Busy Morining
The liver team and surgeons just made their rounds. They let me know how concerned they are with Ash's white blood cell count. It began to rise again and they are wondering if they should take her back into surgery today. They will be drawing a new set of labs at 2:00. Based on what they find they will either do a CT scan or we will go back to the OR. At this point the infection has not grown out into the blood, but they fear that it will. Ashley is trying so hard to be sweet, but she just feels so yucky. The doctor told me that all of the steroids and anti-rejection drugs make them feel grumpy. Ash is throwing off all of her blankets and pulling off her gown. I believe she would like to be naked, and I am really o.k. with that. Whatever makes her comfortable at this point
The surgeon just passed me in the hallway and squeezed me on the shoulder. She gave me a little grin as if to say I know this is a hard day. If she feels she needs to reach and try to comfort me or reassure me than I am really feeling nervous now. Please God take care of my baby today.
They plan on scoping the intestine in the room today for the first time. They will take seven biopsys to check the cells. Before they can do this she will have to have more platelets. Something is going on with her blood. She is requiring alot of transfusions the last few days. I pray we don't need surgery, but on the other hand if we do I hope they make that decision in time to fix whatever is causing Ash trouble.
We are trying to keep Ashley distracted from the pain by watching DVD's. Last night she saw her Daddy on the movie holding her and she tried to give a tiny wave. It made my heart smile to see her recognize him and I know she misses him. She loves to watch Blues Clues now and her Dad bought her one before he left. I hope he sends more soon because I have seen this one a few too many times and it is makeing me a little crazy.
Ash is fighting hard and you would all be so proud to see how tough she is being. I admire this little person' s strength and sweet spirit. I hope I can grow up to be more like my Ashley someday. Please pray for my sweet girl today, I think it will be a long one. Love you guys, Trish and Ash.
1 Comments:
It is beyond humbling what we learn from our children and that our Father in Heaven cares enough for us to let us be responsible for them for a while. And I think Ashley is learning a tremendous amount from you too. How to pray and to trust and to love. And she is teaching it right back to all of us! We'll be praying all day!!
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