Ashley's Story

She will leave fingerprints all over your heart

10/15/2007

Back to the Drawing board

All of today's trouble was just a warm up of what tomorrow may bring. I can't believe what I am going to share with you now. In just two short hours Ashley's chest tube was pulled out. How? We have no idea. They ordered an x- ray to see how much fluid remained and by 9:30 the film showed that the drain tube was no longer inserted into her lung. I can't describe to you how frustrated and defeated I felt at that moment.



The resident came down and told me he wanted to remove the dressing in order to get a good look at the site. I refused. No thank you. She has been through enough tonight. There was no way I was about to let him remove that dressing, pull out those stitches and the tube. Not tonight. She is in no danger from it remaining under the skin and I would like for her to be left alone.




So now my sweet Ashley lays sleeping under her oxygen tent. Sleeping until they come in for another set of vitals. She has until 2a.m. and then up she will be once again. Under the tent she is at 98% oxygen saturation. The highest she has been all day. Her heart rate is lingering in the 150's and after a day like this that is a relaxed rate.



After speaking with the doctor who is on tonight I learned that the fluid is already re accumulating in Ash's lung. Where is it coming from is what I would like to know. They have no idea. The thought of putting her through this procedure again in the morning makes my head spin. I am so discouraged. They may take her into the OR in order to get a better look and better position. I don't even know what to say. I am numb.


Ash continues to run a fever and vomit. She has a nasty cough that seems to bring on the episodes. She just doesn't feel good tonight. I guess if I were looking for the positives from today's situation I would find: 1. We were able to pull of 200ccs of fluid. 2. We were able to avoid the ventilator(so far. The doctor tonight says he won't be surprised if she in on by morning). 3. God has blessed me with friends who are willing to go out of their way for me on what proved to be a very long and trying day. All in all we are still blessed.

I am so tired. My feet and back are hurting from standing next to her bed for 11 or so hours today. I have finally taken a shower and am now ready to sit next to her crib and try to close my eyes. I pray tomorrow brings us good news and not the expected course. Have I told you lately how very much we miss home? Ash and I want to go there more than anything. Tonight makes 4 weeks since she has been in her own crib in the nursery and 4 weeks since I have laid next to Dave holding his hand underneath our pillows. How I wish we were surrounded by Blake and Allie and Dave tonight. When I close my eyes I see their faces and I dream of being home again. Perhaps tonight will be no different.

46 Comments:

At 2:13 AM , Anonymous Anonymous said...

Our prayers are with Ashely and your whole family.

 
At 2:39 AM , Anonymous Anonymous said...

Tricia,
Just checking one more time before I go to bed (West Coast). I have been praying for Ashley Kate for some time now, and will continue to. I am so sorry.
Mary from Monterey

 
At 3:43 AM , Anonymous Anonymous said...

Awake and praying....
Wait for the LORD; be strong and take heart and wait for the LORD. Psalm 27:14
MaryBeth

 
At 5:29 AM , Anonymous Anonymous said...

I have only been following Ashley for a very short time, but I was moved to comment tonight.
I am praying hard here in Australia for Ashley to be able to relax & just heal.
Also for you, David, Blake & Allie for strength to get through this until you are all together again.

 
At 5:46 AM , Anonymous Anonymous said...

Still praying.
Beth

 
At 6:12 AM , Anonymous Anonymous said...

Continouously lifting you all up to our Father in heaven. Praying that you were both able to find rest last night and that this morning finds you in a better place.

 
At 6:14 AM , Anonymous Anonymous said...

Praying for you all.
Jill in Indiana, PA

 
At 6:23 AM , Anonymous Anonymous said...

We are praying for your sweet girl.
My year old son says that he hopes that nothing else happens to make her sicker and that she gets better soon. He'll keep Ashley in his prayers too.
From my sweet boy to your sweet girl.
We're praying,
Heidi in CT

 
At 6:28 AM , Blogger Sheila Lackey said...

People are waking up all over the world this morning and reading about Ashley Kate's night. We are shocked to see how things have become much worse.
God is not shocked. He was there and is there the whole time. He was not sleeping while Ashley was struggling to breath, and He is not sleeping now. Lean on Him!
He is what will get you through today. He is better than the air she breaths!
I pray that angels will surround that bed and provide a covering of protection greater than any oxygen tent ever could!

Keep Believing sweet Trish,
Sheila in Alabama

 
At 6:36 AM , Anonymous Anonymous said...

Trish,
I awoke this morning and ran to the computer for updates. Not the updates I was hoping for, however, Ashley is here. She is alive, and we can't forget that she is NOT in rejection!!! Praise God.

I pray that God gave you and Miss Ash rest last night, and that the both of you are rejuvinated for today's events. I pray those events move in the positive direction.

Praying, praying, praying!

 
At 6:42 AM , Anonymous Anonymous said...

Trish...(one more thing)..
I came across this awesome awesome guestbook at the Farley's site, which I also follow- and know you follow as well.

Anyway it's a really cool guestbook, so you can put faces with names, for those of us who haven't had the pleasure of meeting you guys yet!!

