Ashley's Story

She will leave fingerprints all over your heart


Worth the Wait?

I am experiencing technical difficulties and I know it is only happening because I said I would share pictures with you this afternoon. I have been trying forever to get them to post and this is the only one that has worked so far. For some reason blogger isn't allowing me to post multiple pics today. This isn't even the best one. It just happens to be the only one this silly computer will accept for now. So here she is. Sitting and reading books while watching Blue this morning after her bath.

I know her daddy has been standing in line to see her playing in the pictures today so he will definitely not be disappointed that only one will post. I'm sure he will think that it was "worth the wait". I will continue trying to figure out what is up with my blog, but if I can't get it to work then you will just have to forgive me.

Ash is able to sit without support for about 45 seconds. This is actually a huge accomplishment after being flat on her back for 13 days. I was so proud of her. Her body was really shakey and she was afraid to lift her head up, but she actually put her hands on the bed to help stabilize herself. We have been "practicing" several times today and she is now resting from all her hard work. I am hoping it wont take too long for her to regain her strength once she is off of the ventilator. Her rate on the vent is down to 6. This means the machine is only providing 6 breaths per minute for her and she is doing all the rest on her own. From my count she is taking 8 or 9 shallow breaths and then she gets one big breath from the vent and then the cycle starts again. She is really, really close to doing it all on her own. The silly thing is that she was on a rate of 4 before we attempted extubation Sunday and she was doing great. That is until we took the vent away and then she tired out and couldn't keep it up. I think they are going to try again this weekend. All of the data tells us she should be successful, but thats what we thought last weekend as well. I guess after seeing all she went through Sunday I am just a little nervous about trying it again. Like the doctor said, "We won't know for sure is she will be successful until we remove it and she proves that she is. Failure is just the risk that has to be taken."


At 3:44 PM , Anonymous Anonymous said...

She looks good playing..... that is such a PRAISE picture...considering the arrival to Omaha this time... Praying for better days ahead....back at home giving her therapists heck. (= She is one strong spirited little pickle ...& a testimony of God's faithfulness in countless ways... Praying...


At 3:46 PM , Blogger camille said...

Great pic of Ashley! That's really great about the ventilator. I'm praying for continued progress.

At 3:49 PM , Blogger CrownLaidDown said...

You go, girlie! Yay!

Praying for Ashley today. Also praying for blogger to allow more pictures for your family soon!

At 3:51 PM , Blogger hennhouse said...

Bless you.

Still praying.

At 3:52 PM , Blogger Laurie said...

What a sweetie pie. I am praying for her to build up her strength for the weekend when they try again. If it does not work, it is just that she is not ready yet, not failure. Praying for healing to continue at her pace and the Lords. She is looking so good.

Laurie in Ca.

At 3:55 PM , Anonymous Anonymous said...

What a wonderful picture. She looks so good!

At 4:05 PM , Blogger Tink said...

WOW, she looks Terriffic!!!
she is getting stronger by the minute! Go Ashley!!

Brightest Blessings to ALL..

At 4:22 PM , Anonymous Anonymous said...

Sooooooooo cute. What a marvel God has made in you. Love you.
Robin in Florida

At 4:23 PM , Blogger My Pride and Joy said...

Awesome picutre of the little pickle! She is so beautiful and so easy to love that is forsure. I am continuing to pray for her quick healing and miracle!

Kim (WI)

At 4:24 PM , Blogger Colleen said...

Beautiful picture! Look at her watching Blue! Cooool! Oh, hug her and squeeze her and tell her that we're praying for her!
Colleen in NY

At 4:31 PM , Anonymous Anonymous said...

Praying for you all today! Love the picture.

At 4:33 PM , Anonymous He gently calls us said...

Ashley is looking great and hopefully all these issues will resolve soon so she can go home. Meanwhile, we are still praying for all of you.

Also, one possibility about not being able to upload photos -- I have learned that if I still have the "upload a photo" window open from a previous upload, I can't upload more photos until I close that window. When I click on the little picture box to upload a photo, nothing happens. I was really frustrated for the longest time till I figured out that I need to close that leftover window before anything will work again. The issue might be something totally different, but thought I'd pass on my experience with" photo block."

Thanks for the photo. Photos really are worth more than 1000 words--and that smiling one from yesterday is priceless.

God bless you all.

At 4:38 PM , Anonymous Anonymous said...

What a beautiful sight!!! I couldn't be more happy for you and Ashley and your wonderful family. I will continue to pray, pray, pray. Lots of love to you all. God Bless...Leigh Ann

At 4:53 PM , Blogger Anne said...

I check in on Ashley daily, but don't comment much. Today, seeing that precious picture of her playing, I just had to say "Beautiful!"

Praying for you, Trish and Ashley!

At 5:19 PM , Anonymous Anonymous said...

Hi Trish,

I've been following Ashley's story since I followed a link here a couple of weeks ago. I'm not a Christian, but I'm a mother, and my heart aches for you and Ashley. If anyone is critical of the choices you've made, they either don't have children or they haven't followed Ashley's story closely enough. I've gone back and read some of the older posts, and it's clear to me that at every step of the way there has been reason to hope that Ashley would recover. I've asked myself if there was any moment at which I would have done anything differently, and the answer is no. Where there is hope, you cling to it, and pray to whatever spiritual force you believe in, be it internal or external, for the strength to carry on. My heart is with you. Your other children will be strong, independent, compassionate people--don't listen to the naysayers. You are living through a mother's nightmare with grace and courage, and I would send you all my strength, if it were possible.


