We're a little dirty. A little sore. A little grumpy. A little tired. A little homesick. When I sat Ashley Kate up in her tent this morning I thought I heard her say, "Who signed us up to go camping?''
She isn't thrilled about the whole camping thing. Princess' don't camp. She wears hair bows, and outfits, and lacy socks. She doesn't lay naked under a tent with no hair brush. She just looks really ticked off to me. I have to smile about it otherwise we would start to cry.
I know the tent looks ugly and doesn't look like much fun, but it is a huge blessing. Ash HATES to have anything taped to her face. She won't wear a cannula or mask. Our only option to help her breathe during this ugly fluid episode is a tent or a ventilator. Guess who signed her up for this camping excursion? You guessed it. It was me.
She and I had a long talk this morning. She knows how much I love her, and she knows that I agree this stuff isn't fair. She also knows that if this is the road that leads us home then we are going to take it. I would rather not be battling respiratory issues again, but this is where we are for today and no matter how much I cry or stomp or complain it won't change. We might as well look at the positives and so far the biggest one is that she is still not on the vent. I'll take that any day.
The team has no rounded yet this morning. We do not know which direction we are going to take. I do know that at some point they will be removing the drain that is stitched into her chest and whether or not they place another one is yet to be revealed. I will let everyone know as soon as I can. Sweet Ashley Kate has just removed all 3 of her monitor leads and is now holding them up for me to see through the walls of her tent. Shes still Ash even if she is only working on one lung. I just love her! Uh, Oh the nurse is coming. I should go help her get out of trouble. Thank you for your prayers and encouragements. You are loved. Trish