No Answers or New Ideas

The films we took today indicate that all is well with the J-tube. I had hoped we would find an issue with it and know that this was the problem. Other than our and our doctors suspicion that it may be interfering with the normal flow of peristolisis we can see no indication for pulling it today. She continues to be fussy and not her happy, smiley self, but other than that we have no "proof" that anything is wrong. So we will not change our current plans for labs on next Tuesday and an appointment in Shreveport on the 29th unless she spikes a fever. If that happens then everything will be moved up immediately.

Our main concern is the increase in vomiting and daily headaches. She has been throwing up since the last week in September, but the volume of what is coming up has increased. She isn't losing any formula or calories because of the placement of the J-tube, but the gastric content is causing her discomfort as it comes up. You can tell it must be burning or irritating her throat because she cries and throws herself backwards whenever it happens. She is currently on Prevacid because her Prednisone has a side effect of causing stomach ulcers. So there isn't much more that can be done for the irritation of the vomiting. I just wish it would stop. When vomiting was the first sign and first symptom we saw of her episode of rejection it makes it very difficult to sit back and think that all is well and that this is just normal for Ash.

If you were to see her today you would think she looks great because she really does. We are really thankful for that, but at the same time we know her really, really well and she doesn't feel good today. I am hoping she is just having an off day and that nothing more is going on. For now that is all I can do. I just wanted to update everyone and thank you for your prayers.