because He is making us this way. It has not been easy, but after 2 years of it we are starting to get pretty good at it.

There is a winter storm headed into Omaha tonight. Bringing with it snow and ice. Not good for a road trip. Especially for a Texan who has never driven on it before. So what now? Leaving around midnight isn't going to work. We need to outrun the storm. So...Ash and I are ready. We are loaded and ready to go. Dave has changed his flight from Omaha to Kansas City and I just have to find him. I've never been to Kansas City and I have no idea where the airport is, but Ash and I are going to give it a try so that we won't have to drive in snow and ice tonight. We plan on leaving Omaha around 4p.m. and arriving at the airport sometime between 7and 8pm. Dave will land at 8:40 and the three of us will travel through the night until we arrive home tomorrow.

Ashley's stool output continues to climb. Our goal pre-rejection was no more than 400cc in 24 hours. Post rejection our goal has been around 600cc in 24 hours working itself back to that 400cc mark giving her around 30-40cc/per kilo of output a day. 48 hours ago her output climbed to 1070cc. Yesterday she has 1250cc. Today she has already been stooling at a rate of 300 every 4 hours. Why is this happening? Two guesses. Viral infection or Rejection. With all of our immunosuppression changes over the last week and half she has gone from too much coverage to almost none and we are still adjusting the levels trying to find a good balance. What are my options? We can sit in our hotel room and replace fluids or we can sit at home for the next few days and replace fluids. We have decided to make the trip knowing that with ANY changes in her respiratory status we will jump on a flight and return. Please, please pray that she will remain stable. She looks great! She is happy and playful. Her labs look better than they have in weeks. Her numbers are handling the loss of fluid and its replacement very, very well. Also would you please pray that she might not be back in rejection. As always it is something that hangs out in the back of all of our minds. Especially with high stool output. I have talked to our transplant team several times today and they want to do nothing but watch her for the next few days, so we will overnight her lab work each day and watch.

Nobody ever promised us that transplant life would be easy. In fact we found out early on that it is anything but that for some. We just happen to be counted among that "some". We are still blessed. Daily I look into her sweet face and thank God for her life. She is the sweetest little girl and I am so grateful she is with us. So we step out in faith today. Trusting that this privilege has been a gift from the Father to our family and hoping to make some precious memories with the precious lives we get to parent. God has been good to us. Talk to you guys soon. Love, Trish

43 Comments:

At 1:28 PM , Blogger camille said...

Sounds like a plan. I'll be praying you find the airport and your hubby without any problems and that you beat that winter storm HOME!!!

 
At 1:30 PM , Anonymous Anonymous said...

So glad you aren't going to have to make the drive alone the whole way! Also, you'll find the KC airport very easily, and you won't have to set foot in KC itself at all. The airport is about 20 - 30 miles out of the city, and you'll come to it first... so you shouldn't have to battle a lick of traffic. It'll be smooth sailing! :-) There aren't a lot of fast food places other than maybe St. Joseph, MO, to get off and grab a Diet Coke, so stock up before you leave!

Hope you have a wonderful time, and that being at home does wonders for both of you!

Brenda

 
At 1:38 PM , Anonymous Courtney said...

Praying that you make it Kansas City safely, find the airport and that the rest of your trip is wonderful!!

 
At 1:45 PM , Blogger Carey said...

Have a safe trip. You all are in my prayers. Im so glad to hear you are able to get away.
Do you have a GPS? We just got one this past weekend, and they are very handy for road trips.

 
At 1:45 PM , Anonymous Cari said...

Wow! Definitely a memorable weekend! Praying for safe travel...and that you find your hubby in KC! : ) Enjoy your family. Ash will continue to be covered in prayer.

-Cari in Arkansas

 
At 1:52 PM , Anonymous Jule White said...

I will be praying for safe travels and for a wonderful couple of days home. I know it will do all of you good. I am so happy that Ashley is feeling good and happy.

Take care! Your family will be prayed for so don't worry about us - just enjoy your time.

Sending much love!
Jule White

 
At 1:56 PM , Anonymous lori said...

Praying for safe travels! We are thankful that Ashley is feeling good.

Blessings,
Lori

 
At 1:59 PM , Anonymous Anonymous said...

Still praying..praying for you to make it safely and beat the storm. Praying for Ashley!! Praying she is not going into rejection! Again ya'll have a safe trip! May Jesus guide you all in the right direction and keep Ashley stable so that you may go home and enjoy your family!
~Okla

 
At 2:11 PM , Anonymous dee buchanan said...

Praying for safety on the road, and safety for Ash's health. Praying, praying, praying.....

