Ashley's Story

She will leave fingerprints all over your heart



It never ends. We scope. Her bowel stops working. She is in a lot of pain. We wait it out in hopes that the nuemetosis infection won't set in. We hold our breath. Its an ugly, ugly cycle. Her bowel is so sick that each time they enter it we have problems. Once again her tummy is growing, she is having no output, and the loops of her bowel are grossly distended. She moans, and moans in pain as she waits for it to begin working again. The most unfortunate thing is that we will be scoping her multiple, multiple times in the coming weeks.

We desperately need some sleep. How I wish we could sleep, and sleep and sleep without interruption. They are giving her Lortab for pain, but it is only lasting about an hour at a time. Then we wait for 5 more until she can have the next dose. So currently she is sleeping one out of every six hours. I am so tired I'm having trouble composing my thoughts.

We are back to the place we were in Friday evening. No stool. It lasted until Sunday morning. It was a miserable couple of days for Ash. Each and every examination is painful. To touch her tummy causes tears to fall from her eyes. She shakes her head no, no each time some one approaches her. I hope this time it passes quickly for her. We have hooked her back up to suction and are trying to decompress her tummy again through her stomach. So far it has not worked. If it doesn't then I don't know what will.

I so badly wish our baby was in her crib back home in Texas. I really hope and pray that this will all end and we will be on our way home some day soon. Her daddy misses her terribly.

Thank you for sticking with us. I realize how difficult it is to follow her journey. There are lots and lots of tears on the bad days, but there are lots and lots of smiles on the good. I'm holding out hope that our good days are come again. Your time here is appreciated.


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