Plans for the Day

Instead of packing we have rearranged our plan for the day. Ashley's white count is trying to recover from last weeks chemo so today they will knock it back out by adding in our transplant immunosuppressive drug F-K. She will have a bowel biopsy because the team has become concerned with the sudden onset of the large amounts of stool she is producing in her ostomy bag today. No one is comfortable with what is taking place. She will begin her scheduled chemo for today at 4:00 and it will run until 10:00. Ashley's liver is taking a hit from something unknown. Her bilirubin jumped from .9 to 2.1 overnight. What is going on? We are not sure. Her chemotherapy is said to cause damage to the kidneys but not the liver so we believe it is unrelated. They would like to straight cath her today but I am resistant because so far today Ashley's life has been pretty crummy and I just didn't want her to be put through anything else, but I am fighting a losing battle. She is not making urine this morning and they need a sample to test for a possible UTI. I don't think she has one, but I didn't think she had the last one either and it turns out that she did. I am sure I will relent and allow them to do it because it is what is best. Sometimes doing the right thing is really difficult. She is fussy and weak today so I plan on rocking her for most of it.

Disappointed? yes. I really am, but surprised? No. I am not. This is just what life is going to be like for our Ashley. Ups and downs. Things can change in a matter of an hour(literally). I know I prayed for us to leave only if it were the right time and the safest solution for Ash. Obviously I have received an answer. Today is not the day. I just pray it comes for us soon. Take care today and remember how very special you have all become to a tiny, baby gherkin and her family. God Bless. Trish