It's on their most recent post
http://conorbootheandgirls.blogspot.com/

 
At 6:43 AM , Blogger Joyful Days said...

I've not stopped praying here. Continuing to lift up many prayers.

 
At 6:58 AM , Blogger Dawn said...

Today my prayer is for answers for you. And for peace on this journey of pain.
d

 
At 7:00 AM , Blogger KimberlyDi said...

Poor sweet angel. Please, Dear Lord, bring her through this safely.

 
At 7:02 AM , Blogger Elizabeth S said...

I am so, so sorry. I am amazed that you find positives right now. I would not be so strong. But your strength gives me strength! Thank you. I will be praying for you today.

 
At 7:07 AM , Anonymous Anonymous said...

Praying. How I hope tomorrow will bring healing and hope and many blessings. We love you all.

 
At 7:13 AM , Anonymous Anonymous said...

God Bless her sweet little heart,she is fighting with all that she has. Praying that the days will get better, her fever will break, no vent, things will once again point to the positive. Continuing to lift the littlest pickle and her entire family in prayer. God Bless

 
At 7:17 AM , Blogger Paige said...

Trish,

I pray that this morning will bring you hope and joy. That the fluid will have cleared, and that Ashley will be hold her sat level. My heart breaks for you. I cannot even begin to fathom what you are going through and to do so without the physical support of those you hold so dear. I pray that you and Ashley will be home soon. Our love and prayers are with you all. Tell the little pickle that we love her and can't wait for her to feel better.

 
At 7:19 AM , Blogger Unknown said...

Praying praying praying

 
At 7:24 AM , Anonymous Anonymous said...

Continuing to pray for Ashley and your family.

Jill

 
At 7:37 AM , Blogger Laurie in Ca. said...

Continued prayers for you today Trish. May you have new strength today to be there for Ashley and get you through. Asking the Lord to keep your hope high and your eyes on Jesus. And for the Lord to wash over both of you with His complete peace and comfort for a better today.

Laurie in Ca.

 
At 7:46 AM , Blogger Sharon Brumfield said...

I learned about ya'll from Holly over at Crownlaiddaown.
I will pray for your little girl and you.I pray you see victory soon and your family is brought back together.

 
At 8:00 AM , Anonymous Anonymous said...

Will be praying today for both of you!

 
At 8:07 AM , Blogger ange said...

Praying for you and for your little pickle today!
ange (TX)

 
At 8:09 AM , Anonymous Anonymous said...

Yesterday in church, he preached about how Paul was able to sleep with such peace even during the night before he was to be beheaded, how God had given him such tremendous peace at such a difficult time because the saints were praying for him. You sound exhusted! I hope perhaps you can rest a little today while they work on Ash. I'm sure that sounds impossible - as it was for Paul. But perhaps if we all pray.....then you can wake refreshed to tackle this enormous situation. And Ash won't go unprayed for either. You are both covered continuously. (And the family bak in Longview.)

 
At 8:26 AM , Anonymous Anonymous said...

Trish, don't be so worried about how many procedures Ashley will have to go through. She will have to go through alot more procedures than this, and every one, or most every one is necessary for her to get better so that you both can go home. Don't be discouraged because they have to do this AGAIN, because at this point, not doing it will keep you in the hospital longer. Take it all in stride.

Hoping that Ashley is breathing easier and you both are sleeping a little better.

continuing in prayer....Praying for peace and encouragement.......

 
At 8:31 AM , Blogger Sunny Day Tag Girl said...

Still praying.

 
At 8:45 AM , Blogger Julie said...

Praying this morning for your sweet little girl.

Praying for a much better day for both of you.

 
At 8:51 AM , Blogger Amy T said...

You sound exhausted and Ashley looks exhausted. I am praying for you both. Praying that this morning brought a different picture, a different outlook (a much better one!).

 
At 8:55 AM , Anonymous Anonymous said...

Trish,

Lifting you and Ashley up today. May Jesus hold you both tight in His arms.

 
At 8:58 AM , Anonymous Anonymous said...

God bless both of you. I am praying hard that this morning brings new light to the situation.

Love, Jule White

 
At 9:00 AM , Blogger Sunshine said...

Praying - Sunshine

 
At 9:17 AM , Anonymous Anonymous said...

Praying for sweet Ashley and the entire family. Longing to hear some news this morning.
-Cari in Arkansas

 
At 9:18 AM , Anonymous Anonymous said...

Trish I know your exhausted....I can't possibly understand how you are making it ....other than...You are an amazing woman of FAITH....God leads you....He provides your "needs" ....He is there when your frustrated...when your sad....when you can't take it anymore....He is there. I know you know that. I wish I could change it all for you ....make Ash better....bring you home.... the only one who can do that is our creator. So, I will boldly go before Him as I do daily ....on your behalf...& pray for the needs you have shared....tell him of my hearts desires to see Ash well & you home. Nothing is impossible ...even when the world tells us that it is....God has the final say. His will be done.

Love in Christ...Sisters in HIM;
Hugs!
Suz

 
At 9:25 AM , Anonymous Anonymous said...

Keeping you in our prayers today! Hugs to you.

Lori

 
At 9:37 AM , Anonymous Anonymous said...

