Figuring it Out
I spent some time on the phone this morning with our transplant coordinator and it looks like we may have figured it out. Ash's blood work this week looks as though she is low on sodium bicarbonate. This is actually one of the meds that they decided she no longer needed while we were there. She was only on 10mls at night that we would add into her feedings, but perhaps that 10mls was what she needed to keep her chemistry balanced. Anyway, we are waiting to get a new script sent so we can add it back in and see if things straighten out. Hopefully she will be back on track soon. She hasn't had any more nausea and her shaking has stopped, but her urine output is not as high as I would like it to be. She continues to not have much of an appetite today, but she is awake and playing.
Ash has been making progress during her therapy and again today we saw her do things she didn't know she could do. Ashley is standing up along the couch(with assistance from her therapist) on her own legs and pushing herself off with her arms. This is so HUGE! She is full weight baring on her own two feet and she will stand up straight and tall and turn her head around if we start a Blue video for her. That little blue puppy has become a great motivational tool in our home to get Ash to do the things she doesn't want to do. Even though she isn't feeling her best today she still impressed us with what she is capable of doing when we give her a little push.
I just wanted to give a quick update and let you know we are working on figuring out what caused her to feel so yucky yesterday. Thank you for praying for Ashley Kate. Your time here and your encouragements are so appreciated! Have a great afternoon and God Bless. Trish