Ashley's Story

She will leave fingerprints all over your heart

10/01/2007

Wrapping it Up

I have had many hours to be alone with my thoughts the last two days. I keep reminding myself of Ashley's story. Not just the journal portions of her story, but the entire story of my sweet girl from her first day until today. Last night I walked through the days and reminded myself of ALL the amazing works of God. I never realized His intimate work in my life until I knew of our Ashley. The details are many, the relaying of them all would literally take hours, the knowing He was there each step of the way brings comfort to us. How blessed I am to have the opportunity to store them in my heart and "ponder" them on days like today. Why He chose me to be her mommy I will never know, but oh how grateful I am. This little girl has changed my life, my heart, and my faith for ever. I love her and every moment I am allowed to spend with her.

At this moment Ash is in the crib struggling against the pressures in her belly, but still breathing beautifully. Her abdomen is enormous and she has put on over six pounds because of the swelling in her bowel. It is unbelievable to us to see her body being stretched to this capacity. Her skin is so taught that it has become shiny and glossy. I honestly have no idea how she is able to bare the pressure and the weight that is on her. She has areas of her body that is covered in a red rash and fever. Her right eye remains swollen shut and she is trying her best to peek out of it. She can not move her body because of the size of her belly, but she does request foot massages from whoever is standing close by. Everyone knows that when she asks you must comply. I just love the nurses who respond to her request. It makes my heart smile. If rubbing her little feet makes her feel a little better then I will willingly stand there all night. She is trying to rest and for this we are grateful. If you touch her, move her blanket, or bump into her crib she cries out. She is so tired.

Knowing her history and seeing the condition her body is in I am amazed that she remains so strong and so stable. God is definitely working in her body. She has multiple things going on inside of her. Rejection, viral infection, bacterial infection and yet she remains strong. Her bowel is so very injured and yet she remains strong. This is God and His work. I know He hears the many prayers that the body of believers are surrounding her with. Even though we are facing some uncertain issues I have a confidence, a peace, an acceptance. The upcoming days will be crucial and we are told they will be difficult. I can not tell you what is going to take place. If I think too much about the impending operation and the re-sectioning of her bowel I begin to get nauseated. I have to focus on what is good and what He has already done. I can't allow myself to become overwhelmed right now. Perhaps tomorrow will bring healing or at least answers.

We are mentally tired and emotionally drained. Our day began with some frightening possibilities , but as it comes to an end we are feeling at rest with where she is at this moment. Her future is uncertain, but honestly yours and mine is too. None of us have been promised our next breath. I am just grateful to know that He holds us in His hands and close to His heart. He loves my baby and I know that.

32 Comments:

At 12:06 AM , Blogger Unknown said...

Bless you, I am praying for your baby. Sweet Ashley is so strong and she is fighting this. God bless you tonight. Praise the Lord for a miracle to heal this child. God bless.

 
At 12:09 AM , Blogger Gretchen said...

I'm so glad Dave is there with you. Praying.

 
At 12:09 AM , Anonymous Anonymous said...

So glad to hear an update. Praying for God's healing. She is a precious child.

 
At 12:21 AM , Anonymous Anonymous said...

Ya know, it seems (at least for me) that having a plan is a comforting thing. You have something to do, something to emotionally prepare for, something to research and get a handle on and then deal with as it comes.

You've had to bear the stress of uncertainty for so many days now, and that is so exhausting in a way that I think (again, for me) it's almost worse than having the most extreme possibility laid before you with a series of scary but survivable steps involved. I know that with our own son, as test after test revealed that he likley would need some replacement parts in his heart, once they told me how the operation would go and gave me an event to focus on and get through, some of that burden was liften.

And in the end, his heart was found to be perfect and not in need of any repair.

I do hope you get the relief of a similar experience... well prepared, with a plan of action, but able to be given the blessing of finding it unnecessary after all.

Trish and Dave, I know you don't know me at all, but I wanted to let you know that I'll likely be in Omaha on Thursday. I'd love it if you'd let me swing some non-hospital-issue food by for you and hand it off in the lobby. A Sweetberry Salad with grilled chicken from Runza? Pad Thai from Noodles? A yummy corn fed steak from somewhere? Anything Panera?

