Take me Out...
...I mean Home to the ballgame! I should have sold tickets to tonight's game. Dave and Blake have the Rangers game blown up on a projector the size of our living room wall. The players are as large as life and its not enough for these two guys to just enjoy watching the game. They have laser pointers to help them study and analyze each and every play. I assure you my eleven year old is loving every minute of it. Poor Ashley Kate doesn't have the ability to get up and walk away. She is happily sitting on her daddy's lap and listening to the play by play. Allie and I have retreated to our rooms.
Our sweet baby pickle has been a little sour today. She woke up with an attitude and nothing I did could help take it away. She refused to cooperate during PT this morning and as soon as it was over she drifted off to sleep. "Ok," I thought. "She just needs a little more sleep." Nope. Her sour attitude continued and when it was time for her nurse to come and start her cytogam infusion she still had it. With each and every set of vitals she crinkled up her nose and the tears began to flow. I guess were all entitled to have a bad day every now and then. By the time Dave walked in the door she had stopped her crying and was happily playing in the floor. When Dave sat down next to her she leaned in and gave him a big hug. Too sweet! Over and over again she loved on her daddy until she finally drifted off to sleep in his arms. I'm trying not to take it personal. Perhaps tomorrow she will wake with a sweeter disposition.
I've been trying to unpack and catch up on the piles of laundry from our trip. Somewhere along the way I have misplaced Ash's shoes. I have no idea where they have gone so she has managed to escape spending anytime in the stander. I never really noticed that she only had one pair of shoes until today. All a girl really needs is a good pair of keds (especially when you don't walk), unless your mommy loses them while traveling. Hopefully they will show up tomorrow.
I think Ash and I will be traveling to Omaha a week from Monday. It will be a repeat of last months visit. CT scans, oncology, and transplant. The only thing we will do differently is remove her central line. In just a couple of weeks we will no longer have to care for, flush, and protect the line that goes directly into her blood stream. After two years she will finally be free. We are very excited for her. Removing it will obviously be uncomfortable because of the length of time it has been there, but she will be much safer without it. Just another stepping stone in her story.
Well, its time to tuck the pickle into bed. Thank you for coming here today and for praying for our Ashley. Your time has made a difference in our lives and we will forever be grateful. Take care my friends and God Bless. Trish