Snuggled In
Ash and I snuggled in and ready to spend our Saturday night in the PICU. I didn't take this picture today, but she just looked so cute in it I had to share. She is actually SNORING as I type with the help of a little Benadryl. They decided to give her some to try and keep her from ripping off her face and everything else she was after. It not only stopped her clawing, but it put her over the top and she is now sleeping. I have decided that sleep is a beautiful thing! I actually took a 2 hour, drool running, contact losing nap myself. When you are as tired as we are its not pretty. I assure you we wouldn't be accused of going by the name Sleeping Beauty.
I am still running laundry through the halls. Only one more load of pink blankets and I can call it done. Theres just something about doing this baby's laundry that makes me happy. I could fold her little jammies and things all day with a smile on my face. I think it just serves as a reminder that she is with us and for that I am grateful.
Allie's team did defeat the undefeated team today and although she didn't score the two goals she did set them up and was credited for the assists. "Thats just as important mommy, my coach told me." Yes, she is right and I am just so proud of her! The Tarheels lost their first game and they are currently tied in their second.
Living in such small confined space with no privacy can be extremely trying at times. Always having people in and out and touching your baby can also be trying. I do my very best to appreciate and get along with all those who care for our Ashley, but sometimes things get misinterpreted and things get said that aren't always correct. That makes for an uncomfortable day. I pray that my character will show itself and those that have cared enough to get to know me can stand by that as well. My dad taught me early on to always do the right thing NO MATTER WHAT and if I did that nothing anyone said about me could compete. I pray this applies in PICU situations as well. Please pray that I can be a friend and a blessing to those around me. I'm feeling a little stressed, and a lot lonely. Thank you, Lord for those nurses who choose to be my friend. I wouldn't be surviving this time without them. I love you guys!
I'm gonna snuggle up in my chair next to my baby's crib and jump into a new book. Thank you for your prayers. Days like today make me wish I could run home to those who I know love me and my Ashley. I'm sure this time is serving a purpose, but its not always easy to see what it is. Good night my friends and God bless. Trish
posted by Ashley @ 7:31 PM
27 Comments:
I am praying. The picture is precious!
Good nite sweet ladies, I pray Ashley sleeps all night long. I will be praying that the need for her to be agressive with her little body would lessen.
I will say a prayer for Dave, Blake and Alley tonight as well that they are at peace, especially in school.
Goodnite...
Trish,
I am not sure if I have posted a comment before but tonight your loneliness touched my heart. I've "watched" and "listened" to you for a long time and prayed for you and your family along with many others who regularly share here. Last October I spent one night in the childrens hospital in Louisville KY when my 2 year old broke his femur. Only one night but the loneliness was loud and unnerving...and real. I cannot even begin to "feel" the depth of your emotions but just know that many of us are coming along beside you and holding you to the Father.
Hang in there, Trish--you are doing great! And thanks for sharing another precious picture of Miss Ashley--she's just a doll!! I'm so glad she is sleeping and that you got a good nap earlier today. I hope tonight is full of lots of sleep for both of you! Love and blessings, Karen
I am so glad that Ashley is sleeping. I'm so thankful that you were able to get a good nap in too! I know you are both exhausted. Thank you for sharing the precious picture. She is adorable. Hugs to you!
Precious picture and praise the Lord she's sleeping! I hope she still is. Get some rest yourself. Praying for some friendly faces for you. Way to go Allie! Hope Blake's second game went better.
I pray that God binds up your heart and holds you close to Him! I pray that Ashley continues to heal and that His name is continually praised because of that! May God bless you tonight - Sunshine
Trish-
She is adorable and I love thos pajamas with the hearts. She is so cute I could just eat her up! I pray that she would not need to destroy her little body with her handsss and that she is comforted by the arms of Jesus. Your story encourages me every time I read.
Praying and loving you from afar!
Shari
I somehow wish I could be there to keep you company and make your days pass by more quickly- I feel like I know you and wish there was a way I could help. Many caring thoughts and prayers are coming your way. Glad Allie did so well in her game today!
Megan
I am praying for you... I came across your blog from the Farleys. Know my heart is bringing requests to the Lord tonight.
Praise God for her getting some relief! And I'm glad you've gotten some rest too! Hope you're able to enjoy your new book. Know that you're in my prayers.
What a great picture! So glad to hear the princess is getting a bit of a rest (even if it takes a little benadryl!) Have a great night. I'll see if I can sneak up some afternoon early this week--any needs?