If it turns out I do end up making the trip (my husband has to go for work, and I need to go to Target so I may tag along)... I may call the hospital and leave my name and number, and try to find a way to see if you'd like anything in particular.

I'll continue to pray for Ashley.

Brenda in N E

 
At 1:13 AM , Anonymous Anonymous said...

I was up and thought I would check in, you have my continued prayers, I hope you are resting, all of you.
Beth

 
At 1:17 AM , Anonymous Anonymous said...

Trish, Dee was planning on coming to visit you this week until she read today's postings and saw that Dave was coming to join you. She does not wish to be in the way during this critical time.

However in the days to come and after Dave has to leave to go back home, if you would like some company Dee would be thrilled if you asked her to come visit you and Ashley. I know she would also be happy to bring you some special food or anything you or Ash need or want. If you lost her telephone number you could ask Dave to call me when he returns to Longview and I will give him her telephone number.

I posted earlier, by the way, in the guest book area.

Your praying friend,
Sandi Carroll, Longview, TX

 
At 1:29 AM , Anonymous Anonymous said...

Still praying for a miracle~~~Glad David made it safely and is there with you. Hope you can get a little rest tonight and that tomorrow will bring continued peace.
Praying~~~praying~~~still~~~
Love to all of you~~Janiece

 
At 1:34 AM , Blogger Toni said...

Trish,
I'm in tears. It's the LOVE that you express so beautifully for Ashley that causes me to cry. Please know that I continue to pray for all that she needs.
Blessings,
~Toni~

 
At 2:08 AM , Blogger Fiffer said...

I woke up out of a sound sleep tonight and I know it was to pray for precious Ashley. I am so thankful Dave is there with you all now. What a joy for Ashley to know he is there. I am truly concerned how long you can go without real sleep, Trish, and I pray tonight brings you some sleep now that Ashley's daddy can be there by her side. I wish I could be there taking a turn on foot-rubbing duty. Even in the midst of exhaustion, your words are so eloquent. Thank you for allowing God to speak through you. I am praying for a miracle tonight.

My love, Martha

 
At 2:35 AM , Blogger Cheryl Jones said...

It is 3:15 AM in the middle of the night here in Ohio. I know it is the Lord waking me up to pray for Ashley. I am honored to go to his throne room and pray at this hour and I just believe that the Lord is laying her on peoples hearts round the clock. I just had to come here to let you know that it does not take meeting someone personally when it comes to how the Lord works in our lives. I could not love your family any more had I met you all in person. We are all the family when we love the Lord and when one hurts, we all do.

Jesus said, "With man this is impossible, but with God all things are possible" Matthew 19:26

Hugs, love and prayers,
Your sister in Christ,
Cheryl

 
At 3:17 AM , Anonymous Anonymous said...

Hey guys,

My body is still on Russia time, so I find myself wide awake at 3am. I decided to take this time to check in on my favorite Gherkin, and see what has transpired the last week and a half while I was out of the country.

Wow. What a roller coaster of challenges and emotions the last several days have brought. I am so thankful for your faith in God through all of this. Our faith in Him is the only way to get through times like this. Jill and I are praying for Ash, and for your entire family. We are praying for miracles, and for complete healing of your little pickle.

Happy Birthday to Blake today! I know it's tough to be away from him on his special day. I pray that he will feel truly celebrated in spite of everything that is going on.

We love you guys! You're always in our prayers.

God Bless,
Scotty

 
At 4:10 AM , Blogger KM said...

The Lord has His hand on many of us tonight praying for your sweet family. All of you. How funny to read the times on here when others were awakened...I too woke up and knew I was to pray for Ashley.

God bless each of your family members today. Praying for favor for Ashley today. Praying that Blake's b-day bring special blessings.

Kristi in Texas

 
At 5:36 AM , Anonymous Anonymous said...

I am sat here listing to The Voice of Truth by Casting Crowns, reading the update and praying for your family. The lyrics remind me of the battle you fight and of your obvious faith. I hope they help you as you fight alongside precious Ashley Kate.