At 5:32 PM , Blogger Davis family said...

absolutely worth the wait. Wonderful picture. Still praying for you all.

At 5:49 PM , Blogger Betsy McK said...

Go Ashley Go!!! You are one strong little girl :o). Keep those beautiful smiles coming.

At 6:05 PM , Anonymous Anonymous said...

Hooray for Ashley!

That's great she's able to sit and be able to do a few things. I keep her in my thoughts, and will continue to ask for strength, and healing for her.

At 6:12 PM , Anonymous Stephanie - KCMO said...

Seeing a picture of Ashley is always worth the wait. Thanks again for sharing. Praying for that yuk to disappear again, for healthy and strong lungs so she can get off that vent. Love, Stephanie

At 6:47 PM , Blogger Melony said...

Ashley, you are one tough cookie!! Keep fighting...

At 6:52 PM , Blogger The Adoption Of William said...

Wonderful! It is so nice to see her up and awake! What a doll! Way to go Ashley!!


Jen-William's Mom

At 7:16 PM , Blogger Wendy said...

As a Physical Therapist I am sitting here CHEERING for that 45 seconds. Yay, Ash!!!! She is an amazing little girl...I'd like to clone her determination...Actually, I'd like an entire caseload of little pickles with her spunk and desire to get better. Love the photo - and still sending her my prayers!

At 8:08 PM , Blogger Shari said...

She looks so good! What a miracle she is! She's such a trooper! Love her to pieces.

This is what my little one wants me to tell you (typed how he says it). "I wuv you Ash-wee. I'n payin' for ya. Peez det well. Dod wuvs you. I pay ev-u-wee day."

Isn't that just adorable? I love him so much!



At 8:33 PM , Blogger The Dean Family said...

Happy to hear the good news. Continuing to pray!

At 8:56 PM , Anonymous Anonymous said...

How are the birthday plans coming along? Just curious

At 9:03 PM , Blogger cindy/barron said...

Ashley you are a cute pickle keep up the good work, and we will keep the prayers going

At 9:08 PM , Blogger Sun said...

ABSOLUTELY worth the wait! I LOVE it! She looks so good - thank you again and again for sharing! Sunshine

At 9:14 PM , Anonymous Anonymous said...

Look at her sitting up....wooo hooo!!!!

At 9:15 PM , Anonymous Anonymous said...

This message is for Mary left a message on this post....I pray you will read this & it might mean something to you. I only post this because I care about you even though I have not met you. I want to know that you will be someone I will meet in Heaven one day even if we don't meet here on earth....& the thought of not sharing God's word with you is just not an option. I know how I felt when I made this decision....It was like a weight lifted ....& a purpose was given to my life....I pray you will read this & I am praying for you now....:

I wish I could visit with you about your spiritual beliefs. That I could ask you who Jesus is to you. Ask you if you believe there is a heaven & hell. That if you died right now....where might you go.....if I could only ask you that. If I could ask you..... what you believe it takes for a person to go to heaven....& if I could share some verses with you...( If that conversation were possible....I would ask you to read these verses....& I pray that you will see these references & take a look at the following:)
Romans 3:23 "All have sinned..."
Romans 6:23 " the wages of sin is death..." John 3:3 " You must be born again..."
Why do you think Jesus came to die?
John 14:6 " I am the way..."
Romans 10: 9-11 " If you will be saved"
2 Corinthians 5:15 "Those that live should no longer live for themselves.."
Revelation 3:20 "I stand at the door & knock"

Are you a sinner?
Do you want forgiveness for your sins?
Do you believe that Jesus died on the cross for you & rose again?
Are you willing to surrender your life to Christ?
Are you ready to invite Jesus into your life and into your heart?
Lets pray:
Heavenly Father, I have sinned against You . I want forgiveness for all my sins. I believe that Jesus died on the cross for me & rose again. Father, I give You my life to do with as YOU wish . I want Jesus Christ to come into my life & into my heart. This I ask in Jesus name. Amen

Mary or anyone who may have read this & made a spiritual decision ...please acknowledge that to Trish & Dave or in that we may Rejoice with you in your decision & welcome you into the kingdom of God....& help you find a place to worship...

At 9:15 PM , Blogger Elizabeth said...

Thank you so much for sharing! I couldn't wait to get home and see this picture! I am still praying and always will!

At 9:20 PM , Anonymous Anonymous said...

God Bless you Ashley Kate!

At 9:24 PM , Anonymous Anonymous said...

what I would give to be there and give her a hug...she is so precious. we are still praying in central il

At 8:34 AM , Blogger Dkswife said...

What a precious little girl. It is good to see her sitting up! Continued prayers are being sent your way!


At 6:04 PM , Anonymous Becky said...

I have been following Ashley's story for a few weeks, but have not commented. I think about her all the time and check her blog every time I have the opportunity. She looks so BEAUTIFUL in this picutre! I am praying for her all the time and praying especially now as you all travel and try to fight off the flu.

At 1:09 AM , Blogger Dianne said...

She is adorable! Just look at those bright eyes . . . how could anyone not love her??? Still praying for you and your family. Hope Ashley is able to get off the vent soon. Caught up reading on the blog . . . have a great time at home and trust God with the rest.


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