You're right. The picture is precious. I am glad you are finally getting a little nap. We are still praying.
Tracey
Trish,
I think I owe you an apology. I took something to Blake on his birthday & I printed off the post about Blake & put it in the card....not thinking that it would make him sad. I was including it thinking it would make him happy. The letter was so beautiful. I have thought about that post ...& how he missed you & I have wished that I had not put that in there. So, please accept my apology. My intentions were to lift up not to bring down. Just needed to mention that. Praying for you guys.... (Ash looks so sweet in this picture...) Love the jammies...You always dress her so cute.....
S.
Thank goodness for Benadryl and compassionate doctors and nurses who are willing to give it! Sleep well little lady Ashley. And Dave, praying for an extra strong dose of wisdom for you on how to lead your family and keep everybody CLOSE and TOGETHER during this tiime of separation. Blake and Ashley, praying for a strong sense of comraderie and brotherly and sisterly love and understanding for the situation you are going through. You are both doing such a good job of being a good brother and sister and being strong for Mommy and Daddy and baby Ashley. Get a good nights sleep everybody. I'm heading there myself.
P.S. Trish, you haven't mentioned it, but do you have a place to worship while you are there?
Judy
I am so glad sweet pickle is sleeping, maybe you can get some rest also, Trish. The picture was precious. I just know in my heart she is going to feel better because she has so many people praying for her and your whole family. Sleep precious baby and mama remember God loves you all.
Goodnight...
Trish, she looks so good, all things considered! What a beautiful little girl :)
I'm praying for your loneliness tonight. That is such a hard feeling to shoulder, and so I'm praying that the Lord continues to bring friends to encourage and love on you. If only you could see the multitudes of people who are thinking of you, praying for you, and being encouraged by you daily. I hope the Lord shows you one day, so you can know what an impact you've had.
And tell Allie way to go! I love her positive attitude!!
So thankful Ashley is getting much needed rest and comfort from the scratching. I pray she sleeps through the night. That would put a smile on her face in the morning. Hoping you get good sleep tonight too. Your family back home are in my prayers.
God Bless all of you tonight.
Laurie in Ca.
Oh sweet, sweet girl. She looks so precious. I want to give her a hug, and tell her that God loves her!
-Anna
P.S. sleep tight
whew. it is almost 2am and i have been reading your journal beginning with the sept 2006 entry. i clicked on your comment on copeland's blog and have been spellbound by your journey. i could write volumes of what i've felt these past 3 hours. ashley's story is not only about her struggles but about family - a devoted husband with a wonderful sense of humor, siblings who make sacrifices most their age would not, a mother who has spent two exhausting years doing everything in her power to keep her sick baby alive...i am in awe. in the midst of your frustrations, joy, sometimes well-deserved crankiness there would suddenly be a post from Dave bringing a bit of the normalcy of what he was taking care of at home - and with humor. wow. you are all so blessed. God gave you Ashley and how in the world could any of you do anything less than what you've done these last two years. i love your family. i love your cinderella alley and your ball-playing blake. i love your precious strong-spirited ashley. i love reading of the treasure you and your husband have in your marriage. i am so blessed to have taken these thousands of words into my soul and they will always be a part of my heart. i will pray for you fervently. you are loved. jan431@tx.rr.com
I love the picture! I hope you both were able to get some rest. Still praying.
Beth
Im glad you two were able to get some rest. What a beautiful picture of your daughter. Thanks for sharing.
Praying in CT.
Heidi
I've just recently found your blog as a link from Dawn's. I've been praying for you and your little girl and the rest of the family. I'm so glad you both got to sleep last night. I can't imagine how hard it must be for you to watch your precious baby dealing with pain from surgery, prodding, touching, etc. I will continue to pray for Ashley's healing, and your strength. God bless you.
Damaris
She is so darling, Trish. Blessings to you both throughout the day.
Just thinking an praying for both of you! Hope you had a well rested night! Thanks again for becoming such a blessing to my life. You and your family are amazing and you have blessed so many through your words. My daughter just turned 2. I wish I had the words like you do to express how much she means to me and how blessed I am that God gave her to me. Your words are amazing! Thanks again for being a friend to so many. Mistie in Lubbock
SHE IS BEAUTIFUL! Ash has come so very far. Her battles are amazing and her strength to overcome them is unbelievable. I really think it is GOD overcoming them for us to marvel at but I cannot say what I think HE is doing because I do not have the mind of God. At any rate, I am watching her and thanks for the video to put her real situation out there and also the doing better pictures
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