Ashley's Story

She will leave fingerprints all over your heart

2/04/2008

You couldn't either!

Well, its 10:25p.m. and we are finishing up a new episode of Blue. Why? Because I couldn't look at her eyes and this little face for another moment without giving in to her pleading. Don't judge... because I know you couldn't either! You may think you are tough( I used to think I was), but she wears you down with those big brown eyes. While I type she claps and giggles. She is SO happy I finally gave in.

She has pointed and grunted and "asked" to see it all day long. I distracted her with books and toys and laundry for most of the day, but I'm tired and she is too. So...here we sit hoping she will drift off to sleep in the middle of the next one. Even though I know she won't a girl can still dream cant I?

She struggled with headaches for most of today. A new side effect from one of her meds(we have no idea which one). She didn't feel like doing much of anything. She felt so bad she even allowed Mrs. Sue to sit on the couch without putting up to big of a fuss. I'm not sure what to do about the headaches, and we aren' t sure why they are just now surfacing. Other than that and her "normal" vomiting episodes she made it through today. Still no interest in eating anything. Feeding therapy is tomorrow. I think we managed to get about 4 bites of baby food into her mouth over the last 6 days. Not real impressive, but better than nothing. I'm hoping tomorrow will be the day she decides she's hungry.

We have a couple of prayer requests to share with you tonight. 2 of our transplant friends are in the hospital and neither one of them are feeling too good. Lots of things going on with both of them and I won't be able to share the details with you, but I am still going to ask you to remember them in prayer. They are both 2 years old, just like Ash and they are both in local hospitals near their homes hoping things don't progress to the point of needing to return to Omaha. My heart aches for them and for their mommies. It is such a tough, tough road. There are days when you literally feel as if you won't be able to take another step. One thing we are able to do for each other is truly understand. We've walked similar paths and we've stood in each other's shoes. Transplant life is rarely easy. Tonight I am praying for both families and hoping for answers to come quickly for the sake of their sweet babies. Please join me as I pray for my friends children. Because of each one of you I know what difference it makes when you can feel people praying for you.

Well, Blue is over and the gherkin is fussing. I'm going to try and convince that little face to close her eyes because mine are trying to close themselves. It was a long day, but still a blessed day. I'm hoping to get a chance to visit with Dave for a few minutes before he starts snoring. Wish me luck. Goodnight my friends. Trish

2 Comments:

At 11:17 PM , Blogger Dee Dee said...

Headaches? Is that why she was hitting her head repeatedly yesterday? Praying for you all.

 
At 11:39 PM , Anonymous Anonymous said...

Oh Trish - I would be like putty in her hands! She is just precious!! I would be saying 'you want to watch Blue again?...Ok, baby!' I don't blame you a bit!

I am so glad that Ashley is home with you guys and not in the hospital but just as you have been a huge inspiration to us, God is able to use you with these other mommies. Not very people can truly say they understand...you can. And after reading Ashley's blig for over a year now, I can truly say that if I needed to talk to someone and know that they truly "get it," it would be you. I think that is another blessing!

I am curious, and I hope I do not offend, but when you say she has really bad headaches, how do you know? Do you think that is why she is hitting her head or pulling her hair? Is that how she lets you know? I truly hope I don't offend you by asking, I was just curious. Also, I know that you have mentioned and your mom has mentioned that Dave can adjust you guys and it will get rid of a headache or an illness. Would it be a possibility for him to do with a child as young as Ashley?

Still praying....God bless..

 

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