Ashley's Story

She will leave fingerprints all over your heart

2/16/2009

Plan of Attack

After talking to every one today, all of the decision makers in Ashley's medical care, we have decided to stop her tube feedings and to place her on full TPN and maintenance fluids for the next 48-72 hours. The vomiting and its potential to cause her lungs such harm is just too risky. Her lab work shows signs of a struggling liver, probably because of the virus that has invaded, the beginning signs of dehydration, and a panic value of low sodium. Everything is a little out of whack because of what she is losing while vomiting and her lack of ability to keep anything down long enough to absorb nutrients. In addition to these changes we are doubling her breathing treatments and adding a cough suppressant to the mix in hopes of giving her a little break from all the coughing. Her lungs sound clear and she is maintaining oxygen sats at 96-97%. Thankfully she remains fever free and we will remain here in our home. There is nothing that can be done for her in a hospital setting other than what we are doing here and so the only difference in her course of care would be the location. She's obviously more comfortable here.

Basically she doesn't have the ability to kick this thing and the lingering of it is only making other things worse for her. She hasn't been awake at all today after being awake for most of last night. She doesn't feel well and I'm hoping that making these changes for her will help that to change sooner rather than later.

Thank you for remembering her in your prayers.

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