Ashley's Story

She will leave fingerprints all over your heart

10/15/2007

Camping Out


We're a little dirty. A little sore. A little grumpy. A little tired. A little homesick. When I sat Ashley Kate up in her tent this morning I thought I heard her say, "Who signed us up to go camping?''

She isn't thrilled about the whole camping thing. Princess' don't camp. She wears hair bows, and outfits, and lacy socks. She doesn't lay naked under a tent with no hair brush. She just looks really ticked off to me. I have to smile about it otherwise we would start to cry.

I know the tent looks ugly and doesn't look like much fun, but it is a huge blessing. Ash HATES to have anything taped to her face. She won't wear a cannula or mask. Our only option to help her breathe during this ugly fluid episode is a tent or a ventilator. Guess who signed her up for this camping excursion? You guessed it. It was me.

She and I had a long talk this morning. She knows how much I love her, and she knows that I agree this stuff isn't fair. She also knows that if this is the road that leads us home then we are going to take it. I would rather not be battling respiratory issues again, but this is where we are for today and no matter how much I cry or stomp or complain it won't change. We might as well look at the positives and so far the biggest one is that she is still not on the vent. I'll take that any day.

The team has no rounded yet this morning. We do not know which direction we are going to take. I do know that at some point they will be removing the drain that is stitched into her chest and whether or not they place another one is yet to be revealed. I will let everyone know as soon as I can. Sweet Ashley Kate has just removed all 3 of her monitor leads and is now holding them up for me to see through the walls of her tent. Shes still Ash even if she is only working on one lung. I just love her! Uh, Oh the nurse is coming. I should go help her get out of trouble. Thank you for your prayers and encouragements. You are loved. Trish

28 Comments:

At 11:11 AM , Anonymous Anonymous said...

Awww..She is precious no matter what.!! Praying for an uplifting report from the Dr's..Praying..Praying..Praying. God Bless..Karen.

 
At 11:13 AM , Anonymous Anonymous said...

And you and Ashley are loved too Trish...You're right, she looks as grumpy as can be, but I'm glad to hear that her true spirit is still shining through. Continuing to pray that she will thrive today and continue to avoid the vent!

 
At 11:13 AM , Anonymous Anonymous said...

So happy to see she still has some spunk! still praying
Beth

 
At 11:13 AM , Anonymous Courtney said...

Oops that was me as anonymous....

 
At 11:20 AM , Anonymous Misty said...

She does look a little disgruntled doesn't she? She has that "Are you kidding me?" Look on her face.... Can't say that I blame her....Oh.. how my heart breaks for you guys....wishing I could be there and do something...what? I have no idea...but wanting to do more for you....Praying, praying, praying....Glad to see Blue reached you safely;) My little one must wait till "santa" visits...I wanted to let you know that I totally understand the blue fasicnation....two months ago..my little one liked to watch blue and even look at the books.......fast forward two months....HOLY COW!...we must start and end our day with blue...there are books in all the cars we own(and even the babysitters) and believe me...it isn't pretty if my "princess" doesn't get her daily dose of that little doggy..I have tried to limit her intake....but you know the reaction you get from that....not a pretty one....Anyway, I didn't mean to ramble...are there any other shows Ash likes? Jacks Big Music Show is one that Hadley likes and also the Wonder Pets? I know you have so much on your plate right now but if there is something else out there I would love to send her something else....still praying in Oklahoma;)

 
At 11:22 AM , Blogger Carey said...

She does look a little unhappy to go camping. Shes just an unhappy princess, and who can blame her. Praying she stays off the vent.

 
At 11:23 AM , Blogger Susan said...

Please forgive me for laughing so hard. The expression on her face is so precious and funny! Almost two years ago, I spent 3 days under a tent with my little girl. I know how she feels.

I pray that they are able to drain her lung. Also I pray that she will not require a vent.

Trish, I pray that you will have strength to make the decisions that are required of you, and that God will give you a peace that passes all understanding with each one. You are an amazing woman of faith.