 
At 2:15 PM , Blogger Gretchen said...

Dear Lord, I ask you to cover Trish, Ashley and Dave with your traveling mercies. Please prepare the way ahead for them, Lord, not only to go home, but for all You have in store for them. Thank You so much that this pass is possible. I pray that you would care for all of the details of Ashley's health, and that her stool output would miraculously decrease. I pray and praise in Jesus' name. Amen.

 
At 2:25 PM , Anonymous Anonymous said...

Have a safe trip. Be careful and I will pray that Ashley holds up and is not in rejection. Enjoy your trip! Corey

 
At 2:49 PM , Blogger Laurie said...

You and Ashley ARE flexible and quite a team! Praying the airport is easy to find and Dave is right there to greet you two. Praying for her output to slow down to normal and for absolutely no rejection. I trust the Lord with her life completely and ask Him to make your trip home a blessing and that she does remain stable. I pray for your heart to remain calm and peaceful as you step out in faith and put your trust in Him. Your family waits with lots of love on the other end of this drive. God be with you Trish.

Laurie in Ca.

 
At 2:52 PM , Anonymous Anonymous said...

Praying for safe travels and that you find the airport in KC without any problems.Also praying that you Dave and Ashley beat the winter storm and arrive safely where 2 very excited kids..and extended family will be waiting with arms wide open.God Bless..Karen

 
At 2:56 PM , Blogger Heather said...

Have a great time! You can't miss the KC airport exit--good luck finding Dave!!

 
At 3:20 PM , Blogger CrownLaidDown said...

Praying as you drive...as you look for the airport and as the weather patterns wil hold steady to get you safely hone tomorrow. Praying for you all!
Love in Jesus,
Holly

 
At 3:31 PM , Blogger Candy said...

Praying for you all to have a safe trip and Ash not in rejection. Hope you have a wonderful time at home. Ashley always seems to get better when she is with her family. God bless and be safe.

 
At 4:07 PM , Blogger ManyBlessings said...

Stay safe. It's supposed to be a whopper of a storm. I will be praying for your safe travels.
d

 
At 4:51 PM , Blogger Elizabeth S said...

I will be praying for you as you travel!

 
At 6:30 PM , Blogger Haylee Gabrielle said...

praying for your drive RIGHT NOW! you go have fun, make some memories that'll last a LIFE time.

hugs,
Melissa

 
At 7:07 PM , Blogger Sheila said...

You have been in my prayers all day.

 
At 8:48 PM , Anonymous Janiece Baldwin said...

Still praying for the stool to decrease to a normal level and that there is absolutely no sign of rejection.

You should be at the K.C. airport by now and Dave should be there very soon.

I pray that God will hold back any storm that would be in your path on your way back home. May His arm of protection hold the three of you during your journey.

May all 5 of you have a great time together and that you do not have to cut that time short~~~Praying you home for Christmas
Love and prayers~~~Janiece

 
At 1:29 AM , Blogger Kourtni Knobel said...

I have got to tell you I have been reading your blog for the past few months and I have never known what to say but after reading your blog today I have got to tell you I cried with joy! I can't tell you my heart just had this like weight lifted off of it for your family and I am so happy for you! If there is anything I can do for you or your amazing beautiful family please let me know!

 
At 6:22 AM , Blogger By the grace of God ... said...

From Omaha to Kansas City -- its pretty much a straight shot and the airport is an easy find. I had to work last night and didn't get to check your blog -- I am in Kansas City area. Praying for a wonderful time with Ash doing AMAZINGLY well ... and you enjoy yourself as well.

 
At 7:43 AM , Anonymous Anonymous said...

Go for it...life is short...safe travels.

 
At 8:57 AM , Anonymous Anonymous said...

praying doe you guys. I hope you have the best visit! ~Chan~

 
At 1:01 PM , Anonymous Hope said...

jurev0t-0-taaaaaaaaaaaaaaaa

 
At 7:39 PM , Anonymous Anonymous said...

hoping you made it to Texas safely and Ashley is thriving at home with her family!
You enjoy a few days "off", to say the least!
Megan

 
At 12:08 PM , Blogger Lesa said...

I have been following for a while now. I was just thinking about you and your sweet family and hoping you arrived safely and are making sweet precious memories with your family. I look up to you so much. Your strength really reminds me to be grateful for my blessings even when I am having a hard time. Enjoy your family!
Lesa

 
At 9:48 PM , Blogger Laurie said...

