A Roller Coaster Day
Last night the news was that Trish and Ash were not going to be getting out so long as Ash had a central line. We are not really sure why because Ash had a central line in our home for over a year and we are perfectly capable of caring for it. However, that was the word. This morning during rounds the Dr. told Trish to pack her things because she was going outpatient today. What? Where did that come front. Trish was just standing there in shock with her mouth hanging open. She didn't argue, she just started packing. She quickly realized that we don't have a stroller in Omaha so she found someone to sit with Ash while she ran to Target to find a stroller. Just a few short hours later she was now told that she would not be going outpatient today. Ash's face is swelling and they are concerned that she may have a blood clot in her jugular vein from Monday's surgeries. Additionally Ash's FK (anti-rejection med) level came back at a 37. Normal for Ash is 5, 37 is FK toxicity. She is not a happy little Gherkin today. She is so irritable and feeling absolutely miserable. So it was decided that now is not the right time to go outpatient. I can't even begin to imagine the emotional roller coaster Trish has been on today. Please pray for Ash tonight as the FK toxicity is making her absolutely miserable. Most of her hair has fallen out and I think Trish's may as well because she can find no way to console Ash during this time. Please pray for Trish as well as she has had a very challenging day and I think it will stay that way until Ash's FK level comes down.
Goodnight,
DAVE
Goodnight,
DAVE
posted by Ashley @ 7:29 PM
45 Comments:
Oh, my! Outpatient? Wow! Amazing! :-)
I do hope she gets over this hurdle quickly so she can coast on down recovery road!
Yay! I'll continue to pray!
Brenda
Wow, that post started out great, I was so happy for Trish and Ashley.
I will praying things turn around quickly so they can get out of there.
Blessings,
Julie
Wow, I can not even begin to imagine how emotionally drained Trish is. We will be in prayer for sweet Ashley. ..and your whole family.
PRAYING!!!!
Staci Barham
Praying...at 9 pm and throughout the day. Especially praying for Ashley's level and health...asking God for a miracle!
Love in Him,
holly
Oh wow - you weren't kidding with your title! I am sorry and I will continue praying - yet part of me is SO happy that the option to go outpatient is there...that is HUGE! Sunshine
Will be praying for her FK level to go down! and that there is no clot. Trish, This must've been a really rough day! You're in my prayers as well.
Praying very specifically for your request. Thanks for keeping us posted and for giving us the privilege to lift you all to Him.
I'm so sorry, that just seems cruel to be so very close and then have it snatched away. I'm praying for a better level soon... and for peace for you all.
Praying praying praying
Bless their hearts. I will be praying for both of them. My heart goes out to Trish, what a strong woman she is!
Continue to pray for your precious family. Thank you so much for the updates...I know it is not something you have to do but know that you are blessing so many through your words. Always in my thoughts and prayers in Lubbock. Mistie
Praying for you all. I wish I knew someway more tangible to help than that. I'm so sorry for Ashley's yuckies - she sounds miserable - and just as sad for the exhaustion of having to switch emotions hourly for Trish. That is so hard. I'm praying right now that our Lord will move close toward you all. Sometimes it's hard to have the energy to take even one more step. Sounds like that kind of a day. We're praying.
Praying for each one of you, I am at a loss of words. It just seems like this has been such a difficult week for all of you after such a great time last week with the kids. I ask that God wrap you in His loving arms and carry you down this journey. May He especially touch Ashley tonight and give her sweet and precious and uninterrupted rest. Trish, too. Hope that you and Blake and Allie are hanging in there. God Bless and many Prayers!
Dave ~
We will be praying for Ash and Trish tonight. Also, I wanted to make you aware that 1) We are VERY familiar with Jugular Thrombosis... Morgan's jugular vein clotted off from a central line placed at birth and Oct. 15th of this yr we had a procedure done to remove the clots and place stints. If you'd like more info just let me know via our blog comments. It's a rare procedure but so effective.
2) We are from Longview. We have many friends in your home church, so we are both at your disposal via Ash's blog as well as locally.
Please let us know if we can be of any assistance.