Our thoughts, prayers and love are with you all.

 
At 11:32 AM , Anonymous Molly said...

Ugh! couln't they have a pink tent?

I would rather sit in a tent than have things taped to my face or stuck near my nose!

I am praying she is tent free and fluid free soon!

 
At 11:36 AM , Anonymous Anonymous said...

I love the "Frumpy" look - (Frustrated and Grumpy!) It is good to see she still has her spunk and wanting to be in control as Princess Ashley! You are both daughters of the KING! You will be in my prayers today as always,
Lou Ann

 
At 11:38 AM , Anonymous Suzanne said...

Give them attitude Ashley ...I love this spunky little princess. Praying for you Ash & your precious family. Lauren & Josh pray for you every day too. God is near....& He isn't finished yet. I pray for those who come to the pages of your story Ash....that those who don't know God will come to know Him by the Faith of this family & the prayers of those who ralley in prayer on your behalf. This world the sin...the pain...the illness....it is only temporary:

John 3:v.16-
"For God so loved the world that He gave His only begotten son, that Whoever believes in HIM shall not perish but have eternal life."

Jesus Calms the storm:

Matthew 8 v. 25-26 " The disciples went & woke him, saying, " Lord, save us! We're going to drown!" HE replied,"You of little faith, why are you so afraid?" Then he got up & rebuked the winds and the waves, & it was completely calm".

(Michelle)- Sometimes we have no words....no answers...no understanding of the happenings of this world....but Our Father in heaven ....despite what we see before our eyes....is in control. We just have to believe & have Faith in that which we do not see. God is near...he is a living God...& He is faithful.

Hebrews 11: v. 1 "Now Faith is being sure of what we hope for & certain of what we do not see."

 
At 11:45 AM , Blogger Elizabeth S said...

So sweet. I am glad to see her still not on the ventilator. I will pray that she doesn't ever have to go that route! Hang in there.

 
At 11:55 AM , Blogger KimberlyDi said...

She does look grumpy. I think it's a great sign that she has the energy to be annoyed.

praying praying praying

 
At 12:19 PM , Blogger Julie said...

Trish, I'm nominating you for mommy of the year. Ashley, Blake and Allie are so blessed to have you and Dave as their parents. I'm praying for a quick and uplifting resolution to the past few events.

 
At 12:38 PM , Blogger Sun said...

She does look like she would rather be ANYWHERE else but camping out - but oh how cool is it that she has been able to avoid the vent? What a blessing - God continues to POUR out blessings upon your family - it is amazing. I am continually praying for you and your family - especially that God's peace is the seat you each ride on the roller coaster that each day brings! Much love - Sunshine

 
At 12:53 PM , Blogger missy said...

I've been reading this blog for a few weeks now, but this is my first time commenting. I just finally had to tell you how incredibly inspiring you are to me. I know you are just doing what you have to do, but I honestly sit here in awe that you make it through each day without falling apart. Surely God has released a supernatural grace onto your life to get you through every second of this trying time!

By the way, your little Ashley is so precious. I've been sharing her pictures and story with my husband and you are both in our hearts and prayers. Bless you!!

 
At 1:16 PM , Blogger camille said...

I've been reading your blog for awhile now and can't imagine all that you are going through. We've been in the hospital a few times with our son, Connor, but not for longer than a day or two. I would really like to send something to Ashley. I thought about slippers or another book (I saw the I Spot book in many of the pictures). If/when you have a moment, email me at cjlakjer@yahoo.com

If you want slippers, LL Bean has the cutest toddler slippers ever! You can go to their webpage and do a search for toddler slippers. I got the animal ones last year for Connor and they were fabulous. Really well made and you can throw them in the washer. Let me know either way :)

 
At 1:18 PM , Blogger ManyBlessings said...

I love her little stubborness! The look on her face definitely says it all. :) She's got spunk that kiddo does!
d:)

 
At 1:38 PM , Anonymous Judy Pendergraft said...