Oh what I would do to have
The kind of faith it takes to climb out of this boat I'm in
On to the crashing waves

To step out of my comfort zone
Into the realm of the unknown where Jesus is
And He's holding out His hand

But the waves are calling out my name and they laugh at me
Reminding me of all the times I've tried before and failed
The waves they keep on telling me
Time and time again, "Boy, You'll never win!"
"You'll never win!"

But the Voice of Truth tells me a different story
The Voice of Truth says, "Do not be afraid!"
And the Voice of Truth says, "This is for My glory"
Out of all the voices calling out to me
I will choose to listen and believe
The Voice of Truth

Oh what I would do to have
The kind of strength it takes to stand before a giant
With just a sling and a stone
Surrounded by the sound of a thousand warriors
Shaking in their armor
Wishing they'd have had the strength to stand

But the giant's calling out my name and he laughs at me
Reminding me of all the times I've tried before and failed
The giant keeps on telling me
Time and time again, "Boy, You'll never win!"
"You'll never win!"

But the Voice of Truth tells me a different story
The Voice of Truth says, "Do not be afraid!"
And the Voice of Truth says, "This is for My glory"
Out of all the voices calling out to me
I will choose to listen and believe
The Voice of Truth

But the stone was just the right size
To put the giant on the ground
And the waves they don't seem so high
From on top of them lookin' down
I will soar with the wings of eagles
When I stop and listen to the sound of Jesus
Singing over me

But the Voice of Truth tells me a different story
The Voice of Truth says, "Do not be afraid!"
And the Voice of Truth says, "This is for My glory"
Out of all the voices calling out to me(calling out to me)
I will choose to listen and believe(I will choose to listen and believe)
I will choose to listen and believe
The Voice of Truth


I will listen and believe
I will listen and believe
The Voice of Truth

I will listen and believe
Cause Jesus you are the Voice of Truth
And I will listen to you
you are

 
At 5:56 AM , Anonymous Anonymous said...

praying...

 
At 6:06 AM , Anonymous Anonymous said...

Thinking of all of you as this new day begins, and trusting God will shower upon you his blessings today. Praying, always, for Ashley. We love you.

 
At 6:23 AM , Anonymous Anonymous said...

Praying for you guys this morning....realizing that today is Blake's birthday....Happy Birthday to such a special young man. I know those that are in Longview will make sure that he is treated like a King today. It is my prayer that you got some rest last night...but most of all that Ashley has gotten some much needed rest. Praying for the doctors and nurses that will be attending to her today...that God will give them much wisdom when it comes to Ashley. May you feel His love and power watching over you today!

 
At 6:29 AM , Anonymous Anonymous said...

I'm honored that you have shared Ashley's journey. I am changed because of it. Thank you. It is quite evedent to me why God chose you to be her parents. Please sing "Twinkle Twinkle Little Star" to her sweetness on my behalf.
With prayers, Heidi

 
At 6:32 AM , Anonymous Anonymous said...

Also awaken early this morning to pray...God is faithful.

 
At 6:35 AM , Blogger Paige said...

Dave and Trish, I am so glad that you two are physically together as you walk this road. Trish, you are the strongest person I know, but life is so much better together. I know that you feel that way as well. My thoughts and prayers are with you all. Blake and Allie, you are not forgotten in all of this. I will check back in soon. Love and hugs!

 
At 6:43 AM , Blogger Shannon said...

Praying along with so many others this morning.
Blessings to you,
Shannon

 
At 6:47 AM , Blogger KimberlyDi said...

The first thing I do when I get to work is check on Ashley. I'm so relieved that Dave is there for you both.

praying praying praying

 
At 6:58 AM , Anonymous Anonymous said...

Praying without ceasing....again...your calmness ....such a testimony...your walk....God is shining through you....I thank God for the stable breathing & lay all else before HIS feet....He is Able....He provides the peace & all the needs.... Praying...

S.S.

 
At 6:59 AM , Anonymous Anonymous said...

Dave & Trish,

I'm glad you made it Dave. I know the girls need you there.

God is so good! He is faithful! He loves His children! He wants what is best for us! For that, we can rest in His Word, remember, all we have to do is "ask" and it will be given to us. All it takes is the faith of the size of a mustard seed to move mountains. This is a mountain!!! There are so many who love the Lord and are praying for Ash. Who in turn love Ash, and are praying and asking and having the mustard seed faith. What an awsome army you have, backing you. God will do His perfect will for Ash, she is precious to Him just as you both are.

