Too Big for a Band aid

Ash is bleeding. A LOT. She hasn't stopped bleeding since the procedure this afternoon. She is having no stool output. Only blood. It is very, very scary as I empty hundreds of ccs of blood from her ostomy bag. It won't stop flowing. I don't know what is going on. Thankfully she sleeps through it all . We are looking for answers, checking her clotting factors and labs, but at this rate we could transfuse all night and just break even. She has some very large blood clots coming through as well, but nothing as large as yesterdays. We are all a little stunned by the amounts of blood coming out of this baby. I think I'm in over my head because my expertise ends at putting a band aid on the children and this problem is too big for a band aid. What is happening? It feels as though our "normalcy" has slipped through my fingers and now we can't get it back.

My heart hurts for Ashley Kate and all she endures. She is sweet, and beautiful, and strong, and amazing, and innocent. I love her so much and I am helpless. Nothing I can do will ever fix her broken body. All I can do is hold her and tell her how very much she is loved. What precious days these are with my youngest daughter. She is especially cuddly and wants to be close to me. I love rocking her and looking at every detail of her tiny face. I love her. I love her spirit. I can see it hiding in those eyes. She wants to feel better. My sweet, sweet baby girl we are trying to get you back home. When you are in a safe place we will go there. I promise.

Praying for a band aid, for an answer, for a solution.

Update 6:30a.m. -
We have just completed another blood transfusion. She continues to lose blood at a very fast pace. She has had blood pumped into her the entire night(literally). We are going to wait 30 minutes and draw another set of labs to see where we are before deciding on another transfusion. She is losing about 1 gram every 2 hours. If it continues for 24 hours then they may decide to do something to try and stop it. Over the last 8 hours she has lost 644ccs of blood. No stool, only blood. It is very clear that she is bleeding inside the bowel but no one knows why. She has slept through most of the night even though she has had her blood pressure and temp taken every 30 minutes for the last 12 hours. She is exhausted and weak and puts up very little fight, but as always I see her spirit hiding in those eyes and she is asking for my help. We will not know much more until after 7:30 when her labs come back. They have been in contact with the fellow all through the night, but I will feel better once her team is here to assess her.