You know what is so funny to me? Looking at Ash's "I am tired of this mess" look was so cute and so heart breaking at the same time, but I saw Glenda in Ashleys face. Ashley, you keep giving those doctors and nurses and your sickness that look and you will be home in no time playing with your brother, sister, mommy, daddy, grandmas and grandpas and everyone else who loves you.

Trish, as a mother I cannot begin to imagine what you are going thru. My daughter was in the hospital in September for 48 hours and they did not know what was wrong with her and it was the scariest thing I have ever gone thru, you and David have been going thru this for 2 years. You give this mother faith, strength, and courage.

My heart breaks for ya'll, I sit and I cry and I thank Jesus that Ashley is still here and still fighting and I think she has given us all smiles in our hearts and God is using her to move all of closer to him. Please know that we are praying and calling on every person we know and those we do not know for prayers. God Bless
Judy Pendergraft

 
At 1:41 PM , Anonymous heidi said...

I'm not a camper myself Ashley, I prefer home like you. You'll get there kiddo, keep the spunk going. Love your strength!!!
Trish - we love you thru & thru!
Prayers,
Heidi in CT

 
At 1:48 PM , Anonymous April in Colorado said...

This is the first picture of Ashley that really showed how she must be feeling. I can tell you that if I were in her tent, my photo would be much less viewer friendly.

Oh, Trish...how my heart goes out to the two of you and up to our Father!

Praying that rounds bring some positive words!

 
At 1:49 PM , Blogger Ellie said...

I'm with Ashley! Boycott Camping! :) Praying for her today...

 
At 2:02 PM , Anonymous Anonymous said...

It is good she is where she is the safest for execelent care. Be so grateful for this and that the docters want to look even if you do not want them to. I think Ashley Kate looks good in her tent. She is a strong little child. Nothing can keep her down and hopefully you can go home in a few days.
Still preaying for Ashley

 
At 2:10 PM , Anonymous Tiffany said...

Oh that Ashley. I love reading about her ornery side. It is adorable. Still praying for you and your adorable, grumpy gherkin. Praying she stays off the vent and for more uplifting updates!

 
At 2:15 PM , Blogger julie said...

That picture is so sweet. Hoping and praying things will turn around for her and you soon. You are a great mom. Hang in there just a little longer.

 
At 2:26 PM , Blogger Gretchen said...

I don't even know what to say, Trish. Except, I'm here. Praying and caring about all of you. love, Gretchen

 
At 2:28 PM , Blogger Pace and Sarah said...

I don't even know what to say! I didn't get to check on Ashley yesterday, and now I'm reading about lungs and tents and fluid! I am so sorry about the way the week has started, Trish, and I'm praying that once again issues are resolved and you're able to look forward to going home. Homesickness is the worst feeling, and I pray that you don't have to experience it for long, that something miraculous turns things around!! My thoughts are really with you two today.

 
At 2:38 PM , Anonymous Anonymous said...

This is a hard road to continue on each day. Remember,God's hand is still there each step of this journey. There are sooo many blessings to be thankful for. No rejection, if she is able to sit up like that and look at a book she obviously has stopped throwing up, if she is sitting up her tummy must be smaller, she is not on the vent, the fluid around her heart hasn't become emergent, He protected Ashley when she had to have the fluid removed. You were so scared because of what happend last time, and He was there protecting her the whole way. Praise God!!! He is still there, and He is still working, and there are many things to be thankful for. Don't let the enemy steal your joy..... We are all out here praying, and God is working. Remember that even when things get really tough it doesn't mean that He has taken away any of the blessings He has given you. May you feel God's love in a very special way today!!!

 
At 4:56 PM , Anonymous Shirley Hobson said...

Although I didn't go thru this myself, a sister did.
It is so hard to see little ones go thru"HELL". You know
that God has a plan and wish you could know just a
little of what it is so you
can manage to get thru it.
You are not alone. Besides
your friends, you know that
God is with you no matter what! You are in my prayers.
Your Friend
Shirley

 

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