Hanging on

This morning began with a hope that she would start to settle, but it has not yet begun. She is still fighting severe nausea and fever. Her skin color is jumping back and forth from hour to hour. Sometimes she looks pretty good, and then the next hour she is white. She has green bile pouring out her nostrils as well as into her ostomy bag and out of her mickey button. She can not stop vomiting. If this is a virus it is a nasty one. She continues to groan and bare down trying to cope with the cramping that is going on inside. She is so tired. Absolutely exhausted from all that has happened since Sunday.

This morning her doctor gave orders to begin and ounce of pedialyte every hour by mouth. We gave her a small drink just trying to test the water. All though her little heart was so happy to have her sippy cup her body has paid the price. She cannot tolerate anything in her tummy. We have drained her stomach of all content through her mickey but she continues to be sick.

We are hanging on here in Longview just waiting to see what they think we should do. I asked her doctor this morning if her believed it was still viral or if she might be in rejection. He still thinks its something viral that has gotten her so ill. At some point in the early morning hours she became overloaded with fluid and we were able to give a dose of Lasix. The lasix woke up her kidneys and she began peeing off the fluid. We are so grateful for that. As long as her kidneys will stay functioning then we will be able to stay. Her vomiting has not lessened up today and actually seems to be worse, but her ostomy output has drastically decreased. Again, we are grateful.

Dave came in on his lunch hour and curled up next to her on the bed and they both rested peacefully. Theres just something about being in her daddy's arms. Since he left she has become very restless again. It is extremely frightening to see just how weak she has become and how very ill she can still get. If this is truly just a viral infection then it is a nasty one. She is battling back ( I think) it is just not easy for her to do.

Please join us as we pray for clarity about staying or going. Our doctor here is in contact with her team of doctors in Omaha and we are trusting that the right descions are being made on her behalf. Thank you for your prayers. Trish

I apologize for the rambling nature of this post. I am just so tired that my thoughts aren't coming out clear. It sounds awful to me as I read it back, but I just can't make sense of my words today. I am also struggling with a very weak internet connection and have lost several of my attempts through the day. I hope you can make sense of some it it.