She looks great! Still a little weak and requiring some oxygen support, but just look at this sweet baby. I think she looks great. Morning rounds brought more good news. They are going to pull the second chest tube out this afternoon(it is finally as dry as the Sahara!) and then they are moving us out of the hopsital and over to the hotel. Thats good news! She will still require the use of her central line even though there are some problems with it. We discussed our different options and have decided the safest risk(if there is such a thing?) would be to allow it to remain and pray the vein doesn't clot off. It has moved position over the weekend and is now in the smaller subclavian vein running the chance of clotting and losing that access forever, but versus all the other complications and setbacks she could suffer from re-wiring or the OR or removal we have chosen this option. She will be requiring daily lab draws and x-rays through the remainder of this week and then IF everything goes perfectly and all the "ducks" line up then we could be headed home on Sunday. Thats GOOD NEWS!
Ash is still requiring the new formula without any fat and will be for a couple more weeks until the chylothorax completely heals and she will possibly require oxygen support for a little while, but other than that it looks like our little pickle has pulled through again. WOW! When I think of all that the Lord has done in her life it is nothing short of miraculous. Over and over and over again His mercy has been shown, His power has been proven, and His will for her life has continued. Simply amazing.
First thing she did when she opened her eyes at 5:30 this morning was grin ear to ear and hold up her "spiders" as she looked across the room and saw me. I giggled to myself knowing there was no way in the world I could deny that child a round of itsy bitsy spider this morning even though my body was screaming NO because it didn't want to get up.
My weekend home was so full of precious moments and I am going to share them with you this afternoon as soon as I put together some sort of slide show. I just wanted to share our potential good news before I ran to heat up some lunch.