Hi Trish,

Just stopping by tonight to let you know I am thinking about and praying for you while you are home. I hope this time is a wonderful, heart filling time with your family. Decorating and celebrating what is to come is so precious, I pray it is more than yours and Ashleys heart can contain. Praying for miracles, this time home being the first, and with all my heart, hoping by Christmas, the next. Love you Trish and enjoy and cherish every moment you spend there.
Love, Laurie in Ca.

 
At 10:43 AM , Blogger Sun said...

I have had a friend with us this weekend and so am SO blessed to come back to your journal and read these last few posts! I pray that the time at home is/has been amazing! Much love and prayers - Sunshine

 
At 1:07 PM , Anonymous Anonymous said...

Trish & Dave,

I have sent a package, which is to be delivered to the Longview address either Monday or Tuesday via US mail. I thought maybe you could use "a little Christmas, right this very minute ..." I wanted to be sure you knew it was coming, since it would be too big for the mailbox!
I pray you are having a blessed time at home!

 
At 1:42 PM , Blogger Amy T said...

I pray y'all made it home alright and are right now enjoying each other to your heart's content (if that's possible).

 
At 4:00 PM , Anonymous Jen from Iowa said...

I hope you had a wonderful weekend. If by chance you read these comments before you treck back, here are some winter driving tips from a midwestern mom.

If the roads are slick, put it in neutral before you hit the breaks to slow down. That way the engine isn't trying to push you forward.

Turn into a slide, so your tires have a chance to catch traction. Its not a normal reaction you'll have, but its the right one.

Intersections are usually the worst to start from a stop at because of the slush that accumulates, so try to stop well before the intersection so you don't slide through it, and to help you have more space to get going again.

Good luck sweetie, winters are a chore, and I hope you and your little pickle don't have to spend too much time in it before you can be home for good. Prayers for you all!

 
At 7:57 PM , Anonymous Anonymous said...

Hi Dave and Trish!

Okay, I admit it. I have checked this blog so many times this past few days looking to see how you made it to Longview - the reaction from the kids - the lights - the sounds of an early Christmas!

I am praying.

 
At 10:13 PM , Anonymous dee buchanan said...

Bet you all are having a blast! I know you're enjoying every minute of the wonderful gift you have been granted. Praying for health and safety and LOTS AND LOTS OF FUN!!!

 
At 11:37 PM , Anonymous Janiece said...

Well,it's Monday nite @11:20P.M.
just so you will know what day this is posted.
I have only been home about 20 minutes as I helped "undecorate" our King of Kings tree at the FLC then helped others with theirs. The Festival in the Forest was a huge success again this year which is good because it takes lots and lots of work to make it all happen.
I think we had more people come thru than we've ever had before on a Monday night.

I just wanted to check in again but I'm sure that all of you have had such a great time just being together again at home. I just bet you have transformed your home into the spirit of Christmas~~~probably in record time.

I just pray that everything has been O.K. with Ashley ~~~no real issues to cause any problems for her. Hoping her stool has decreased to a desired level.
Just know we are still praying~~praying that when you return to Omaha that you will have safe travel and that after any testing that needs to be done, the medical team will give you a "get out of Omaha pass for Christmas".
Love and prayers~~~Janiece

 
At 6:30 AM , Anonymous Anonymous said...

Trish,Praying that your trip home with Ashley is everything you wanted it to be..knowing some very special memories are being made. Praying for safe travels for your return trip..God be with you each mile of the way.Praying always..God Bless..Karen.

 
At 6:53 AM , Blogger ManyBlessings said...

Just stopping by to pray a minute. Hoping you are all having a wonderful time together and that Ashley is doing well.
d:)

 
At 9:23 AM , Blogger Dee Dee said...

Hmm...no news means (prayerfully)... good news?

 
At 2:38 PM , Anonymous Kathleen said...

Hope a wonderful time was had by all! Praying that Ashley is doing better and you have a safe trip back with good driving weather.

 
At 3:45 PM , Blogger Sarah's In the Midst of It said...

Just checking in on you to see how your time at home went. I drove by the sign to Longview on my way in to Canton Friday and thought of you--I hope all is well with you and Ashley.

 
At 5:58 PM , Blogger Amy and Kyle said...

Hi Trish - I too have been checking constantly on you guys. I cannot wait to hear of all you guys got to do as a family! I certainly hope and pray this time that you guys have had at home has done your hearts AND your health good. I can't imagine any better "medicine" than to be able to spend some time with your family.

Hoping and praying for a very safe trip home.

God bless...
Amy and Kyle

 
At 6:30 PM , Blogger Sun said...

I have checked this site a TON to see if there was a post - but am SO glad that you are getting time with your family and pray that no news is great news! Many prayers for you all - Sunshine

 

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