My thoughts and prayers NEVER leave you - I love you both, Grandma

 
At 9:40 AM , Blogger Holly said...

My heart aches with you with the missing home and the tiredness and concern.

Our family is lifting yours up in prayer continually, Trish.

Jesus be mighty over Ashley...heal her LORD! Amen.

 
At 9:55 AM , Anonymous Anonymous said...

Praying. So sorry things are so hard. You have been strong for a long time, and I know God is still there to provide you with more strength. He is still doing great things, and I pray this overwhelming time will soon pass and that baby will be on the road to good health again. Praying for wisdom for her medical team.

 
At 10:13 AM , Anonymous Anonymous said...

Oh Trish,

Praying for you today this monday morning. I will be back to check in. Even in your discouragement, don't lose the hope you have.

 
At 10:35 AM , Blogger Michelle said...

Ok, i am sorry for bringing this up folks and i DO NOT mean any harm!!! I am just wondering, how can we as a family believe in the power of the LORD if he constantly gives to Ashley but then just as fast takes away?? She was finally doing well and then her lungs fill up!! WHY??? Now she is in an oxygen tent??? Hasn't she been through enough? I am shaking as i am writing this because i feel so upset. How much more can Trish endure? Yes, she is strong, but we all have our breaking point. I do not want to see this happen to Trish. What can i do? Please, praying family help me to understand!
Michelle

 
At 10:35 AM , Anonymous Anonymous said...

Baby girl, Our Lord has the drawing board which He created the original perfect drawing of Ashley's life. He is using her perfect little soul for a greater ministry than any of us will ever know. He never makes a mistake with His creations including me and you. I am so thankful He allowed us a special time for tears and that when we can't go on He carries us all the way. I love you baby, praying for peace and comfort from His perfect will to wrap you and hold you in that peace that passth all understanding. Love mama

 
At 10:49 AM , Anonymous Anonymous said...

Trish, just wanted to take a moment and share something that might help you and sweet Ashley. I have just recently discovered www.klove.com and listen to it constantly over my computer at work. I can tell from your entries how much you love music and thought you might be able to listen to it over your computer as well. This radio station is so uplifting, encouraging, and positive. No commericials or negative news stories. Should you have any questions, please let me know. We love you. Kim Jarvis

 
At 11:05 AM , Anonymous Anonymous said...

Michelle,
What do you do?...you trust and believe God!
He is giving Trish and Ash grace that He is not giving us. He will supply ALL their needs! You have to trust Him!

 
At 11:07 AM , Anonymous Anonymous said...

Michelle, I want to try and choose my words carefully as I also was one who replied to your other post, speaking then thinking, and for that I'm very sorry. I quote this often..If the Lord brings me to it..he will see me through it. Sometimes things like the ups and downs with Ashley are the calm before the storm, not meaning it won't get better, I beleive in my heart it will.Does the Lord want to hurt Ashley? No!! But only he and he alone knows why each step of Ashley's journey is necessary for her healing. Yes it is upseting and it hurts you, me and all the others to see her and her family go through this horrible pain. All we can do is trust the Lord with all our hearts and continue to lift this sweet baby and her family up in prayer. I too am praying for your sweet mother, may she know how much she is loved by us all. God Bless...Karen

 
At 11:11 AM , Anonymous Anonymous said...

May the Lord of Mercy give some peace and comfort to both you and little Ashley in the midst of all this turmoil. May He reveal to the doctors, nurses, techs and everyone who has anything to do with Ashley's treatment, just what is going on in her little body and the best possible procedure to correct it. We know He is the Great Physican and I pray that once again He will so desire to show Himself through little Ashley.

I still pray for and am looking for yet another miracle.

 
At 11:19 AM , Anonymous Anonymous said...

Hi Michelle,
I'm Nan, Trish's mother. You are so special to our family in just the short time you have been with us. I hope to share with you where we are coming from with our personal postings. Our Lord promises to use the good and the bad in our lives "for the good of His children who have beleived on His Son as our savior", Romans 8:28, this my life verse that has brought me through the last forty years. The Word of God tells us saten is the prince and power of this world and is seeking to deviour us. We as God's children stand on promises of His Word. See Michelle, God did not take back the blessings He gave us yesterday, saten came in and caused more bad for our family. God is waiting to see if we look to Him for His strength and the comfort He promised us the Holy Spirit would bring us in times like these, or will we throw up our hands and turn to things of this world in anger. Our faith is in Christ only no matter what saten throughs at us. Little one, our Lord is in total control, He loves us and wants only good for us.Saten knows he has only a short time left to have his evil power so he is hurting Gods children as much as he can. God promises He will never leave us or forsake us and we belive this no matter what saten does to our family. We have the victory already through Christ His Son. Saten can hurt our flesh and even try our emotions at times. He can not touch my families souls which belong to God because my children and I individualy ask Jesus Christ to be our Lord and Savior. The Word of God says whoever confesses Christ with all their heart, mind and soul will become childen of God. This is what we stand on daily is the promises of God! In Christ Love Michelle I hope this helps you to understand how Christ brings us through each day.

 

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