I'm still praying. I love you guys. I pray God will take care of Ash today and turn this around. I also, ask Him to give you both the strength that is needed to face today and the peace that only He can give.

I love you.

Toni

 
At 7:26 AM , Anonymous Anonymous said...

Why do they think that waiting is going to help her at this point? She is obviously getting worse every minute.
So glad Dave made it safely. Lifting you up moment by moment before the Father...
Do you realize that at least one person was up each hour of last night praying and posting on Ashleys behalf? (from 12am to 7am) What an amazing thing!

 
At 7:53 AM , Blogger Elizabeth S said...

Still praying.

 
At 8:05 AM , Blogger Troy and Melanie said...

Father we thank You for the peace You have given Trish and David, we pray that You would continue to give them that peace as they write the pages of Ashley's story the next few days. Our lives are all in Your hands. There is no place I'd rather be, and I know Ashley is in the best care possible. Thank You for all the blessings You have poured over this family....We pray that they continue over the next few days, weeks, months and even years. Help them to continue to lean and depend on You as they get through these next few crucial days.....Lord, we know all things are possible through You. I know You are holding them close to You every step of the way - help them to feel Your presence with them, comforting them, every moment of every day. In Your precious name we pray, Amen.

 
At 8:06 AM , Blogger kingfamily said...

Matthew 11:28
Come unto me all who are weary & I will give you rest.
Your faithfulness admist a hard trial is a witness of God's grace to so many who are reading this!It's so apparent to see that God is holding your entire family closely in His arms. What a blessing that Dave is with you now! I'm praying that Ashley is feeling little pain and a lot of Jesus.
Love and many prayers,
Brandi in PA

 
At 8:29 AM , Blogger Laurie in Ca. said...

Hi Trish and Dave,
I wanted to let you know that prayers for Ashley are happening here in So. California this morning. A sweet friend who I just met sent me to you.
She is such a BEAUTIFUL baby girl! I will be joining your band of prayer warriors from this morning forward.
Praying for your continued strength to get you through each day and Gods peace to guard your hearts completely in this time of uncertainty. And asking God to touch Ashleys little body and fix all of the things that are causing her harm. A miracle of His healing touch.
Praying His peace, joy, and love fill your hearts today and that He hugs all of you close to His heart.

Laurie in Ca.

 
At 8:35 AM , Blogger Amy T said...

What a beautiful inspiring post! So glad Dave is with you. Praying that there will be many reasons to celebrate today - Blake's birthday, Ashley's healing..., I'm sure Blake could think of no better present than to have his little sister feeling better. Praying here in Longview,

Amy T.

 
At 8:42 AM , Blogger Paulette said...

Trish,
You have such a gift for writing. I love reading your beautiful poignant posts about this journey.
I am so grateful that you care enough about all of us by writing so frequently. I know for me I am always wondering how Ashley is doing and I come here and can find out because you keep us so well informed. It also helps me to know how to pray and what to pray for specifically.
I love your precious family and thankyou for allowing me to be a part as your prayer warrior.
I put ash on our 24 hour prayer chain.

 
At 9:07 AM , Anonymous Anonymous said...

My heart breaks for Ashley and all the pain she is fighting through right now. It makes me laugh to hear you talk about her foot rubs. I can picture here poping that little foot in the air and just waiting for someone to grab it and rub away. She's so funny:) We are in constant prayer for Ashley and also for you and Dave and Blake and Allie. Especially for Blake today, I'm sure it's hard for him to celebrate his birthday with both of you there with Ashley. Blake is such a good kid with a big heart. I love that kid!

I know God still reigns and is in complete control over Ashley's body once again today. I'm so thankful I have a Father who created and loves our Ash. He knows how every little part of her body works and He could choose too make her bowels function again if He so chooses. My prayer is that he gives the doctors wisdom in what to do. The Lord says to "pray without ceasing" and that is exactly what our family is doing. I love you guys. Rae

Oh by the way give Ash a foot rub from her Aunt Rae.

 
At 9:27 AM , Blogger Sunshine said...

We are still praying - our God is SO huge! Sunshine

 

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