Update
Ash is very, very sick. Her sats began to drop around 5:30 this morning. Even on oxygen support of 4 liters she couldn't keep them above 85. We switched her to a re-breather mask and have now been able to keep them between 94-98%. She is working very hard to breathe. Her entire body is shaking with each breath. Her heart rate is running between the 160s and 180s. She is pretty much trying to sleep through all of this, but is clearly not resting well. She is crying and whimpering and just feels really bad. We have started giving her breathing treatments and I am waiting to hear what today's chest x-ray looks like.
We have been on the phone with our doctors in Omaha and have decided if things take a turn for the worse that we will go straight there. Ashley has an extensive history of respiratory failure and if she needs to be intubated we would not be able to move her from Shreveport to Omaha in case her organs began to fail during this episode of infection. So ultimately we may need to be there but not be able to get there. These are very tough decisions for us and we are literally aching inside with the thought of having to return to Nebraska. As always, they know her the best and have been with her the longest so they are the ones we must return to when things become critical. We trust them. We are monitoring her blood gases and so far they are stable, but at the first sign of trouble we will intubate. We have contacted our flight crew and they are on emergency notification. Everyone's hope is that in the next 24 hours the antibiotics will kick in and help her to fight this pneumonia without needing transport or ventilator support.
Things can go from good to bad very, very quickly. Knowing how precious her good days are have us to live as though we must make the most of every single one. None of them are taken for granted and I find myself whispering thank you each and every day more times than I can count. My heart is uneasy today and I have no idea how this will all turn out. My prayer is that she will recover quickly and we will return to our little home that waits for us just around the corner.
Your prayers for her recovery and comfort are most appreciated. Thank you for loving us and for loving our baby gherkin.
22 Comments:
OK I lost my comment somehow - I am sorry if you get two from me!
We have been sick here at my house so I haven't been able to check it as often - my heart aches at the last two posts! I will be praying for you guys - I am sorry that Ashley feels so crummy and hope that the meds kick in and help her fight this thing! Sunshine
Praying for Ashley's healing. Praying for a sense of peace for your family during this uncertainty. Praying also for wisdom and discernment for you and the team of doctors during this time as decisions need to be made! I pray she turns a corner and can be home soon.
-Chris
Praying, praying for you sweet family.
Kristi in Texas
Praying! Praying and asking God to do it again.
Much love,
holly
i am praying...thank you for posting. prayers going up...
Thanks for the updated post. I will continue to pray. Love, Stephanie
Forgive my tears! I'm very very sorry to hear this. I am praying for sweet little Ashley to recover from this quickly!!! I pray that she may find comfort during her illness. I pray for you and Dave and the kids to find peace....even though I'm sure that is difficult right now.
May Our Good Lord hold you all in His arms today and Bless you as always!
Praying, Praying, Praying!!
~Okla
Praying fervently!!!!!
Praying for Ashley that the meds will kick in quickly and do their job. Praying for you and Dave as your hearts ache with this uncertainty and watching your precious baby struggle. PRaying for Allie and Blake as they struggle with their emotions right now! And praying that you will be able to go home to your little yellow house soon and not to Omaha:)
Praying that the medicine starts to improve her situation quickly. Praying for wisdom for the staff, and for you and Dave as you all make decisions regarding what will be best for Ashley. Praying that she heals quickly so you may return home.
Praying, praying for sweet Ashley Kate.
Praying. We love you all so much.
Praying for a fast recovery, and some rest for the little one, and for you and your family. Get well Ashley, we are praying hard for you.
It is an honor to pray for Ashley. Lifting her up before the Father, who loves her so and knows her body so well.
I am SO sorry Ashley is sick. I too pray that she gets better quickly and can just stay close to home. It is snowy and cold and CRAZY here...
Feel better soon!
Hugs and prayers,
=)Amanda
Praying from Wisconsin for Ashley and your family. May God our GREAT Father hold her tightly.....
Praying for you all. We have been following your story and were so happy that you ALL were happy being home. Praying that this is just a temporary set back. May God give wisdom and discernment to your family and the medical team working with Ashley.
Praying for your beautiful girl.
Krista
Praying for sweet Ashley and your family. May God speed her healing.
Praying for all of you!
Love and hugs,
Lori
Praying for Ashley, and thanking God that she has parents who know her so very well, and knew when something wasn't right!
Praying for Ashley and your family.
Friend in Michigan
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