What a high and then low! UGH!!! Praying that Ash kicks this one and can go outpatient FOR REAL. Poor little Gherkin! Praying Trish!
d
Trish, I can't imagine the emotions you are having to deal with right now, but the Father does. May you find rest in Him tonight and over the next several days until things calm down. We will keep you both in our prayers, and that the clot will resolve itself slowly and safely.
Love you both.
I will keep praying!
May the Lord be with you all as you continue to face this trial. As do so many others, I continue to pray for your situation, precious little Ashley, and your entire family.
May your every need be met through Jesus Christ.
Mae
Praying for endurance and peace for Trish as she helps Ash through this hurdle, and praying for Ashley to get some relief from the discomfort!
Hopefully outpatient will be just around the corner!!
I'm at a loss for words. cannot even imagine the stress Trish is under.
Even without words, my prayers do not cease.
Kristi in Texas
Praying for decreased FK levels, no clot, Trish's to get some rest and be able to cope with the emotional roller coaster she is on, and Ash to feel better and be able to go outpatient, and Dave, Blake and Allie to stay strong.
I am so glad to see that God has placed someone here in comments who has experienced what you may be experiencing, and with good outcome. Praying for Ashley, that God will continue to complete the very good work He has begun in her life and in your lives, that He will continue to bring her to healing and health, and that He will continue to strengthen Trish and all of you. I wish I could be at the hospital with her to hug her and to just help her walk through these difficult days. Thank you for keeping us posted on how we can pray.
OMGosh!! I am terribly sorry for such a rough day! I know that has to be so hard on you Trish!! So very sorry! I am praying for FK levels to go down and that there is no clot! Praying for Trish to find peace and for both mommy and baby to be able to rest tonight. Praying for Dave, Blake & Allie to remain strong. I know this is so difficult for you all. Praying every waking moment of my day!! Ya'll are always on my mind.
God Bless you all!
P.S.
Thank you so much Dave for keeping us posted! You can't imagine how much that means to me and I'm sure most of us. I have grown to love your family like you are my friends.
Again...always praying & God Bless you all!
Praying for Ashley....
I am praying very hard for peace for Trish and healing for Little Ashley.
What a day! Praying for things to level out quickly and that they are on their way out of there.
Beth
I cannot even imagine the emotions Trish is feeling right now. Know that we are praying for her as she continues to have these kind of days. And also for Ashley that she will be feeling better today!
Praying for Ashley's safety and continued healing. Praying for you, Trish, that God would send angels to minister to you there. Praying for you, Dave, and the Allie and Blake. But mostly praying against Satan's attacks on our Ashley. I claim the blood of Jesus over her every breath, her every cell, her every healing process, her every medication and every person who enters her room. In Jesus' Name, I claim the Blood of Jesus over this family.
What a day! I feel so much for poor Trish! She is such a wonderful mom and she has been through so much. God has to be giving her the strength to endure this super human ordeal. He must be showering her with so much love and grace. I am praying for Ashley that she improve quickly.
Praying for strength, endurance, patience for Trish. Praying for relief for Ashley.
Praying praying praying for both Ashley and Trish.
Praying . . . things will turn back around quickly for Ash. ~Chan~
I am so sorry that yesterday was such a rough day! I pray that this morning brings peace and healing and God's rich blessing on all of your family. Thank you again for keeping us updated. Praying!
Oh my. A roller coaster day indeed. Praying for healing, strength, grace, and peace.
-Cari in Arkansas
Oh my goodness. I am so sorry that she (Trish and Ashley) are going through this time. I pray that they can get through this without too many scars (emotional and physical) and that that sweet girl gets to go outpatient very soon!
Amanda
She is getting so close to going home! I am praying for Trish today so that she can stayed focused on her little queen!
We are continuing to pray....
Jackie and Susan Roberts
I will continue praying for Ashley, Trish ... for your whole family.
warm regards,
Mary Sue
Praying the clot and toxins resolve safely and quickly and for some much needed rest.
Praying for you all today!
God bless,
Lori
I am so sorry. I can't imagine how hard that must be. I will be praying.
Thank you for the update... We'll be praying for you all...
Thanks for the update. Praying for Ashley, strength for Trish, and for the rest of the family.
-Jocelyn
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